Sheba - I can't do the vit C. I am very sensitive to citric acid, so I break out in ulcers in my mouth (and last hospital trip down my throat - ouch!) if I try that. So blah. I do know DH does it, and it seems to help him. I'm jealous!
Mags - I gave up and called the shrink's office today, and I'm glad I did. Boy, I really do LOVE this office! He's out of town, and she STILL got back to me in an hour. She told me he was out until the end of the week, and I thought holy crap, but before I could say anything, she said she had just spoken with him 30 minutes before, and if she didn't talk to him before the end of the day, she would definitely talk to him in the morning.
He said for me to go ahead and quit taking that sleeping pill (which he had cut in half). I think they are intefering with each other or something. I had already cut another pill dose in half and the wellbutrin from 3 to 1, and still no better. Anyway, she was pretty impressed when I told her how much I was sleeping. 15 hours a day, and want to sleep when I'm awake. I hope this helps, especially by the weekend. I'm tired of feeling sleepy and stoned. But as down as I've gotten about it (am I regressing?) Trey said he could definitely tell a difference. This is not illness, this is not depression, this is just drugged! And I see his point. So I'm forcing myself to do my PT once per day - not pushing to twice the way I feel. And this is just 30mg/day! (And I"ve been on other anti-d's over the years, so this ain't my first rodeo!)
That sleeping pill wasn't doing me any good, but it is so addictive, the doc said I still had to wean. So of course I wasn't going to quit taking it without his say so. They still haven't gotten my PT order in, but I see the endo Monday, and I plan to express my EXTREME displeasure. I will be almost 3 weeks out instead of the max 1 week the in-home lady told me.
I would be enjoying the trip if I didn't feel so guilty that DH is having to do everything! But frankly, they almost even out. LOLView Thread
Stoned on Cymbalta (although it seems to be getting better until today - not sure what that's about), can't get the doc to call in the in-facility PT, waiting another week for the next follow-up with the endo. I do feel for you on the heartrate. That's my normal resting rate...they got it down temporarily in the hospital, but two weeks later it was back up to 104. I've dealt with it for six years. It really makes you feel like CRAP. Like you've been running a marathon. But my bp is the opposite - a constant effort to keep it HIGH enough!
Today was a crappy day. But DH has been very supportive. He told me not to let it get me down; everyone is entitled to a bad day. It doesn't mean I'm regressing, which is my mega-fear.
And oh yeah, the pollen. I don't usually have big allergy problems, and I'm on steroids, and even I am having some issues if I step outside! I feel SO sorry for people with real allergy issues.
Probably wished you hadn't asked, huh? Maybe I should have waited until tomorrow to answer! View Thread
Honestly, you just never know. Some people have sensitivites to the weirdest things...I mean, the first time I heard of Celiac, I screwed up my face and thought, "What?? Gluten? What's that?"
Mags has a major issue with corn. I think there are probably a lot of people out there with isssues they don't even know about, sensitivites...and the docs aren't going to catch it. We have to be SO proactive about our health.
The great news is it looks like you found the answer!! Congrats!View Thread
I still see a GI doctor, even though my "IBS" is actually due to Addison's. Have you seen a GI doc? If not, get a referral from your Lyme doctor. Usually the doctor treating you for your main problem has the best referrals for other doctors.
I was treated for "IBS" for over 5 years before I was diagnosed, so I saw I GI doctor for a long time. Since my diagnosis, I was able to stop taking some of the meds and lower some of the others, but I still have problems sometimes, so I have someone to deal with them.
Did you have an endoscopy as well? I don't understand why docs will do one without the other - many times these problems can be diagnosed in the stomach area - also they can take biopsies for celiac disease. Another option is a capsule endoscopy, which allows them to see all the intestines, as well as the rest of the digestive tract.
I would look closely at the food journal idea. Sometimes people have sensitivites to foods that can go undetected via tests.View Thread
Will they prescribe you anything for the symptoms? I know with my little pharmacy over here, I actually have a couple of meds I take to combat the side effects of others...because I have to take the ones I have to take.
I agree with the long tub soak.
You can fight the demon since you know his name!! Just remember that every time you want to give up - you KNOW your enemy now! So kick his you-know-what!View Thread
evl - have you been tried on other meds? I assume you are on donnatol for stomach cramps? I have taken it during bad flares, but there are other meds that don't make you sleepy that work as anti-spasmodics as well. Pamine, Bentyl, I know there are others.View Thread
Were you diagnosed by a GI doctor? What tests were run? IBS is an elimination diagnosis, but a lot of doctors just throw out the diagnosis and some pills and hope it goes away. Generally you need a full round of tests to rule out any other problems before they can say IBS.
Then it depends on your symptoms. There are a lot of different meds, depending if you have constipation, diarrhea, back and forth, etc.
Also, you can try keeping a food journal along with when you get your symptoms and what they are. Many people have found food allergies/intolerances that way.
I would suggest getting an appointment with a GI doc, if you haven't seen one yet, and keeping a food journal between now and then.View Thread