It looks like they might be treating for nephrotic syndrome or else for one of several auto-immune conditions that affect kidneys.
You probably should alert the docs to the slow healing: you don't need a minor infection to complicate matters.
The only thing to say about 100 mg/day of prednisone is that you won't be on that forever. They will taped it down before too long. And in case the docs or the pharmacist didn't caution you, don't run out or abruptly stop the prednisone. It could be quite dangerous to just drop it. It has to be tapered off.View Thread
"Spots" is rather vague. But I think that the urologist was making the best choice when suggesting a conservative approach with regular follow-ups.
They could be bruises, probably more probable would be small areas of tissue that have been slowly deprived of blood (ischemia). Kidney tissue often has generalized or focal ischemia: areas of non-functioning tissue just shrink up and leave an area of visible scarring. It also might be a cyst, though I'd suspect that the MRI would indicate if the spots were fluid filled like a cyst.
Could be some varianmt of several forms of glomerulosclerosis or glomerulonephritis, these can be very slowly progressive but are rarely an immediate threat.
Cancer is a possibility, but from what you describe, it's probably low on the list.
The biopsy is probably a good option. The radiologist and your doc should be able to get a very precise idea of what's going on.
I've had two of these done: generally not a big deal to do. They sometimes keep a patient overnight to watch for potential bleeding issues, but a lot of folks go home after hanging around for several hours of observation.Usually only local anesthesia is required. It's quick, and not seriously painful. Just temporarily uncomfortable.View Thread
I started getting Medicare A & B with the diagnosis of 'End Stage Renal Disease'. It was not instantaneous, if I recall it took quite a few months before coverage kicked in. (At the time I had a policy at work, but had to give up that job due to illness and injury.)
This was nearly 18 years ago, though, and Medicare changes rules nearly every year, so things are probably quite different now.
But yes, it eventually covered the direct costs of dialysis, hospitalizations attributable to renal disease, and part of doctor visits nd meds required by renal failure.
The ESRD Medicare coverage was almost automatic back then. You had to apply, obviously, but there was almost no quibbling or approval hassles. A few letters and forms from the nephrologist and the dialysis clinic basically made it a done deal.
Call a social worker at your nephrologist's office or at the nearest dialysis center. That's about the main thing that they are paid do do: help with insurance coverage. Dialysis is hugely expensive. Almost no one could afford it without help.
My case wasn't quite average, since I'd just had an accident and was suffering with two broken legs and a broken shoulder at the time.
But that, and the pain drugs aside, I was very tired. Slept, ate, worked, slept. That's all I had the energy to do. Sleeping was difficult, appetite was poor, nausea was frequent, Type I blood glucose was VERY hard to manage; it was all over the place, from 35 to 250. My skin itched constantly. Memory was bad, I was frequently confused and depressed.
This was before and during the first few weeks of treatment.
Things slowly got better as I became adjusted to the machine, and the technicians got the machines fine-tuned to my system.View Thread
At some point, as the veins enlarge slowly over time, you will start to feel the vein/fistual sortof vibrate. (Sometimes call 'thrill'.) It's not like the usual pulse on your wrist (thump-thump-thump), it's more like a very faint buzz. A good sign, but don;t expect this to happen in a few days. It could take weeks.
If the blood flow does not increase over time, then I suppose that there are two possibilities, both more or elss surgical. One would be to go back into the original site and adjust the positions of the artery/vein junction slightly. The second would be to start over and do a second procedure in a different location.
Again, I can't answer the question about lifting. My initial instructions were not to life anything over 2 lbs, then 5 lbs. (Which is sort of ridiculous since a gallon jug of milk weighs 8 pounds!) But, understandably, they don't want anything accidentally ripping open, especially when one of those things might be an artery.View Thread
Sometimes imaging can be less than perfectly accurate. So following the US with CT was a good idea.
Additionally, some stones/masses are "radiolucent", meaning that they don't show on X-ray based images (which CT's are). So if it were a "radiolucent" mass, then the US might see it, the CT would not, and MRI probably will.
I'd hang on for the MRI, since about the only other diagnostic tool would be a tissue biopsy.View Thread
If I remember correctly they told me not to lift anything heavier than 2 pounds for the first week, then something like 5 pounds for the next week or two. It got less restrictive as time went by, but each case would vary with the doc evaluating rate of healing, exact placement, blood pressure, etc.
Sorry, but it was 20 years ago, and I was quite ill at the time, so my memory is rather vague.View Thread