IC (Interstitial cystitis) flaring -- UGH! Have a bladder study scheduled for 6/14, so urologist doesn't want to change or give me any meds that could effect that test, which is understandable, but that also means no relief to this pain. Just gotta make it through this flare and hope no more between now and testing!
I have changed my diet and have been on Elmiron for almost a month, but haven't noticed any changes from day to day.View Thread
I am a 35 year old mom of 2, bonus mom of 3 more! My husband and I have been married for 5 years and have been best friends for over 20!
I am also a member of the MS, Migraine and Fibro communities on WebMD, as I have not been given a firm diagnosis. Right now my PCP (Primary Care Physician) and I are taking each symptom individually until we are able to get a diagnosis locked down.
Next week, I meet with a urologist. I am a little nervous, mostly embarrassed. I have kept this symptom pretty much a secret for about 10 years, but despite religiously doing Kegels, losing weight and fluid monitoring, each day it seems worse and worse. In the last year I have also started to get UTI and bladder infections about every 6 weeks.
Anyone else suffered in silence? Anyone have any idea of what kind of treatment options are out there that I may be looking at?
The urologist questionaire asked about basic medical background of course, but I only listed what was specifically asked, as per my discussion with my PCP (we are trying to address my individual symptoms as individual since the neuros are split on an MS diagnosis)...so, some of the questions were do you have asthma--YES....do you have allergies--YES....do you have skin disorders---YES, if yes, please list--my list: Eczema and photosensitivity/sun allergy. So, after the positive PST test and postitve MMK results for stress incontinence he asked about the YES responses. He also asked if I suffered from migraines, which was another yes. Then he asked about Lupus/MS. He asked if I had any testing done for those, which I have and if they were done at the local hospital. I told him they were and let him know he could have access, so I signed for that. He said it would be a few days for him to get the info and review it, but we talked about what the doctors had told me and he said with the urology issues and brain lesions, plus other physical issues, he suggested I get a 3rd neuro opinion.
So, off to Denver or Omaha or Cheyenne I will go once I have the funds to do so.
The appointment went very well. My doctor and his staff were so nice and made me feel very at ease and comfortable---even when I peed on them during the MMK test!
So, here is what I know after the appointment: I definately have stress incontinence, but it looks like I may be a candidate for the botox procedure instead of a sling or more invasive surgery! Also I was diagnosed with Interstitial Cystitis following a VERY positive PST test. OUCHIE!!! I have an appointment for a more intensive incontinence test along with kidney xrays and ultrasound to check that there is no kidney damage or other issues going on. I started on daily, low dose antibiotics along with Elmiron (pricey!).
One thing he also asked was if I had ever been diagnosed with MS or Lupus! I said funny you mention that since I have split opinions on those subjects by neurologists and primary care phyisicans.
I too am a pee-cryer. My sister still laughs when she asks if I still do this. I am a 34 year old woman who has experienced this my entire life. No pain, just tears---maybe it is a sign of a happy bladder
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