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Karen's Unspecified Non Hodgkin's Lymphoma

My exchange if for anyone interested in viewing my 2nd journey through ... more

What's Happening Now

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BIOPSY

What can I expect if I were to have a biopsy in my chest area. nervous as hell here Fred

Posted by An_249913

0 Replies | Reply | Watch This Discussion Report This | Share this:BIOPSY What can I expect if I were to have a biopsy in my chest area. nervous as hell here Fred

Reply: lymphoma or not? somebody give me an answer!

I may have possible lymphoma in my chest area. What can I expect as far as the biopsy procedure etc etc....

Posted by An_249913

6 Replies | Reply | Watch This Discussion Report This | Share this:lymphoma or not? somebody give me an answer! I may have possible lymphoma in my chest area. What can I expect as far as the biopsy procedure etc etc....

Help! What's wrong with me?

I am 33 yo female and started having severe joint pain early this week. Saw my primary care doctor because I...

Posted by Tlarsen79

0 Replies | Reply | Watch This Discussion Report This | Share this:Help! What's wrong with me? I am 33 yo female and started having severe joint pain early this week. Saw my primary care doctor because I...

Reply: Father just diagnosed with NHL

First thing you need to consider is your concern for his health. Sounds like your very concerned. His age, his...

Posted by reubenm

1 Reply | Reply | Watch This Discussion Report This | Share this:Father just diagnosed with NHL First thing you need to consider is your concern for his health. Sounds like your very concerned. His age, his...

New to This

Hi... so my mom and I are very new to this whole CANCER thing... its about my mom she had thyroid cancer...

Posted by HeatherShell

0 Replies | Reply | Watch This Discussion Report This | Share this:New to This Hi... so my mom and I are very new to this whole CANCER thing... its about my mom she had thyroid cancer...

lympnoma or not

am 68 yrs old i have had lymphnodes removed from both underarms aand i have continuing itching all over my...

Posted by An_247413

0 Replies | Reply | Watch This Discussion Report This | Share this:lympnoma or not am 68 yrs old i have had lymphnodes removed from both underarms aand i have continuing itching all over my...

lympnoma or not

am 68 yrs old i have had lymphnodes removed from both underarms aand i have continuing itching all over my...

Posted by An_247413

0 Replies | Reply | Watch This Discussion Report This | Share this:lympnoma or not am 68 yrs old i have had lymphnodes removed from both underarms aand i have continuing itching all over my...

lympnoma or not

am 68 yrs old i have had lymphnodes removed from both underarms aand i have continuing itching all over my...

Posted by An_247413

0 Replies | Reply | Watch This Discussion Report This | Share this:lympnoma or not am 68 yrs old i have had lymphnodes removed from both underarms aand i have continuing itching all over my...

lympnoma or not

am 68 yrs old i have had lymphnodes removed from both underarms aand i have continuing itching all over my...

Posted by An_247413

0 Replies | Reply | Watch This Discussion Report This | Share this:lympnoma or not am 68 yrs old i have had lymphnodes removed from both underarms aand i have continuing itching all over my...

I just noticed a swollen lymph node on right sid...

It maybe be nothing, but it does causes to ee troubling to me. I do have thyroid problems, been taking pills...

Posted by Cindigal

0 Replies | Reply | Watch This Discussion Report This | Share this:I just noticed a swollen lymph node on right side of neck It maybe be nothing, but it does causes to ee troubling to me. I do have thyroid problems, been taking pills...

Reply: Just found out now going for 2nd opinion...

Please let me know how this is going for the both of you. Are you getting any emotional support from other...

Posted by Holdol19

1 Reply | Reply | Watch This Discussion Report This | Share this:Just found out now going for 2nd opinion... Please let me know how this is going for the both of you. Are you getting any emotional support from other...

I am desperate, I have no where else to ask for he...

I have been battling with my health since TMJ came to my life in 2009. I was diagnosed with it in late 2010. But...

Posted by goolar

I have been battling with my health since TMJ came to my life in 2009. I was diagnosed with it in late 2010. But since late '10 I have been in constant war with my pains, lymph nodes and dehydration

Started with chest/breast pain I have been to many, many doctors and specialist and nothing. Cardiologist, Neurologist, GI's, General doctors, ER's...the list goes on. I'm 24 years old, female and have become depressed lately.

I discovered my 1st lymph node in summer of 2010, my doctor at that time said it was a cyst (concluded that because of my severe acne) so I believed her. she sent me to do an mri of my neck.. normal.

months went by and it went away, then it came back out in april of 2011. ever since only on my neck, my new doctor (at that time in april) said it was a viral infection put me on valtrex, the nodes went away (so i thought) I had an upper GI, xray, ct scan done on my chest and nothing. I got very dehydrated that year multiple times as well as hospitalized. during that year my stomach began to hurt, so I was setn to do a colonoscopy and endoscopy...even an ultrasound. normal... hida scan; normal

til this day my stomach is in pain, my chest, my left underarm, my neck gets stiff when the lymph nodes come back, recently been in really bad headaches and neck aches. my back is worst.... my legs get itchy and are dry, i get random feelings of itchy skin all over. doctors say its just anxiety. they have leaned on that since my heart has been on a rate of 140+ (three cardiologist checked me and said that my heart is healthy) doctors say it isnt lymphoma.though some in emergency have concerns they keep sending me back home. blood works come back normal too

i guess to relieve my worries they said many tmj patients get fibromyalgia... i dont know what to do or believe. i have been to so many doctors and i am so desperate i came here. i even went to los angeles for help ended back here in nyc...crying isnt an option since that wont help.

i feel breathless, fatigued. the nodes on my neck are there, steady... i dont know what to do. my doctor left her clinic left me a referral to see a hematologist in june 11...I was supposed to be seen in april but I got pushed back, twice.

i left my job and dropped a few classes because the pains are unbearable, the medications don't work and no one is helping me.View Thread

Posted by goolar

0 Replies | Reply | Watch This Discussion Report This | Share this:I am desperate, I have no where else to ask for help. I have been battling with my health since TMJ came to my life in 2009. I was diagnosed with it in late 2010. But...

Reply: What do i expect?

I'M 38 AND HAVE HAD A SWOLLEN GLAND IN THE LEFT SIDE OF MY GROIN FOR 6 MONTHS AND THE DR'S SAY ITS A...

Posted by mommatweety

Take the Poll

I was just diagnosed with Lymphoma based off a CT scan? The Va doctors don't even have the Pet scan results and my biopsy is scheduled for Monday. Is a CT scan with a physical exam and blood tests enough to diagnose me correctly?

1 Reply | Reply | Watch This Discussion Report This | Share this:What do i expect? I'M 38 AND HAVE HAD A SWOLLEN GLAND IN THE LEFT SIDE OF MY GROIN FOR 6 MONTHS AND THE DR'S SAY ITS A...

NHL - beginning chemo tomorrow

My wife has been diagnosed with NHL, large cell, B cell. It has been found in her lymph system and bones....

Posted by Ginger1124

0 Replies | Reply | Watch This Discussion Report This | Share this:NHL - beginning chemo tomorrow My wife has been diagnosed with NHL, large cell, B cell. It has been found in her lymph system and bones....

Sounds like NHL, but not sure - looking for sugges...

I'm new here, and hoping to get some suggestions that will help me get aa diagnosis. For the past two...

Posted by IsolatedThunder

I'm new here, and hoping to get some suggestions that will help me get aa diagnosis. For the past two years I've been tested for everything under the sun, and the docs keep coming across "incidental diagnoses," but then tell me that the things they find (hereditary hemochromatosis, non-toxic multinodular goiter) are not what's causing my symptoms. I just had a biopsy this week on my thyroid nodules, which I really believed was the problem because of my symptoms: I've had increasing difficulty swallowing for the past year and a half or so, difficulty getting a deep breath (feels like I have to work at it), the feeling that someone is standing on my sternum, pain that is sometimes just in my chest, but most often all around the rib cage, (feels like my ribs are squeezing me very tightly), and the past couple of months my neck has started occasionally swelling, usually on the right side but sometimes on the left too, and from time to time the feeling that I'm being choked by someone. My primary dr. said he could see that the sternomastoid muscles in my neck were swollen just by looking at me. Now the skin on the neck occasionally turns red when this happens, and feels hot. The most frequent thing in the neck though is that there are no visibly swollen nodes, but my neck feels full, feels like the right side is bigger than the left, it hurts and the skin feels hot. I also get weird, random pains in my head, behind the ears mostly, but occasionally just in the back of the head, or, lately, in the right ear too (though not like an earache). My right collarbone has been hurting too, above and below it. Sometimes the pain seems to radiate from the right ear, down the neck, and around the whole area.

My father had Non-Hodgkin's lymphoma, and more than likely had the hemochromatosis, but there is no way to verify that, since he died before I was diagnosed, and we had never even heard of it. I seem to be following in his footsteps when it comes to having miscellaneous health problems all the time.

They said my biopsy was benign. The results say there were "mixed follicular and hurthle cells" and colloid and something else, and that that is consistent with non-toxic multi-nodular goiter. If that's not what's causing the pain, swelling, choking, difficulty breathing and swallowing, etc, then I don't know what could be...unless it is lymphoma. But I don't know as much about lymphomas as I do about my symptoms, and have questions.

Is it possible to have lymphoma and not have visible or palpable nodes? (There is only one on my right that I can feel, about the size of a pea or almond, but the docs don't seem to notice it). I had a staph infection in 2001, and for years now I feel that particular node off and on; the more tired I am (and I'm exhausted all the time), the more I feel it. Are there things here that aren't consistent w/diagnosis of NHL?

Another couple things are that I've had horrible bone pain lately in my pelvic bone (tailbone level, roughly), and for four or five years have had that pain in my left iliac crest on the pelvic bone. Also, recently I've noticed that after having a glass or two of wine, my neck and ears are hot and a little red.

If anyone has anything at all, any suggestions or anything, I'd be so grateful. I don't even care what the diagnosis is at this point - I just want one so I can figure out what it is and how to deal with it. The thoguht of going on like this indefinitely never knowing what it is has just gotten to be too much.

Sorry this was so long. I'm just feeling desperate anymore.

Thanks everyone.View Thread

Posted by IsolatedThunder

0 Replies | Reply | Watch This Discussion Report This | Share this:Sounds like NHL, but not sure - looking for suggestions. I'm new here, and hoping to get some suggestions that will help me get aa diagnosis. For the past two...

Roller Coaster Ride

My Mom had B-Cell Lymphoma in nodes in her neck in 2004-2005. She was cancer free until diagnosed...

Posted by DaughterOfCancer

0 Replies | Reply | Watch This Discussion Report This | Share this:Roller Coaster Ride My Mom had B-Cell Lymphoma in nodes in her neck in 2004-2005. She was cancer free until diagnosed...

New to this Community and have had NHL twice

I've had NHL twice the first time my doctors said I wouldn't make it because the tumor encompassed my...

Posted by baseballgirl_22

0 Replies | Reply | Watch This Discussion Report This | Share this:New to this Community and have had NHL twice I've had NHL twice the first time my doctors said I wouldn't make it because the tumor encompassed my...

Questions and Concerns

Hello. My name is Melissa. I just found out that my mom has been diagnosed with non hodgkins lymphomas....

Posted by EllasMomma1123

0 Replies | Reply | Watch This Discussion Report This | Share this:Questions and Concerns Hello. My name is Melissa. I just found out that my mom has been diagnosed with non hodgkins lymphomas....

Questions and Concerns

Hello. My name is Melissa. I just found out that my mom has been diagnosed with non hodgkins lymphomas....

Posted by EllasMomma1123

0 Replies | Reply | Watch This Discussion Report This | Share this:Questions and Concerns Hello. My name is Melissa. I just found out that my mom has been diagnosed with non hodgkins lymphomas....

Swollen Lymph Node(s)

Went to the GP last week because I found a knot in my neck. I thought he would put me on antibiotics or watch it...

Posted by mitsyp

0 Replies | Reply | Watch This Discussion Report This | Share this:Swollen Lymph Node(s) Went to the GP last week because I found a knot in my neck. I thought he would put me on antibiotics or watch it...

Reply: SCARED with NHL -Anaplastic Large Cell, ALK(+), St...

My husband was diagnosed in 1999, he had the lymphnode under his chin cut out and told he had a 65% chance...

Posted by Tammyleigh9

2 Replies | Reply | Watch This Discussion Report This | Share this:SCARED with NHL -Anaplastic Large Cell, ALK(+), Stage IIIa??????? My husband was diagnosed in 1999, he had the lymphnode under his chin cut out and told he had a 65% chance...

Reply: Lump in neck

thanks for ur input! it definitly eased my mind and since posting originally the lump went down for the most...

Posted by prj5022

2 Replies | Reply | Watch This Discussion Report This | Share this:Lump in neck thanks for ur input! it definitly eased my mind and since posting originally the lump went down for the most...

Reply: Lymphoma or not.................

Pretty much having the same symptoms as you - have you had any diagnosis yet? After going to some stupid...

Posted by Quincy44

1 Reply | Reply | Watch This Discussion Report This | Share this:Lymphoma or not................. Pretty much having the same symptoms as you - have you had any diagnosis yet? After going to some stupid...

What will happen to my dad?? PleasE help me unders...

Hi I am 17 and I am a daddys girl. I have been my entire life and now it's starting to fall apart. Cancer...

Posted by CailaLayne13

0 Replies | Reply | Watch This Discussion Report This | Share this:What will happen to my dad?? PleasE help me understand!! Hi I am 17 and I am a daddys girl. I have been my entire life and now it's starting to fall apart. Cancer...

Reply: CT Results are in - biopsy is needed

I have non-hogkins lymphoma and thats how they found mine, my ldh n crp levels were high. The waiting game is...

Posted by mike5276

2 Replies | Reply | Watch This Discussion Report This | Share this:CT Results are in - biopsy is needed I have non-hogkins lymphoma and thats how they found mine, my ldh n crp levels were high. The waiting game is...

stem cell transplants

Does anyone here know of anyone who has had a stem dell transplant for non-hogkins canser, ?

Posted by mike5276

0 Replies | Reply | Watch This Discussion Report This | Share this:stem cell transplants Does anyone here know of anyone who has had a stem dell transplant for non-hogkins canser, ?

Waiting is agony...

I am a 40yr old female who has had symptoms of swollen glands, night sweats, low grade, fatigue and constantly...

Posted by Quincy44

0 Replies | Reply | Watch This Discussion Report This | Share this:Waiting is agony... I am a 40yr old female who has had symptoms of swollen glands, night sweats, low grade, fatigue and constantly...

Are these signs I might have lymphoma? Really Wor...

Hey, I am 20, female and have had a swollen lymph node in the left side of my neck for 6 months now that I...

Posted by Lillyray42

Hey,
I am 20, female and have had a swollen lymph node in the left side of my neck for 6 months now that I found in December 2010. It can only be felt not seen. I finally went to my Dr. in April 2011 to have him check the node and he gave me a weeks worth of antibiotics, scheduled me for a chest X-ray and gave me a blood test which both came back normal. I went back two weeks later after I took my antibiotics and he told me the node shrunk, and he said that its a good thing and really might have been an infection. He then told me that we are going to watch that node and observe it for a month. So in june I went back to him and he told me that the lump is still there, however the node has gotten slightly bigger. So he then referred me to an ENT doctor who checked out the lymph node in my neck and he described the lymph node as firm, moveable, and a little tender. Sometimes the node hurts a little when I move it around and put too much pressure on it, or touch it at a certain angle. But most of the time its painless.

To make matter worse since my doctors appointment I found another lymph node on the left side of my collarbone and just recently found a lump behind my left ear near my hairline. All three of which can be felt, but not seen. The one in my collarbone is also moveable and causes pain in my collarbone area if I press on it too much and move it around too much, but I don't know about the texture. The lump behind my ear feels boney and is painless, but my ear does hurt a little, but no pus leakage. My doctors don't know yet about the two new ones I found, and my ENT is going to be doing a biopsy where he will be cutting the whole node out of my neck for a pathology test. What's going on at this point? I'm very worried and have been gaining alot of weight from the stress. I haven't been having any symptoms of lymphoma like night sweats, fever, fatigue, persistent cough, no chills, no weight loss (I have instead gained alot of weight from worrying so much), no flu like symptoms. In fact, I feel fine just allergies bugging me. My lymph nodes in the neck and collarbone feel about the size of half a dime and the lump behind me ear feels about dime size or half a nickel (not to sure). The lump behind my ear I think is very recent as I don't recall feeling it last month. The node in my collarbone may have been there since April 2011 now that I really think about it, but not sure.

I don't know if this helps, but I am also asthmatic and have ALOT of allergies mainly environmental. Any ideas what's going on? I tried to provide as much info as possible so I can get to the bottom of this.View Thread

Posted by Lillyray42

0 Replies | Reply | Watch This Discussion Report This | Share this:Are these signs I might have lymphoma? Really Worried! Hey, I am 20, female and have had a swollen lymph node in the left side of my neck for 6 months now that I...

Reply: Does it sound like Lymphoma?

I very much aggree that God may give doctors some answers, however, he is the main man in charge... I pray and...

Posted by laurn092

6 Replies | Reply | Watch This Discussion Report This | Share this:Does it sound like Lymphoma? I very much aggree that God may give doctors some answers, however, he is the main man in charge... I pray and...

Swollen, long, tender inguinal lymph node

I just woke up and realized a tender, painful only if touched lymph node in my right groin (inguinal) its...

Posted by An_206750

0 Replies | Reply | Watch This Discussion Report This | Share this:Swollen, long, tender inguinal lymph node I just woke up and realized a tender, painful only if touched lymph node in my right groin (inguinal) its...

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Karen's Unspecified Non Hodgkin's Lymphoma

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