I was diagnosed in 1997. i had a doctor tell me that the medicine he was going to give me would take away my life as I knew it, that I would end up in the corner curled in a fetal position and I would be dead in a year. I have stage 4 cirrhosis and I am still here!! What saved me was a Hep C qualified, knowledgeable doctor and staff. Is your husband on treatment? I have been through 2 rounds of 1 year treatment and have 1 week to go in my 3rd round. Your husband should get on this site and ask any and all questions - no matter how stupid he might think it is - I can guarantee you every single Hepper who is on here has had the same questions. If he is took weak to do it himself, play secretary and you type whatever it is he says. Remember, while you definitely can die from Hep C, it is not an absolute death sentence. Best of luck and I hope to see your husband on here soonView Thread
Sorry no one has responded to you. First things first, Hep C is a blood born disease only. For your boyfriend, he needs to stop drinking. Not that the drinking will make the hep C worse, but it will hurt the liver and the liver is what is damaged by the Hep C virus. Do you know what his genotype is? If he really wants to try and fight and can't stop drinking on his own, maybe AA. As far as you are concern, absolutely get tested. If for nothing else, a piece of mind. If your doctor won't test you, there are home testing kits that you can purchase on line. I personally have tested hundreds using these and they are quite accurate. If you are negative, you just need to be conscience about your boyfriends blood. Don't use his tooth brush, if he cuts himself protect yourself from his blood. If you are positive, (ask the doctor what your genotype is) then you need to find a knowledgeable gastroenterologist or heptologist who deals with Hep C patients. A less harsher treatment is on the horizon and I think will be ready in 2015. I got Hep C from a life saving blood transfusion. I have been through 2 rounds of treatment and have 1 week left of my third go aroundView Thread
I know what you are going through. The rash is a result of the Incivek. It does go away once you stop the incivek (12 weeks). The only thing that helped was keeping the rash covered with whatever ointment works for you. You might also discover pain the anal area - again it will cease once you stop the incivek - use hemoroid wipes. I am pretty sure your blood counts are very low which will explain the dizziness and tiredness. Patience is absolutely a rariety while on treatment. if your mother doesn't understand than you probably need to limit your communication with her until you are finished treatment. Also, your dr. should have put you on an anti'd before you started. Insist that he give you something -- it is almost impossible to go through treatment without it. Depression and lack of patience is a side effect and not a sign of weakness. You need to make sure the doctor/his staff is available to you any time while on treatment. If not, you may want to think about finding a dr who is very familiar with Hep C treatment and is there for you whenever you need him. Good Luck and believe me it gets a little easier. I have been on treatment since Jan. 2013 and have about 8 weeks left. This is my 3rd time with treatment and this has definitely been the hardest round.View Thread
First, genotype 3A is one of the genotypes that responds very well to treatment and, I believe, has a shorter treatment period. Regarding the low platelets, blood transfusion can help. I am on treatment and take a weekly shot of procrit to try and keep my red cells and platelets up and I am always in the critically low range. Since it has been scientifically proven that while on treatment no further damage to the liver occurs. I use to tell my support groups, it is sort of like putting a glass bubble around the liver which prevents the virus from attacking it during treatment. Cirrhosis does not go away. It may or may not get worse. Your husband can die from cirrhosis tomorrow or in a car crash, you just don't know. Some people have cirrhosis for 50 years and never even know it. When I was diagnosed in 1997 I had a doctor tell me that I would be dead in 6 months. I truly thought about suicide until I found a doctor who treated Hep C patients and was so informative and basically saved my life. I am genotype 1a and each of my treatments lasted for a full year. They are hard but I truly believe I am still here because I gave my liver "breaks" from being attacked. I am also a non-sustained responder. Based on my experience, I highly recommend that you find a doctor who treats and works with Hep C patients. If you can't find one, look up a local support group and have the recommend a doctor to you. Best of luck and keep us postedView Thread
You need to remember that Hep C is strictly a blood born virus. However, I recommend everyone get tested. It is a simple blood test. Ask your doctor next time to do the test. If the doctor refuses, you can buy some very reliable home testing kits on line and considering the cost of treatment is about $15,000 - $20,000 per month without insurance, the cost of the test is well worth it! Good luck, enjoy college and just be aware of blood - yours and others!View Thread
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