I was diagnosed with both of these conditions 1 1/2 years ago....my health has not improved but has slowly declined. I have a supportive family. It was suggested to me to reach out to people who understand and know what my body goes through and the side effects. I am new to any kind of forum and am just looking for some kind of knowing conversation and sharing.
Hi victoria417 , I am quite new to this forum as well. I was diagnosed with AIH of the liver and have PCB 3rd stage Liver failure, I was on both the meds you are currently on. I don;t have much info for you. But the fact your numbers are coming down is good! Mine haven't come down in 2 years. My doc had me on 50mg of prednizone awhile back.....be sure that it's a temporary med, it's not meant for long term use and has bad side effects if taken too long.
I think the worst side effect I have from this disease is pain in my liver, and extreme fatigue. It feels like someone is beating me up from the inside. I have 2 children and some days are better than others but I think our life is pretty normal.... My advice is do what you can, take it day to day and don't beat yourself up when you can't accomplish all you want.
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