Hi, I have been suffering from MSK, since the age of 16. I am now 34. I have passed over 50 stones to date. I've had 2 lithotripsy's and getting ready for my 6th "basket surgery." I've lived with stints for over 2 months in each kidney. My left kidney has never produced any stones until about a year ago, now I have stones in both. My right kidney has the most stones due to the MSK. I also have a lot of right kidney pain even when I'm not passing stones nor have signs of infection. My right kidney feels like someone has kicked me in it. I have found that a lot of Doctors are not familiar with MSK. I've had doctors tell me that they have never heard of it. I've also had Doctors that tell me, "MSK is not a big deal, you pass stones at home, and then when they get stuck you come see us." That's easy for a doctor to say that hasn't been passing stones most of their lives. I to have issues with my weight; as I'm sick to my stomach most of the time. I drink a lot of ensure a day to help keep my weight up. Other than that, I have no good answers as to what could help. I do understand the pain your niece is going through, all I can say is be persistent and compassionate for her sake, as she will run into a lot of medical professionals that will not understand her pain.View Thread
Ten years ago I was dx with a Medullary sponge kidney, I have passed 50 stones to date. I am 34. I'm currently have pain in my right kidney with no signs of stones in ureters or infection. My Dr requsted an IVP to dx the sponge kidney theory. Findings: Scout views reveal some tiny calcifications overlying the collecting structures of the right kidney. The left is more obscured by bowel. Contrast media is injected, 100cc of 300 are given and serial view of the abdomen obtained. There is symmetric opacification of the kidneys. Overall the renal contours are unremarkable. There is no evidence of loss of renal cortex. There is no hydronephrotic change. Ureters are normal in caliber and position. The partially disrended urinary bladder is unremarkable. The view obtain after voiding demonstrates complete emptying of the bladder. Impression: Nephrolithiasis on the right. Otherwise normal appearing kidneys and drainage systems. Normal appearing bladder with complete emptying.
CT scan reported bilateral nephrolithiasis without evidence of ureteral calculusView Thread
This urologist also dx my right kidney with MSK. I have several stones in right, the largest is measuring 5mm. Going to try Ureteroscopic removal, this will be my sixth "basket surgery," Any suggestions would be appreciated.
I need insurance, I'm a single mother of 3 kids. My Dr bills are well over $30,000.00 just from the last year. Any suggestions??View Thread
Thank you for your response. I have an appt. with an urologist tomorrow. You have given me some great questions to ask. Thank you. I had a UA done yesterday. Everything was normal except for my protein levels indicate 15 (trace) and my Ketone-Urine indicated 5 (trace). I don't think I should be concerned about the Ketone but maybe the protein level? I also feel I was misdiagnosed with the MSK. I have had the 24 hour Urine test but have always been told that that test didn't indicate the issue was with my diet, so I guess that's where the dx for MSK came about.
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