Karen's Unspecified Non Hodgkin's Lymphoma: Support Group

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Reply: What do i expect?

I'M 38 AND HAVE HAD A SWOLLEN GLAND IN THE LEFT SIDE OF MY GROIN FOR 6 MONTHS AND THE DR'S SAY ITS A...

Posted by mommatweety

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I was just diagnosed with Lymphoma based off a CT scan? The Va doctors don't even have the Pet scan results and my biopsy is scheduled for Monday. Is a CT scan with a physical exam and blood tests enough to diagnose me correctly?

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NHL - beginning chemo tomorrow

My wife has been diagnosed with NHL, large cell, B cell. It has been found in her lymph system and bones....

Posted by Ginger1124

0 Replies | Reply | Watch This Discussion Report This | Share this:NHL - beginning chemo tomorrow My wife has been diagnosed with NHL, large cell, B cell. It has been found in her lymph system and bones....

Sounds like NHL, but not sure - looking for sugges...

I'm new here, and hoping to get some suggestions that will help me get aa diagnosis. For the past two...

Posted by IsolatedThunder

I'm new here, and hoping to get some suggestions that will help me get aa diagnosis. For the past two years I've been tested for everything under the sun, and the docs keep coming across "incidental diagnoses," but then tell me that the things they find (hereditary hemochromatosis, non-toxic multinodular goiter) are not what's causing my symptoms. I just had a biopsy this week on my thyroid nodules, which I really believed was the problem because of my symptoms: I've had increasing difficulty swallowing for the past year and a half or so, difficulty getting a deep breath (feels like I have to work at it), the feeling that someone is standing on my sternum, pain that is sometimes just in my chest, but most often all around the rib cage, (feels like my ribs are squeezing me very tightly), and the past couple of months my neck has started occasionally swelling, usually on the right side but sometimes on the left too, and from time to time the feeling that I'm being choked by someone. My primary dr. said he could see that the sternomastoid muscles in my neck were swollen just by looking at me. Now the skin on the neck occasionally turns red when this happens, and feels hot. The most frequent thing in the neck though is that there are no visibly swollen nodes, but my neck feels full, feels like the right side is bigger than the left, it hurts and the skin feels hot. I also get weird, random pains in my head, behind the ears mostly, but occasionally just in the back of the head, or, lately, in the right ear too (though not like an earache). My right collarbone has been hurting too, above and below it. Sometimes the pain seems to radiate from the right ear, down the neck, and around the whole area.

My father had Non-Hodgkin's lymphoma, and more than likely had the hemochromatosis, but there is no way to verify that, since he died before I was diagnosed, and we had never even heard of it. I seem to be following in his footsteps when it comes to having miscellaneous health problems all the time.

They said my biopsy was benign. The results say there were "mixed follicular and hurthle cells" and colloid and something else, and that that is consistent with non-toxic multi-nodular goiter. If that's not what's causing the pain, swelling, choking, difficulty breathing and swallowing, etc, then I don't know what could be...unless it is lymphoma. But I don't know as much about lymphomas as I do about my symptoms, and have questions.

Is it possible to have lymphoma and not have visible or palpable nodes? (There is only one on my right that I can feel, about the size of a pea or almond, but the docs don't seem to notice it). I had a staph infection in 2001, and for years now I feel that particular node off and on; the more tired I am (and I'm exhausted all the time), the more I feel it. Are there things here that aren't consistent w/diagnosis of NHL?

Another couple things are that I've had horrible bone pain lately in my pelvic bone (tailbone level, roughly), and for four or five years have had that pain in my left iliac crest on the pelvic bone. Also, recently I've noticed that after having a glass or two of wine, my neck and ears are hot and a little red.

If anyone has anything at all, any suggestions or anything, I'd be so grateful. I don't even care what the diagnosis is at this point - I just want one so I can figure out what it is and how to deal with it. The thoguht of going on like this indefinitely never knowing what it is has just gotten to be too much.

Sorry this was so long. I'm just feeling desperate anymore.

Thanks everyone.View Thread

Posted by IsolatedThunder

0 Replies | Reply | Watch This Discussion Report This | Share this:Sounds like NHL, but not sure - looking for suggestions. I'm new here, and hoping to get some suggestions that will help me get aa diagnosis. For the past two...

Roller Coaster Ride

My Mom had B-Cell Lymphoma in nodes in her neck in 2004-2005. She was cancer free until diagnosed...

Posted by DaughterOfCancer

0 Replies | Reply | Watch This Discussion Report This | Share this:Roller Coaster Ride My Mom had B-Cell Lymphoma in nodes in her neck in 2004-2005. She was cancer free until diagnosed...

New to this Community and have had NHL twice

I've had NHL twice the first time my doctors said I wouldn't make it because the tumor encompassed my...

Posted by baseballgirl_22

0 Replies | Reply | Watch This Discussion Report This | Share this:New to this Community and have had NHL twice I've had NHL twice the first time my doctors said I wouldn't make it because the tumor encompassed my...

Questions and Concerns

Hello. My name is Melissa. I just found out that my mom has been diagnosed with non hodgkins lymphomas....

Posted by EllasMomma1123

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Questions and Concerns

Hello. My name is Melissa. I just found out that my mom has been diagnosed with non hodgkins lymphomas....

Posted by EllasMomma1123

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Swollen Lymph Node(s)

Went to the GP last week because I found a knot in my neck. I thought he would put me on antibiotics or watch it...

Posted by mitsyp

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Reply: SCARED with NHL -Anaplastic Large Cell, ALK(+), St...

My husband was diagnosed in 1999, he had the lymphnode under his chin cut out and told he had a 65% chance...

Posted by Tammyleigh9

2 Replies | Reply | Watch This Discussion Report This | Share this:SCARED with NHL -Anaplastic Large Cell, ALK(+), Stage IIIa??????? My husband was diagnosed in 1999, he had the lymphnode under his chin cut out and told he had a 65% chance...

Reply: Lump in neck

thanks for ur input! it definitly eased my mind and since posting originally the lump went down for the most...

Posted by prj5022

2 Replies | Reply | Watch This Discussion Report This | Share this:Lump in neck thanks for ur input! it definitly eased my mind and since posting originally the lump went down for the most...

Reply: Lymphoma or not.................

Pretty much having the same symptoms as you - have you had any diagnosis yet? After going to some stupid...

Posted by Quincy44

1 Reply | Reply | Watch This Discussion Report This | Share this:Lymphoma or not................. Pretty much having the same symptoms as you - have you had any diagnosis yet? After going to some stupid...

What will happen to my dad?? PleasE help me unders...

Hi I am 17 and I am a daddys girl. I have been my entire life and now it's starting to fall apart. Cancer...

Posted by CailaLayne13

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Reply: CT Results are in - biopsy is needed

I have non-hogkins lymphoma and thats how they found mine, my ldh n crp levels were high. The waiting game is...

Posted by mike5276

2 Replies | Reply | Watch This Discussion Report This | Share this:CT Results are in - biopsy is needed I have non-hogkins lymphoma and thats how they found mine, my ldh n crp levels were high. The waiting game is...

stem cell transplants

Does anyone here know of anyone who has had a stem dell transplant for non-hogkins canser, ?

Posted by mike5276

0 Replies | Reply | Watch This Discussion Report This | Share this:stem cell transplants Does anyone here know of anyone who has had a stem dell transplant for non-hogkins canser, ?

Reply: lymphoma or not? somebody give me an answer!

I recommend you ask for copies of your blood work and then go online and study the results. Also go to a...

Posted by Evirosen

5 Replies | Reply | Watch This Discussion Report This | Share this:lymphoma or not? somebody give me an answer! I recommend you ask for copies of your blood work and then go online and study the results. Also go to a...

Waiting is agony...

I am a 40yr old female who has had symptoms of swollen glands, night sweats, low grade, fatigue and constantly...

Posted by Quincy44

0 Replies | Reply | Watch This Discussion Report This | Share this:Waiting is agony... I am a 40yr old female who has had symptoms of swollen glands, night sweats, low grade, fatigue and constantly...

Are these signs I might have lymphoma? Really Wor...

Hey, I am 20, female and have had a swollen lymph node in the left side of my neck for 6 months now that I...

Posted by Lillyray42

Hey,
I am 20, female and have had a swollen lymph node in the left side of my neck for 6 months now that I found in December 2010. It can only be felt not seen. I finally went to my Dr. in April 2011 to have him check the node and he gave me a weeks worth of antibiotics, scheduled me for a chest X-ray and gave me a blood test which both came back normal. I went back two weeks later after I took my antibiotics and he told me the node shrunk, and he said that its a good thing and really might have been an infection. He then told me that we are going to watch that node and observe it for a month. So in june I went back to him and he told me that the lump is still there, however the node has gotten slightly bigger. So he then referred me to an ENT doctor who checked out the lymph node in my neck and he described the lymph node as firm, moveable, and a little tender. Sometimes the node hurts a little when I move it around and put too much pressure on it, or touch it at a certain angle. But most of the time its painless.

To make matter worse since my doctors appointment I found another lymph node on the left side of my collarbone and just recently found a lump behind my left ear near my hairline. All three of which can be felt, but not seen. The one in my collarbone is also moveable and causes pain in my collarbone area if I press on it too much and move it around too much, but I don't know about the texture. The lump behind my ear feels boney and is painless, but my ear does hurt a little, but no pus leakage. My doctors don't know yet about the two new ones I found, and my ENT is going to be doing a biopsy where he will be cutting the whole node out of my neck for a pathology test. What's going on at this point? I'm very worried and have been gaining alot of weight from the stress. I haven't been having any symptoms of lymphoma like night sweats, fever, fatigue, persistent cough, no chills, no weight loss (I have instead gained alot of weight from worrying so much), no flu like symptoms. In fact, I feel fine just allergies bugging me. My lymph nodes in the neck and collarbone feel about the size of half a dime and the lump behind me ear feels about dime size or half a nickel (not to sure). The lump behind my ear I think is very recent as I don't recall feeling it last month. The node in my collarbone may have been there since April 2011 now that I really think about it, but not sure.

I don't know if this helps, but I am also asthmatic and have ALOT of allergies mainly environmental. Any ideas what's going on? I tried to provide as much info as possible so I can get to the bottom of this.View Thread

Posted by Lillyray42

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Reply: Does it sound like Lymphoma?

I very much aggree that God may give doctors some answers, however, he is the main man in charge... I pray and...

Posted by laurn092

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Swollen, long, tender inguinal lymph node

I just woke up and realized a tender, painful only if touched lymph node in my right groin (inguinal) its...

Posted by An_206750

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Cancer Survival Rate Question

A friend of mine has recently been told that he has cancer. Specifically, they think it is lymphoma. More...

Posted by WonderingJ

0 Replies | Reply | Watch This Discussion Report This | Share this:Cancer Survival Rate Question A friend of mine has recently been told that he has cancer. Specifically, they think it is lymphoma. More...

Reply: non-hodgkins lymphoma????

I was diagnosed 2 years ago. I had a cat scan first which showed a growth on my liver. My GP sent me to a...

Posted by CyndiNHL

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paranoid?

About a year ago, my husband was diagnosed with Non-Hodgkins follicular lymphoma. Other than a small lump...

Posted by bradybenlucy

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What do you think my symptoms mean?

0 Replies | Reply | Watch This Discussion Report This | Share this:paranoid? About a year ago, my husband was diagnosed with Non-Hodgkins follicular lymphoma. Other than a small lump...

Wig or not to Wig

I chose not to buy a wig, it was my call. My husband/family didn't mind my going hairless/bald and I was very...

Posted by bsmom1970

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Support Group in area

0 Replies | Reply | Watch This Discussion Report This | Share this:Wig or not to Wig I chose not to buy a wig, it was my call. My husband/family didn't mind my going hairless/bald and I was very...

Reply: In Remission

Dianne, I received my dx of NHL in March of this year. It is a steep learning curve but YOU CAN DO IT....

Posted by sharpeimom4

2 Replies | Reply | Watch This Discussion Report This | Share this:In Remission Dianne, I received my dx of NHL in March of this year. It is a steep learning curve but YOU CAN DO IT....

Reply: Wigs

Hi Janie - I'm with you! Wigs were never something I seriously considered. Scarves, bandanas & hats...

Posted by sharpeimom4

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Reply: To wig or not to wig?

It is your preference & I also chose from the very beginning not to wig. I'm relying on scarves,...

Posted by sharpeimom4

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Reply: Pre-existing Lymphoma and now confusion

Hey Karen, so I want you to shoot me straight. We were just told that he has three tumors in his brain and...

Posted by tinyspot

2 Replies | Reply | Watch This Discussion Report This | Share this:Pre-existing Lymphoma and now confusion Hey Karen, so I want you to shoot me straight. We were just told that he has three tumors in his brain and...

Understanding lymphoma

http://www.lymphoma.org

It hits a person out of no-where - the initial diagnosis. Cancer. Your mind goes blank. Heart beats...

Posted by karenrugs

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Understanding lymphoma

http://webmd.com

Of course, WebMD, is a must go to read place for me. Info can be found in their Cancer Center. Karen

Posted by karenrugs

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9 of 19 found this Resource helpful

0 Replies | ReplyReport This| Share this:Understanding lymphoma Of course, WebMD, is a must go to read place for me. Info can be found in their Cancer Center. Karen