I was diagnosed with Sjogren's Syndrome in 1990. I have been taking plaquenil, and different anti inflammatory medications all of that time. Recently, I was diagnosed with autoimmune hepatitis, and primary biliary cirrhosis. Then I started to have more issues with my white platlets and white cell count, and an enlarged spleen. I was put on a drug for the primary biliary cirrhosis, that ended up being toxic to me. I spent almost a year losing weight, because everything I ate made me have diarrhea, and incredible exculating pain in the abdomen. I lost over forty pounds. I had put myself on a diet of very bland food and kept a journal of everything that happened to me. Finally they did another biopsy, and found that I didn't have primary biliary cirrhosis after all. I had discontinued taking the liver med urisodol, and the pain had subsided. Now they tell me II will have to have a transplant sometime in the years to come. I have always been healthy, and have just fallen into a terrible depression after losing my husband three years ago to sudden cardiac death, at the age of 56, my wonderful dog that kept me going after he died, and last December my mother. I feel like I am circling a drain. I have never been good at paperwork or making insurance or medical decisions. Thank God my husband left me with widows benefits, but it will not last long if this all keeps up. I was hoping there was a support group that I could go to, but no luck in finding one yet.View Thread
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