Hi team...I would love to be in contact with others in this weird amazing predicament we call kidney failure.
I try to believe I am lucky. I have great insurance. Got on the transplant list in October 2012...and I have the means to make it work. But on the other hand...guys I'm scared. Scared of the surgery. Scared of always being tired and losing my job (then it's a no go for transplant). Scared to use my FMLA...let's face it, doesn't matter how sick we are we should be at work to keep our jobs.
It's hard to be tired all the time and not be able to get what you need done. Hoping once the pools warm up in Florida in March that using energy, getting exercise will help improve strength and fatigue.
Any thoughts? Geez, I'd stand on my head, recite the constitution and eat worms if I thought it would help. Nothing wrong with my brain, desire or sense of humour...that should keep me fighting to live.
My other goal, as soon as I can get past another couple weeks of mandatory overtime with Disneyland Paris (yes, work for the French mouse in Orlando) is to make a web page telling my story and seeking a donor. Not so cool in the family department for a donor...grandmother, dad, brother, self and offspring hit the lotto for PKD also. Thinking of starting with a facebook page.
Team it's a big burden to deal with alone. At 50 I have outlived 2 husbands. Wow eh? My pup and cat are great little companions but not the life companion of my late hubby. We need to network and support one another. I'll say it being alone SUCKS.
Here's the other big, stupid question...I hate being alone. I'd love to have a relationship with someone. Where to meet is the ridiculous problem but beyond that is it fair to involve someone in my dilemma? On the other hand I did tell both my husbands about my situation. One died in a car crash after 9 months of marriage. The other, well we made it 23 years before he had a saddleblock embolism and died.
What a crazy person I am...if this has brought you to figure out how I am, that's fine. I'm going to have to tell my story to get help. Can you believe I'm looking for support, a kidney, ways to help myself, a relationship....and while I'm asking (God, could you give me the strength to either sell my horse or enough mojo to get back on her!)
Ok team....I'll start with the support request here first. Let's chat and take this disease for back corner discussions to supportive strength. Any amazing would be donor's who drop in to read...I'm an 0+. My insurance would pay all and it's legal to reimburse for lost work time, travel, and living needs...I have a horse you can play with. Sorry for the insane honest approach but I'm looking for help/support any way I can find it. I'm baring my soul here team so let's skip the unhelpful responses. Blessings to all who read, whether in health need or just curious...God bless. EquineGem in WIndermere, Fl.View Thread