GigiLong, Just wondered how you are doing? You posted that you found a doctor who would help you. Did you have your surgery yet? What method of attachment does your doctor use? Keep us posted.View Thread
therite1... I am still trying to decide whether or not to have this done. Surgery is a big decision. I have changed my diet and have less GI issues now. I'm eating more soft foods like smoothies and cereal.... As far as the doctor that is willing to do this.... webmd doesn't allow people to recommend doctors. I've seen other posts on here where moderators have removed names of doctors and deleted posts. I also would want his permission before posting his name online. I understand how frustrating the search can be and how important it is that you find the right doctor. If you click on my screen name, I have temporarily listed my contact info.View Thread
Thanks for the replies. It does help to hear what others are going through. Happygirl, It's too bad that your kidney fell back down and your suffering with frequent UTIs. You mentioned in your post that there are different procedures. The doctor that I have talked to said that simply stitching the kidney back into position doesn't always work. The area around the kidney is made of soft fatty tissue and the weight of the kidney can eventually pull the stitches out. If there is enough scar tissue around the stitches it may hold, or it may not. He goes in laproscopically through four of five places and scrapes the fat off of the kidney and surrounding tissue to create a larger area for scar tissue to form. The sutures are to hold the kidney in place until the scar tissue forms. Post op, he requires the patient to remain flat (bed rest) for four weeks, the only exception is getting up to go to the bathroom. This helps to ensure the kidney stays in place long enough for the scar tissue to form. He said he has done between five and ten of these and has a 100% success rate as far as the kidney staying in place. Not all of his patients have had relief from all of their symptoms, but that doesn't surprise me due to the broad range of symptoms that occur. My worst symptom is acid reflux and he was not sure if the kidney could be causing the reflux. I have read in medical journals that the kidney can cause stomach and GI problems, so i suppose it may be possible. I know you mentioned acid reflux also. Good Luck and keep us informed.View Thread
How long did your kidney stay in the correct position before it fell back down? Did you have relief from your symptoms during that time? How was the recovery? Where are you at with this now?
I am a 38 year old male who was recently diagnosed with a mobile kidney. My right kidney is fully mobile"026. When I am lying down it is where it should be and when I am erect, the kidney is in the lower right area of my abdomen. This, along with the rarity of this condition, made it very hard to diagnose. In fact, I saw four different doctors, who could palpate the mass but yet dismissed it as an abdominal wall cyst, etc. When I questioned my family doctor further, he went so far as to ask me where I got my medical degree from?
Finally, after eight months of searching, I found a proctologist, who correctly identified it as a mobile kidney. He sent me for an MRI, but when that didn't show anything abnormal, he dismissed it as nothing. When I googled the signs and symptoms of a mobile kidney, I knew immediately that this is what was wrong with me. I made an appointment with a urologist. At first he doubted me, but an ultra sound confirmed the diagnosis. The kidney could be seen moving while I transitioned from an erect to a supine position. I also was able to press on my abdomen and move the kidney while she was holding the ultrasound probe. When an ultrasound technician says, "Wow"026That's creepy!" you know it's something rare.
I have had terrible GI symptoms. My GI symptoms started out as acid reflux and heartburn. It got worse over a few weeks' time and eventually I knew that there was something more wrong"026so I went to see a Gastroenterologist. I was put on PPIs to reduce the stomach acid, but none of them seemed to be strong enough. I ended up taking 40mg Nexiums twice per day just to control the heartburn. He also sent me for a PH monitor and an esophagram to test the functionality of my esophagus. Both of these tests came back normal. I continued to get worse and eventually was only able to eat small plain meals like chicken and baked potatoes. Anything spicy would trigger reflux and stomach cramping that would keep me up all night. These symptoms continued to increase and began to include a bloated feeling in my stomach. I am still able to go to work, but by the end of the day, I am very uncomfortable and have a sick nauseous feeling that is only relieved by lying down. It seems like the symptoms are aggravated by sitting at a computer for extended periods of time. The more I'm up and moving around, the better I feel. Happygirl74 posted a paragraph that summed it up very well"026
"My GI and Intestinal problems have been horrible. I sometimes feel like my intestines stop working when I am standing up. Then when I lay down they start working again. It is crazy. Not to mention the acid reflux, nausea, constipation, bloating, extreme gas and abdominal pressure. I have lost almost 8 pounds."
As for the kidney, I have only had mild symptoms of abdominal pain. The pain is both in front where the kidney is laying and in the back where the kidney should be. Because I am a thin build, I can easily feel the kidney in my abdomen to the right of my belly button. I can also tell that my right side feels more full than my left side. At the time of this writing, I have finally located two doctors in the US who seem to be knowledgeable about this. It took weeks or even months of researching this online to locate these doctors. One of them advised that a renal scan needs to be done to determine if blood flow or urine flow is compromised when in the upright position. Impairment of either of these flows will warrant nephroplexy surgery. I met with the other doctor and he said that some of my symptoms are likely caused by the kidney. He has done nephroplexy surgeries in the past and has a very high success rate. He is willing to do this for me. View Thread