Karen's Unspecified Non Hodgkin's Lymphoma
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I am getting a second opinion in July.
Thank you.View Thread
Started with chest/breast pain I have been to many, many doctors and specialist and nothing. Cardiologist, Neurologist, GI's, General doctors, ER's...the list goes on. I'm 24 years old, female and have become depressed lately.
I discovered my 1st lymph node in summer of 2010, my doctor at that time said it was a cyst (concluded that because of my severe acne) so I believed her. she sent me to do an mri of my neck.. normal.
months went by and it went away, then it came back out in april of 2011. ever since only on my neck, my new doctor (at that time in april) said it was a viral infection put me on valtrex, the nodes went away (so i thought) I had an upper GI, xray, ct scan done on my chest and nothing. I got very dehydrated that year multiple times as well as hospitalized. during that year my stomach began to hurt, so I was setn to do a colonoscopy and endoscopy...even an ultrasound. normal... hida scan; normal
til this day my stomach is in pain, my chest, my left underarm, my neck gets stiff when the lymph nodes come back, recently been in really bad headaches and neck aches. my back is worst.... my legs get itchy and are dry, i get random feelings of itchy skin all over. doctors say its just anxiety. they have leaned on that since my heart has been on a rate of 140+ (three cardiologist checked me and said that my heart is healthy) doctors say it isnt lymphoma.though some in emergency have concerns they keep sending me back home. blood works come back normal too
i guess to relieve my worries they said many tmj patients get fibromyalgia... i dont know what to do or believe. i have been to so many doctors and i am so desperate i came here. i even went to los angeles for help ended back here in nyc...crying isnt an option since that wont help.
i feel breathless, fatigued. the nodes on my neck are there, steady... i dont know what to do. my doctor left her clinic left me a referral to see a hematologist in june 11...I was supposed to be seen in april but I got pushed back, twice.
i left my job and dropped a few classes because the pains are unbearable, the medications don't work and no one is helping me.View Thread
My father had Non-Hodgkin's lymphoma, and more than likely had the hemochromatosis, but there is no way to verify that, since he died before I was diagnosed, and we had never even heard of it. I seem to be following in his footsteps when it comes to having miscellaneous health problems all the time.
They said my biopsy was benign. The results say there were "mixed follicular and hurthle cells" and colloid and something else, and that that is consistent with non-toxic multi-nodular goiter. If that's not what's causing the pain, swelling, choking, difficulty breathing and swallowing, etc, then I don't know what could be...unless it is lymphoma. But I don't know as much about lymphomas as I do about my symptoms, and have questions.
Is it possible to have lymphoma and not have visible or palpable nodes? (There is only one on my right that I can feel, about the size of a pea or almond, but the docs don't seem to notice it). I had a staph infection in 2001, and for years now I feel that particular node off and on; the more tired I am (and I'm exhausted all the time), the more I feel it. Are there things here that aren't consistent w/diagnosis of NHL?
Another couple things are that I've had horrible bone pain lately in my pelvic bone (tailbone level, roughly), and for four or five years have had that pain in my left iliac crest on the pelvic bone. Also, recently I've noticed that after having a glass or two of wine, my neck and ears are hot and a little red.
If anyone has anything at all, any suggestions or anything, I'd be so grateful. I don't even care what the diagnosis is at this point - I just want one so I can figure out what it is and how to deal with it. The thoguht of going on like this indefinitely never knowing what it is has just gotten to be too much.
Sorry this was so long. I'm just feeling desperate anymore.
Thanks everyone.View Thread
She was cancer free until diagnosed with the same cancer in her stomach on Nov. 22, 2011. This time the battle has been a fast roller coaster ride of hospital stays ranging from a week to 17 days,every other week. Each time she spends time in the ICU due to vomiting blood and having two procedures done to stop the bleeding.
At diagnosis she was told she had an 80% survival rate. In Dec. her doctor told her the tumor wasn't growing and he was happy with the way things were going. Two weeks later she was in ICU and we were told chemo wasn't working, the tumor was growing and there was nothing more that could be done.
We transported her home to the local hospital where she was placed on Hospice. We were told she would not survive the ride. Two days later she was awake, up and telling everyone she is going to beat this. She is tough and has too much to do.
Her cancer Dr was surprised to get the phone call from the local Dr saying she wanted to see him.
It has been two weeks since that ambulance ride. Mom is now home, kicked off of Hospice.
Her cancer Dr told her that if she gains weight he will send her to Mayo Clinic in Rochester, MN to have her entire stomach removed.
Does anyone have any experience with ... Lymphoma in Stomach? Stomach removal? Life after stomach removal? Mayo Clinic?View Thread
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If anyone needs to talk I'm here and would like to help in anyway that I can and I'd also like to be able to talk to someone if I can from time to time too.View Thread
I go for a ct scan June 30 to see what lymph node is best for biopsy, I only thought I had the neck and armpit swollen lymphs. Since then I have noticed my groin and along my collar bone I feel them (I am overweight so it can be tricky to find them) My dr says this is just to rule out lymphoma and he thinks its something viral. Its only 9 days away but seems like an eternity. I have patiently been waiting since June 13. My hubby says if they were really concerned they would have gotten me in sooner. I am not usually a worrier - and am a go by my gut feeling (which is usually right!) I do not have a very good feeling about this and think it will be positive for lymphoma. Sorry not looking for any answers here - just voicing my concern as I don't want to freak out hubby. any responses are appreciated.
Is this similar to what anyone else has gone through?
Waiting and trying not to worry!View Thread
My blood work did not show much other than my red count being low and my absolute nutrophills being low. I went last week to see my thyroid specalist and she did an ultra sound. It showed the same thing as the ct scan, small lymph nodes in my neck. She felt under my arms and found them there. She suggested a bioposy to be done. I am waiting on that in the next few weeks.
I was wondering if anyone else has any of the same syptoms?
lost weight, itchy skin (bendrly doesn't help), swollen glands, very tired and worn out feeling, i get sick to my stomach sometimes, and bloated.
Any help or directions would be greatly appreciated.
StrongEnough 2011View Thread
I am 20, female and have had a swollen lymph node in the left side of my neck for 6 months now that I found in December 2010. It can only be felt not seen. I finally went to my Dr. in April 2011 to have him check the node and he gave me a weeks worth of antibiotics, scheduled me for a chest X-ray and gave me a blood test which both came back normal. I went back two weeks later after I took my antibiotics and he told me the node shrunk, and he said that its a good thing and really might have been an infection. He then told me that we are going to watch that node and observe it for a month. So in june I went back to him and he told me that the lump is still there, however the node has gotten slightly bigger. So he then referred me to an ENT doctor who checked out the lymph node in my neck and he described the lymph node as firm, moveable, and a little tender. Sometimes the node hurts a little when I move it around and put too much pressure on it, or touch it at a certain angle. But most of the time its painless.
To make matter worse since my doctors appointment I found another lymph node on the left side of my collarbone and just recently found a lump behind my left ear near my hairline. All three of which can be felt, but not seen. The one in my collarbone is also moveable and causes pain in my collarbone area if I press on it too much and move it around too much, but I don't know about the texture. The lump behind my ear feels boney and is painless, but my ear does hurt a little, but no pus leakage. My doctors don't know yet about the two new ones I found, and my ENT is going to be doing a biopsy where he will be cutting the whole node out of my neck for a pathology test. What's going on at this point? I'm very worried and have been gaining alot of weight from the stress. I haven't been having any symptoms of lymphoma like night sweats, fever, fatigue, persistent cough, no chills, no weight loss (I have instead gained alot of weight from worrying so much), no flu like symptoms. In fact, I feel fine just allergies bugging me. My lymph nodes in the neck and collarbone feel about the size of half a dime and the lump behind me ear feels about dime size or half a nickel (not to sure). The lump behind my ear I think is very recent as I don't recall feeling it last month. The node in my collarbone may have been there since April 2011 now that I really think about it, but not sure.
I don't know if this helps, but I am also asthmatic and have ALOT of allergies mainly environmental. Any ideas what's going on? I tried to provide as much info as possible so I can get to the bottom of this.View Thread
3 or 4 days a ago I had this slight pain on my lower back but after the pain went away it ended up becoming a rush, like a spider bite of some sort. The little rush bumps are still there as we speak but just itchy and they look are like a bad acne.
Also, under my arm pit, level to my nipple (left side of my rib cage) there is this ache, it feels like a muscle ache but very superficial.
I am a Non Hodgkin Lymphoma Survivor on remission (5 years now). I am out of the country as we speak. I don't have any other symptoms. But i also have been noticing night sweats the last couple of months but not always. I think they are due to the warm weather and I always use a blanket.
Please give me an insight on this I am also planning to return US in couple of weeks.View Thread
Now, I am getting major night sweats. It isn't every night, but I've never had anything like this before, and our bedroom is the coldest room in the house. My first thought was early menopause... but really, it would be REALLY early menopause as I'm only 32. I don't want to sound crazy, but it has me a little worried. We have three very young children. Any thoughts as to what I should do? I haven't really noticed any lumps...View Thread
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