Hello everyone, I am in need of answers, I have Medullary Sponge Kidney disease and Cortical Thinning. I have had this since Feb. 2012. There is a lot I mean a lot of pain with this but the doctors say Oh you shouldn't have any pain. Thats BS! No one knows about this because its so rare. Do any of you have this disease?
I feel like I have no energy and like I have a fist in my left Kidney. I am bloated all the time even though I haven't gained a pound, my back hurts and I have groin pain, foul smelling urin and burning. My urine test says I have no infection yet, I am so uncomfortable.
It would be nice to find a Doctor that Has MSK! Is there any out there? Please if any of you have MSK please contact me, I am scared and in so much pain. Thanks so much.View Thread