Welcome to our board! We usually end up telling everyone this, so I thought it would be nice to put it in a "tip", so it would help you in your first post.
Please do not be shy. We have heard it all! Tell us everything you can, in as much detail as you can. Include any and all tests you have had and types of doctors you have seen.
Keep in mind that IBS is an "elimination diagnosis", so we cannot tell you if you have IBS, but we can offer a lot of advice and opinions on what we think it could be, tests we think you should request, things you might try on your own, etc.
We are glad to have you, and we hope we are able to help you!View Thread
Wow, I realize you are upset about your mom, but I don't think anyone here has ever become angry with us for trying to help. Most of the time, people who come here have been "diagnosed" with IBS, and they do not know or realize the doctors have just handed them that diagnosis without doing testing. You would be amazed.
Most of us here have fought the battle for years and years, so we do understand quite a bit. Some of us have found diagnoses that explain the "ibs", that have nothing to do with the GI diagnosis except symptoms. For example, after years of dealing with GI problems, I have Addison's disease, which is endocrine. Once treatment was started, the majority of my GI symptoms went away.
I'm terribly sorry if our attempts to help you were not up to your standards. We are in the business of helping people, not reading minds.
I wish you and your mother the best. I truly hope she finds some relief. And I hope you find someone who can help you in the manner in which you prefer to be helped.View Thread
So she has had colonoscopies and endoscopies, CT scans, been given anti-spasmodics, had her feces tested for parasitic infections, bacterial infections, etc? She has seen a GI doctor who specializes in elderly care? Has she seen multiple GI doctors to get another opinion?View Thread
Please read the article "Especially for the Newbies" in the tips section so you can provide us with the details we need to try and help you, such as what tests you have had and if you have seen a GI doctor. Also tell us what other types of doctors you have seen.
Has she seen a GI doctor? If so, what tests have they done? Please see the tips section & glance over our article, "Especially for the Newbies". That way you can give us the information we need to help you.View Thread
Last September, in the hospital, I had a flexible sigmoidoscopy. I had already had two, with no sedation at all. They weren't bad. But this time I had to have some sedation, because after ten days of severe diarrhea, it was excrutiating.
I will not be volunteering for a full colonoscopy without sedation in this lifetime!View Thread
The small one is this: My new GP is super awesome. And I mean super. The man knows more about Addison's than a lot of endocrinologists, more about meds than most pharmacists, etc. His bedside manner is a little gruff, but he's actuallly a great big teddy bear. He gets mad at other doctors for doing stupid stuff, he's not afraid to say it, and he cracks me up. But he's always been kind of reserved about GI #3. He even commented one day, when he asked me to tell his current resident my story, "and don't talk bad about any doctors." He was nice about it, but it was a little out of character. I was talking one of the office girls last time I was in there, and I found out that he refers a lot of his patients to GI doc #3. That explains why he really held back about him when he went off about so many of the other doctors I've had. But when I told the girl I still could never go back & see him, she said, "Girl, neither could I. In fact, after hearing your story, I couldn't go see him myself! That's just wrong!"
Anyway, now for the fun one. Their practice has gone bonkers or something. They changed their name and started doing commercials, and the first commercial is this "Oh we care about you as a person, come get screened for colon cancer, let us take care of you" thing that makes me want to gag anyway, and who is the MAIN doctor who smiles and is the LAST FACE YOU SEE???? GI doc #3!!! I cannot tell you the number of times I have cursed at the screen, flipped the guy off, or otherwise done something less than lady-like. I'm not sure when I'm going to be able to watch this piece of crap ad without doing something immature. Or if they will quit running the commercial first?
Is this God's way of punishing me for something?View Thread
Okay, so I'm feeling better each day. I've started getting out of the house again, and I am sleeping (I was going DAYS without!). The new medication is working quite nicely. I was sleeping all day and up all night, but I am even getting myself on a more decent schedule...gradually.
I had gained 10 pounds in water-weight, inexplicably, and they finally had to put me on water pills every day. I am now on water pills every other day, which is fun, because now that I'm using a pill box, I don't pay attention, and I forget which day is "water pill day" until I start running to pee every 2 minutes! I am waiting on my appointment with my ob/gyn to have an ultrasound - in 2 weeks - to see if they can find something that is causing this. (They've tested everything via bloodwork and urine several times.) I still have a little swelling, and if I miss a water pill, which I did this week, I will start to swell back up. They do drop my bp some, but not more than I can live with.
The increase in the Cymbalta is kicking back in. I feel a little more like myself, and I am giving myself "tasks" now to re-engage. I was practically in hiding, playing mindless games on my computer all the time, and I didn't feel like part of my family, much less society. I got super depressed. But the past week has seen a remarkable improvement on that front.
I still have some tremors, but that has improved, too. I can't cook (not that I want to or ever do, but still), I can't use a knife, but I can play my piano and write somewhat legibly again.
We are getting there, one day at a time.
Hopefully I can be on here a little more now. I just felt so stupid and disconnected there for a while.
Oh, I just cannot fall asleep. Ambien, Lunesta, Restoril (which is potent)...it doesn't matter. I'm up all night and all day. At this point I don't care if I DO get addicted. They finally tried 5mg xanex twice per day (to replace the valium) for my tremors, then told me to add up to 10mg of valium at bedtime WITH the xanex to sleep. Hasn't worked.
I have a pretty bad edema problem - I saw the doc Wednesday, but it's gotten so much worse. I have left a message for his triage nurse, and she has about half an hour to call me back before I call up there again. Several people told me this weekend I belonged back in the hospital. I can barely walk, and now I'm in pain with it. I HATE pain. I have enough to deal with!
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