Some conditions caused, for example, by over-use of NSAIDS pain relievers, can be almost completely arrested by stopping use of NSAIDS. Hydronephrosis and urinary retention can be slowed down greatly by treating the underlying causes, but in many cases are progressive over the long term. Auto-immune conditions like lupus can successfully be slowed down by proper treatment, but are slowly progressive over the long term.
Various therapies to directly limit proteinuria have shown good results: ACE inhibitors, sometimes fish oil, and in a few cases, more drastic drugs like CellCept, or even cytoxan have worked well for some.
Still, the basic fact remains that there is no real, restorative "cure" for damaged kidneys. If proteinuria is caught early and treated successfully, some cases never affect length of life.
You probably need to consult a nephrologist EARLY rather than at the last minute. A lot of GPs tend to delay nephrologist referral until the disease has progressed to a more serious condition. But there are a number of studies showing a direct correlation between early nephrologist referral and better long term outcomes. Insist on a referral, at least for a baseline evaluation.View Thread
Kidneys requires a huge and constant supply of blood, so anything that reduces bloodflow, like heart attack and vascular disease, will reduce their function.
Unfortunately in many cases there is not a lot that can be done to increase blood supply to the kidneys (unless there is something specific to be treated, like an obstructed renal artery. If the cardiovascular compromise is fairly generalized over the body, it's hard to treat.)
Dietary modification can help calm some of the symptoms, but this needs to be done with the help of a renal dietician and blood tests, since every case is different.
The only real "help"--and it is not a cure--is renal replacement therapy: dialysis or transplant. Your friend may or may not be quite to this point yet, but 17% residual renal function is getting close to it. In most cases, this sort of intervention is recommended at 15%- 20% residual renal function.
I know that this is not the answer that you are looking for, but it is more fact than opinion. Consult with her nephrologist and get more details.View Thread
In nearly every case, Chronic Renal Failure is not genuinely reversible. Hence the term "chronic" as opposed to "acute".
Yes there are slight variations in the lab numbers, both up and down, but I have never heard of a single case that has been 'cured' or improved over the long term (years and decades) that has been actually fixed for the long term. And especially by some herbal supplement or over the counter medication.
If you look, the advertised product is principally flaxseed oil. Nothing wrong with flaxseed, but it isn't a miracle cure for anything, certainly not for a life-threatening condition like renal failure.
Find me a true, peer-reviewed medical journal article that shows any significant renal effects from flaxseed, then I will take it semi-seriously. Until then it sounds like one more marketing scam, taking advantage of the fears and concerns of patients who need serious medical care..
The only 100% sure way to see what sort of cells are in a "mass" is to remove tissue surgically and look at them under a microscope.
Biopsy sounds like a reasonable alternative to watch and wait, but the problem here is that a lot of docs do not consider renal biopsy a safe choice. The reason for this is that whenever the renal capsule is interrupted, cut, or otherwise broken into, there is a chance that a few malignant cells might escape into adjacent structures, making things worse in the long run.
So in a lot of cases, the doc might suggest removing the entire kidney rather than removing a small sample of it. It varies with each case; you'd have to ask the doc on the scene.View Thread
Any of the NSAIDS pain relievers can pose some risk, however acetaminophen is generally considered a lot safer than ibuprofen or naproxsen based pain relievers. (The tylenol-type things are the only ones that my transplant docs allow me to have.)
Acetaminophen tends to affect the liver more than the kidneys, but the overall goal is to minimize any substances like those mentioned. There probably is not a huge risk from OCCASIONAL use of a reasonable amount of acetaminophen. Unfortunately some folks take this stuff every day, several times a day, and many of them push the dose to higher than suggested levels.View Thread
Almost all cases of MSK are caused by genetics, but without knowing exactly what the conditions were with your relatives, we can't be sure. They might have had stones from a different cause than your MSK. And a few cases of MSK appear to be 'idiopathic' with no genetic component.
About foods/beverages to avoid: tea is a good guess but it is only a guess (unless the doc captured stones or fragments after the lithotripsy and had them chemically analyzed. The chemical makeup of stones can vary: calcium oxalate is common, but it could also be calcium urate, calcium carbonate, or rarely struvite. Different chemicals in the urine require different changes to the diet, so I just can't be sure whether the tea idea is totally valid or not. If we assume that calcium oxalte is the culprit, there is a fairly large list of things to avoid or at least minimize in the diet. A basic list is here:
Have you perhaps tried to find a female urologist? I know that this sounds ridiculously sexist for the 21st century, but from all the stories that I've read on WebMD, there seems to be a real bias with some--not all, but some--urologists and women patients. The docs seem more apt to be dismissive of female patients, saying "oh get over it. it's all in your mind. tough it out".
Obviously no doc male or female has the right to treat patients that way, but I've read about an unusually large proportion of male urologists who don't behave with gender equanimity.View Thread
I posted a brief description of medullary sponge kidney a couple of days ago, it's still visible a few posts down the list here.
It DOES vary for every patient, and the number and frequency of stones varies for everybody.
If anyone has done a CT or even an X-ray in the past, I'd ask to see it. There really is no "cure" if it is medullary sponge kidney and not a confused diagnosis. The goal, then, is to control and to minimize the symptoms.
[here comes my rant> I've never really liked most urologists; I had to 'fire' one when I was in the hospital and ask that he not be allowed in my room any more. After trying several others, I finally found one that I felt I could trust. The unfortunate thing is that these days practices have merged and merged again to make more money, so while you can probably get a different doctor, he's probably in the same practice as the other one. And it's bad internal politics to have one member of a practice criticize or disagree with another member of the same practice.View Thread
Medullary sponge kidney is a hereditary, congenital condition that, while present from birth, rarely shows up until early middle age.
Unfortunately one of the most frequent findings is very frequent renal stones. Stenting is often one of the less invasive ways to get the stones out without any sort of more drastic surgery. Stents may be meant to stay in place permanently, although usually they are removed after a fairly brief span of time.
There really is no treatment of the root cause of MSK, it's just a matter of treating the complications--mostly the stones--as they become troublesome.
In a few cases, metabolic acidosis, renal tubular acidosis, can develop and this would need treatment, usually by adding potassium citrate or sodium bicarbonate. If her blood levels of potassium are not getting too low then this is probably not going on.
Sorry but I really don't know what to tell you other than to quiz the docs about how long the stents may need to remain in place, and about any meds, like the two mentioned above, that might help reduce the production of future stones.View Thread