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In the meantime work on cutting back on sodium (especially from processed food - it has a lot). If you have no swelling, I would also try to hydrate well as this helps take some of the pressure off the kidneys.
Best of luck finding a specialist.
CoraView Thread
CoraView Thread
I'm so sorry! I just noticed how long it's been since you posted your questions. Did you stil have some questions I can answer? Did you have your surgery?View Thread
It might be worth talking to the urologist again to see if there are any dietary modifications that might reduce or slow the occurrence of new stones.View Thread
It can arise from other sources, but infectious bacteria are the most frequent cause.View Thread
I am curious how long it takes a stone to develop, now that I have had so many. Both of my sides hurt, and I have flank pain, but my urine is clear, and I am urinating many times per day. Any advice would be appreciated. hkammView Thread
Did you ever have surgery? How are you doing?View Thread
Another possible solution is RenaGel, the same ingredient. sevelemer, as Revela. Again this is an older, patented brand name and might be available as a generic drug.'View Thread
Also if she is feeling week and needs a quick picker up. Get tropican Lot of pulp. Its got 16% K in it. Read lables for the amount of K in it.
I was like 24 when I founf out what was going on. I'm now 38.View Thread
CoraView Thread
If you can, ask the doc exactly what he refers to when he talks about "circulation in the kidney".View Thread
Thank you for all of your posts as this is a very scary thing to navigate. I am a 39 year old mom of 4. 5 weeks ago I started getting a weird pain on my left side beneath my rib cage (at the front)...it started to get worse and I started to feel crumby. At the urging of a friend, I went to the ER. After ordering an ultrasound, they found at least 3 stones in each kidney, one 9mm in the left. I passed a small stone two days later (felt it moving right down and had the classic radiating pain - it was uncomfortable, but tolerable). Currently have pain on BOTH sides as well as across my back (crampy like back labour or period pain), and feel run down and crappy. My entire abdomen feels uncomfortable now. I feel so much better lying down. Sitting is uncomfortable as I feel slightly swollen under my rib cage. I was told that stones in the kidneys can hang out for years and should not cause any pain. Well....this has me losing sleep ALL night long (and 5 weeks is a long time), thinking of really scary things like cancer...
I went back to me GP and she is referring me to a urologist. Now, I just wait. I am wondering why she doesn't look at my bowels or anything else. What if it's not my kidneys...what if the pain is not from my kidneys like they say? Worry, worry worry. What good is that when I have a family to take care of? I don't want to stand up and prepare meals or do housework because lying down feels so much better....View Thread
Thank you for all of your posts as this is a very scary thing to navigate. I am a 39 year old mom of 4. 5 weeks ago I started getting a weird pain on my left side beneath my rib cage (at the front)...it started to get worse and I started to feel crumby. At the urging of a friend, I went to the ER. After ordering an ultrasound, they found at least 3 stones in each kidney, one 9mm in the left. I passed a small stone two days later (felt it moving right down and had the classic radiating pain - it was uncomfortable, but tolerable). Currently have pain on BOTH sides as well as across my back (crampy like back labour or period pain), and feel run down and crappy. My entire abdomen feels uncomfortable now. I feel so much better lying down. Sitting is uncomfortable as I feel slightly swollen under my rib cage. I was told that stones in the kidneys can hang out for years and should not cause any pain. Well....this has me losing sleep ALL night long (and 5 weeks is a long time), thinking of really scary things like cancer...
I went back to me GP and she is referring me to a urologist. Now, I just wait. I am wondering why she doesn't look at my bowels or anything else. What if it's not my kidneys...what if the pain is not from my kidneys like they say? Worry, worry worry. What good is that when I have a family to take care of? I don't want to stand up and prepare meals or do housework because lying down feels so much better....View Thread
At any rate, I'm assuming that the insert the needle through the skin into the access. My experience has been that, while most dialysis technicians can 'hit' the site almost every time, once the needle is in (and the tip of the needle is obviously out of sight), sometimes the tip of the needle can end up too near to the wall of the blood vessel to allow a fast enough blood flow. So the 'stick' may need to be adjusted, wiggled a bit, or sometimes done over from the start.
It's not just about getting the large needles IN, they have to be in so that there is good clearance and plenty of room around the needle for good blood flow.
Generally once the needle is in, the tech will tape everything down so that it's really difficult to move it around. Even so they never liked it when I would move my arm too much. It doesn't take a lot of change things by a fraction of a millimeter, and that can sometimes disturb the blood flow.
Sorry I can't get more specific.View Thread
Thank you so much for this information, I will be contacting the hosp this coming week. Finding a surgeon who even knows how to do this procedure has been a nightmare. I really appreciate the information. LeonaView Thread
Now that we have been in the US for about a year, and a half the problem had started AGAIN! Since Dec 2011 I've had 4 UTI's. My husband, and I are wondering if it could be related to all the chemicals (hormones, antibiotics, steroids, pesticides, ect) that are put into our food. Also I'd like to ask, are there any of you passing air though your urethra? After doing extensive reading we found articles discussing Bladder fistulas. Does anyone have prior experience, or knowledge is this matter? Any advise or suggestions are always helpful. Also, I have found through personal experience that for the pain of the UTI (esp the pressure in the pelvic area) that Horsetail herbs at 440 mg taken two to three times per day, 2 at a time are very helpful. I simultaneously take 1 Uva Ursi 500 mg up to three times a day. And again, thank you for any responses, they are VERY MUCH appreciated! = )View Thread
He was also diagnosed with beta-thalessemia trait.
I'm wondering, does this indicate some type of chromosomal, genetic defect or problem? Should I have him tested by a genetic counselor? Mind you, he was diagnosed at age 2.5 years old and is now 16. He appears to be healthy, smart, etc. I just don't know if there was something overlooked that I should have taken care of.
Additionally, I wonder if, as he is developing as a teenager, if he should be evaluated by a Nephrologist regarding his kidney function...or is that just being overly concerned?View Thread
Renal function, and the loss of it, is almost invariably a painless, silent thing. It's a largely biochemical change, not a physical one (although in this case, the "physical" changes ---cysts replacing healthy tissue--- causes the loss of function.
Infections might be a follow-on to increase in cysts or reductions in function, but infections could be an independent factor that just happen with or without the other two things.
Pain could result from infection, from cysts, or from urinary obstruction but not from changes in the functional level.
So just be sure that you don't try to add an apple and an apple to explain the existence of an orange.
Blood tests are the ONLY way to gauge renal function; physical symptoms like pain are related to other factors (though, again, in this case two things might relate to a common cause, cysts, they are not always directly related).View Thread
I have found a protocol that minimizes the risks associated with chelation, as it is a slow and low approach to chelation, with the use of supplements to replace minerals leeched out during consecutive days of treatment. The balance is to maintain chelator in the bloodstream, never letting levels drop during the three days on cycle (every three to four hours for DMSA dosage).
You are right, I cannot find any reputable source to confirm or deny my HM contamination. Most naturopaths who deal with chelation therapies, go for high and infrequent dosaging, which runs the risk of potential harm to the patient, by way of redistribution of metals to vulnerable parts of the body. I suspect that I have CNS and other organ system issues. Only time on chelation will tell if I come through this whole. Thanks for your impute, John.View Thread
What they found isn't great news, but if the damage is limited to the upper pole of one kidney, and it isn't progressing, you might not have any huge concerns for overall future health. Unfortunately, radiologists just report what they see, and they do not try to offer a prognosis or interpretation, since that is the job of the treating physician.
It would require a talk with a urologist (and maybe a nephrologist) to really get enough info on the situation.View Thread
"Hypoplasia" generally manifests as a lower than expected number of functioning nephrons in the kidney. In most cases it is considered a genetic alteration that has probably been present from birth (even if only recently discovered).
Since the functional capacity of one kidney is somewhat reduced, then the alternate (contralateral) kidney compnesates by increasing in size and capacity.
There might be dozens of causes for the initial hypoplasia, but it might be very hard or impossible to identify a single cause. Yes, medication and careful health management (especially overall cardiovascular health) is probably the best way to go. If the heart and the blood vessels are happy, then the kidneys are generally happy. (They are the most blood-dependent organs in the whole body.)View Thread
I can't comment on the 'heartburn', though if it recurs, I'd report it to my primary physician.View Thread
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