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Karen's Unspecified Non Hodgkin's Lymphoma

My exchange if for anyone interested in viewing my 2nd journey through ... more

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SCARED with NHL -Anaplastic Large Cell, ALK(+), St...

Hello! My name is Jennifer and I am a 38 yr. young w-female that was recently diagnosed with NHL+.... The...

Posted by jenjenjohnson

2 Replies | Reply | Watch This Discussion Report This | Share this:SCARED with NHL -Anaplastic Large Cell, ALK(+), Stage IIIa??????? Hello! My name is Jennifer and I am a 38 yr. young w-female that was recently diagnosed with NHL+.... The...

lymphoma or not? somebody give me an answer!

hi im craig and im 25 years old. two years ago i was working an extraordinary amount of working hours and my...

Posted by boogz663

hi im craig and im 25 years old. two years ago i was working an extraordinary amount of working hours and my wife was prego. at one point i was so exhausted that i was having trouble staying awake on the days i did have off, but i attributed that to the work...then all of a sudden i started to get sick very easily..then i started to get chest pains....pains so bad it would stop me in my tracks...so i went to the doc for that..he said muscle spasm or strain...then he got my bloodwork and said that the counts were so bad he wanted to get another test. when i got the second one back he immediatly called me in to get an x ray....when the x ray revealed that i had swollen lymph nodes everywhere and that i started to develop cysts all over my torso and mid section(some so big they needed surgery) he called me after further review and me losing 30 lbs that he thought " 99% sure its lymphoma." i said ok whats next. meanwhile i am getting night sweats and have lymph nodes in my neck and armpit so large they are protruding from my skin. i went to oncologist and got PET scan and it showed up negative....so they told me to watch and wait. so two years went by with the same results except that i havent gotten a pet scan since ( expensive) when i go to my doctors they all say that they think its lymphoma but its too small to biopsy. 2 months ago i started to cough so bad that i started to cough up blood. but no other symptoms. went to ER and he took chest x ray. he brought me in his office and said i had what looked like early stage of lymphoma. yet when i go to my normal doctor, he says that its just clogged bronchials and that i should just wait.. well since then i havent NOT been sick.. ive had skin irritations all over me and havent stopped coughing since... and im constantly nasally......i KNOW i sound like a giant run on sentence and that i am complaining...but honestly i am just so tired of bein sick and just need some direction....anyone?View Thread

Posted by boogz663

6 Replies | Reply | Watch This Discussion Report This | Share this:lymphoma or not? somebody give me an answer! hi im craig and im 25 years old. two years ago i was working an extraordinary amount of working hours and my...

Wig or not to Wig

I chose not to buy a wig, it was my call. My husband/family didn't mind my going hairless/bald and I was very...

Posted by bsmom1970

Take the Poll

Support Group in area

0 Replies | Reply | Watch This Discussion Report This | Share this:Wig or not to Wig I chose not to buy a wig, it was my call. My husband/family didn't mind my going hairless/bald and I was very...

Wigs

I was given a couple of wigs, one of which was quite pretty. But it wasn't me and frankly, those things are...

Posted by Janie704

1 Reply | Reply | Watch This Discussion Report This | Share this:Wigs I was given a couple of wigs, one of which was quite pretty. But it wasn't me and frankly, those things are...

In Remission

Finally! Again for the second time, I'm in remission. The endoscopy report stated, " No sign of cancer...

Posted by karenrugs

Finally! Again for the second time, I'm in remission. The endoscopy report stated, " No sign of cancer cells." I got a congratulations and now am looking forward to getting the bill.

I can't wait to get on with life, again. It's finally sunk in - no more chemo. The treatment made me feel worse than I actually did. I could deal with the pain, do everyday, but being sick from drugs is another situation.

So, come on hair. Get growing. I want to shave my legs again and underarms. LOL! I want to go to my stylist, when my now totally grey hair finally grows. Get in shape again. Yeah, yeah. Never really was.

Life feels different. Things that used to be important to me, arent. So what if the car isn't washed, house isn't cleaned everyday? Who cares if the neighbors are having a knock-down drag-out. As long as there's not any blood.....

I want to watch my Grandchildren grow up. I have two and they mean everything to me. I know they would forget me if I died. But that's just it. I don't want to, not yet. Who would love my grandson, Johnny as much as I do? I know if I died, his little life would be so different than it is now. Who would he have to talk to about his little problems? Who??

I want to grow "older" with my husband, my hero, my knight, my rock.
Sometimes, when I can't sleep, I listen to his breathing and I think about how his life would be if I died. My heart literally breaks. Our daughters wouldn't come around much. Heck, they don't anyway. Not since lymphoma. I can't think about it.

Yup, life means so much. When people talk about taking theirs and how much better everyone would be, I want to slap them. And tell them how wrong they are.

Each day is a blessing. I know that I can fall out of remission at anytime. It happened before. It can happen again. Nothing's a given.
But I know that if that happens, at least I had this time of being happy.
Without cancer. Living, loving life and praying.

If anyone does read this. My prayers are with you. I hope if you or a family member or friend stays with whatever treatment you have.

Thank you,
Hugz,

KarenView Thread

Posted by karenrugs

2 Replies | Reply | Watch This Discussion Report This | Share this:In Remission Finally! Again for the second time, I'm in remission. The endoscopy report stated, " No sign of cancer...

Does it sound like Lymphoma?

Ok- so I am 24 and was having some abdominal pain and constipation that I thought may be related to my...

Posted by nrf85

6 Replies | Reply | Watch This Discussion Report This | Share this:Does it sound like Lymphoma? Ok- so I am 24 and was having some abdominal pain and constipation that I thought may be related to my...

Pre-existing Lymphoma and now confusion

My uncle has been treated for Lymphoma for the past ten years, but over the last several months he has become...

Posted by tinyspot

2 Replies | Reply | Watch This Discussion Report This | Share this:Pre-existing Lymphoma and now confusion My uncle has been treated for Lymphoma for the past ten years, but over the last several months he has become...

Geat idea

I hope this board will help many. I lost my brother in law to this,in 1996. He was undiagnosed for too long....

Posted by kyallie

0 Replies | Reply | Watch This Discussion Report This | Share this:Geat idea I hope this board will help many. I lost my brother in law to this,in 1996. He was undiagnosed for too long....

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sharpeimom4

Hello Karen! Just found you out here and wanted you to know you're in my thoughts & prayers. I'm recently diagnosed - NHL, Agressive B-Ce...More

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Karen's Unspecified Non Hodgkin's Lymphoma

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