Yes, my first thought when my doctor told me about the AIH was, geez, I hit the jackpot, because from all my reading beforehand I had thought that this type of complication was pretty rare for Sjogren's Syndrome.View Thread
Thank you so much for your response, Cindy. It's good to be able to talk to someone who has been through this as I am feeling very isolated now. It is very difficult to talk to my doctor, and I need to ask the right questions to pull anything out of him. After reading up on this a bit more I'm very scared about what can happen if it does not go into remission and I'm inclined to take my chances with the osteoporosis. However, I'll bring up with my doctor taking some meds for the osteoporosis along with the Prednisone. I already take calcium w/ Vitamin D (but only 600 mg).
One other thing I'm wondering about is the value of a liver biopsy. I asked the Doctor whether having information from a liver biopsy would change the course of treatment, and he didn't seem to think it would (I need to grill him more on this issue) and dropped it. If it will help with treatment options, or if there is a possibility of the liver problem being caused by something else, I'd get it done. But, I've heard that it is very painful, and I'm not sure it is worthwhile? My AST levels are only slightly elevated (about 5-10 points above the normal range) but I've read that this is not a good indicator of how damaged the liver is.View Thread
I was diagnosed with Sjogren's Syndrome a few years ago, and my AST level has been slightly elevated for the entire time. Just found out that I have autoimmune hepatitis. Not having any symptoms or problems, the Doctor just decided to run more liver tests since my enzymes have been elevated. It was a shock and I'm trying to get more information. The Doctor mentioned Imuran (50mg) which I started today, and also said that Prednisone is normally also prescribed. I asked if I could forgo the Prednisone because my mother has a bad case of osteoporosis, so I fear I have a predisposition for it. He said that he thinks that we can just try the Imuran for now, but after researching on the internet, I'm wondering if I should be on the Prednisone too, to make sure that I put this hepatitis into remission. I'm trying to weigh the pros and cons, and any advice would be appreciated. I'm also concerned because I have high blood pressure (just started taking meds) and glacoma.View Thread