I will be meeting with my doctor on April 24 to discuss treatment options. I am 1b and was stage 1 back in 2006 (will have new biopsy on April 17). I tried the SOC treatment back in 2006 and didn't clear until about week 18 or so and then the virus came back while still on treatment about 6 weeks later.
With that being said, which of the triple therapies do you think would be best for me? Also, how long would I need to treat? Would it depend on how quickly my VL drops?
The only reason I am consulting you is because my husband is military and I will be treated on a military base with a G.I. doctor from the VA Hospital that comes to the base. I met with him once and he seems knowledgeable enough but I want to know as much as possible and be prepared just in case. I don't get to pick my doctor unfortunately so I really have no idea how up-to-date he is on the current treatments.
When we spoke at my last appt. He said he typically prescribes Boceprevir because the VA pharmacy keeps it in stock so it's easier for his patients. He also mentioned my treatment time would just depend.
I have read conflicting things. Some saying since I am a null responder that I would have to do about 48 weeks but I have also read that regardless of previous response it would depend on how quickly my VL drops.
I realize you are not my doctor and cannot give me medical advice but please help me as much as possible. I don't want to only treat for 26 weeks because I do quickly and then relapse because I should have treated longer and my doctor just didn't know that!
I guess it depends how long you've had Hep C and how advanced the disease it. Maybe! I have mild aches and tiredness sometimes but that could be attributed to other things besides Hep C.
I would go see another G.I. If possible try to see a Hepatologist. I know the cost of the treatment is expensive but I would not imagine it being that high with insurance; I guess it depends on how good your insurance is.
Did you ever have a liver biopsy done to see how much damage (if any) has been done to your liver?View Thread
Thanks, Dr. Palmer. Actually, I am the one with HCV (not my husband). So you would recommend victrelis over incivek? I have read that incivek has a slightly higher svr rate but less side effects. I think I'd rather a high svr rate even with more side effects!
I have hep c for probably 15 yrs or so and have lived a completely normal life, got married, had a son, etc. There is a new treatment that involves 3 drugs. Pegintron (Interferon), Ribavirin and a Protese Inhibitor, either Boceprevir (Victrelis) or Telaprevir (Incivek). Treatment length will depend on a few things and your doctor will be able to better educate you on that. Make sure you get referred to a Hepatologist or a Gastroenterologist for further testing such as liver function and to get a genotype, which is basically a test to see which strain you have. You should get a liver biopsy too to see what condition your liver is currently in. Don't worry, it take only a few secs and is painless!
Treatment does have it's side effects. I did it about 6 yrs ago and was still able to work and maintain a normal life. The worst part for me was mild loss of hair and muscle aches. I did the treatment with just Pegintron and Ribavirin for nearly 48 weeks. I took a weekly injection of Pegintron and 6 pills a day of the Ribavirin. Unfortunately, I did not succeed with that treatment. Since new drugs have become available I am giving it another go round.
My advice to you is just calm down, get a good doctor, don't drink and take care of your body! You are very fortunate that you have Tri-care (my husband is military too) so the cost of treatment will be very cheap, if not free! The total cost can be somewhere around $70,000 or so!
I guess I am one of those people to don't count my chickens till the eggs hatch, unfortunately! I HATE it!! I have calmed down though and have been thinking...
Would I have noticed if my son did in fact cut himself? Like I said, I never saw any blood... AT ALL!!! He never wears shoes in the house so I keep thinking that I would have noticed some sort of cut on his foot. Especially when I got him out of the bath and I never noticed a cut until later in the day when I started thinking about it. Also, my son had been playing outside most of the day without shoes because he always takes them off. I usually stay in the bathroom when he bathes but I stepped out for a couple mins and when I went back in I just saw the razor in the bottom of the tub.
My friend said that her son cut himself with a razor and it was a blood bath. I guess that would make sense since a toddler has no idea what they are doing and would take no care.
The mark I saw on my son's foot could have been more conclusive to a scratch from something in the yard. It was like a 1/2 inch red mark and at the end of that a small cut, like a stick snagged him. I noticed it about 3:30 p.m. and by the time my husband got him it was around 6:00 p.m. and the red scratch was gone leaving just them small cut.
Yes, Dr. Palmer. He was tested at one year and was negative. I know for a fact there was no fresh blood on the razor as it had been approximately 40 hours since I last shaved. I continually rinse as I shave and when finished so does that mitigate the risks at all? I mean does blood stick to such surfaces even after being rinsed off?
Thanks for the replies everyone. My mom and husband believe I am overacting but I just feel horrible. I have consulted many sites and have been told over and over that the risk is very low in my situation but nevertheless... I can't eat, sleep or even look at my poor innocent baby boy without feeling major guilt!
Also, Dr. Palmer, if he does unfortunately test positive what are our options? Can kids go through treatment? If so is it the same treatment that adults do? Would it be as hard on him? What is the success rate?