I have a 29 year old adopted son who also has autism on the mid to lower spectrum. He does communicate but not enough to tell me or the Dr specifics.He has been diagnosed with FSGS and his numbers are hitting the mid 4 range. One month ago they were at 3.1. Very scary and we are informed as to what is coming. He hasn't been accepted on the donor list yet and won't tolerate dialysis. But my question is really off that topic and has to do with heavy thirst for water, lack of appetite and nighttime incontinence since he was diagnosed. My question is, why the incontinence and is it related to the FSGS? Is it common to lose one's appetite and what does the excessive thirst indicate? Our specialist said we are only a few months away from 10% function, if that helps you at all.View Thread
My son is 29 and was just diagnosed with CKD.He is also autistic. He is having a lot of incontinence issues and I wondered if others have experienced that. I'm not sure where we're going with all this as he would not be able to handle dialysis. Is there an increased need to urinate or at times an inability to realize you need to go? He can't ask or answer these questions or give symptoms to me so I'm counting on you brave people.View Thread
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