Hopefully,you still read these emails. I also,suffer from Gitelman's syndrome. I was diagnosed when I was 19 and 2 weeks into nursing school. I am now 40 and have chronic pain in my hips and right knee, chronic palpitations, extreme fatigue,and overall my quality of life really stinks. Surgeries are many that I've gone through,from my gallbladder being destroyed from all the potassium/ magnesium, 3 knee surgeries due to crystals, and a port a cath placed so I can continue with my IV s.
My pregnancies were pretty much uneventful except for getting my iv's more since the doctors were not sure if the Aldactone, Amiloride & Triamterene would cause birth defects. Neither one of my girls have issues. Where do u live? Living with this disease has gotten a lot harder since turning 35. It's getting harder to catch up with my chores as well as spending quality time with my girls. . I ALWAYS hurt and ALWAYS are tired. Hopefully, you will reply back. By the way,yes I did finish school,worked for 10 yrs & then had to retire.View Thread