There were 2 books that helped me the most (this was pre-internet days) One was called "A Primer on Kidney Disease" and the other was Corinne Netzer's Complete book of Food Counts. The Primer gave me all kinds of base info about K-disease, lab work, dialysis, and transplant. The Netzer book made it easier to figure out stuff like potassium in my foods. Oh, and then I also (many, many moons ago) got a medical dictionary to help with terms I didn't know. The link I gave you is to one dictionary only, check around, even at your local bookstore, and see what you can find.
By limiting your potassium intake, your levels will be lower. Simply do a google search on high potassium foods. Basically, foods high in fiber tend to be high K. The real biggies are tomatoes, citrus, and potatoes.
Not sure what the docs are asking "why?" about. With kidney damage comes some potassium clearing issues. At your level, your function can go up and down. Talk to your nephrologist about this.
Best of luck and wishing you a pain free time.View Thread
Obviously I'm not a doctor, but for personal comparison stories, my creatinine was about 12.0 before I started dialysis. It sounds like he is being monitored well and has prepared. I know the waiting is difficult. Sometimes, waiting for the inevitable is like being tied to the train tracks and watching it approach so, so slowly.
Part of the problem with slow progression is that you don't always realize how ill you actually are and wait too long. If I could do it all over again, I would take seriously when the docs starting suggesting I start dialysis.
You never know. Things may stabilize. I had a friend with a similar creatinine to his. Thanks to some luck and some taking care, it took him 6 years to actually require the peritoneal dialysis catheter that had been inserted. I'm not suggesting that this will happen to you folks as everyone's timetable ends up being different. Just suggesting you take it one day at a time and evaluate.
Hi and sorry for the delay in getting back to you. Everyone is different. There are a few reasons why some people start dialysis sooner than others. Retaining fluid (especially in the heart/lung area), feeling ill, and very bad electrolytes (especially potassium) can be dangerous.
The bottom line though is that you need to be prepared. I left it too long and had to go on via emergency basis. Not fun! Does he have an access (fistula or catheter)? In that case you can go on more suddenly. Once you go on, it takes a little while to find the right prescription. The good thing about going on dialysis is that typically things stabilize and your life becomes more steady again.
Again, sorry it took me so long to answer. Can you share some of his labs? As I said, we all have different tolerances. My creatinine was about 12 before I went on. they didn't calculate GFR in those days. I should have started a bit sooner.View Thread
I'm sorry to say, but IMHO, eliminating animal protein will do nothing for him (at a eGFR of 17) but make him weak. And taking out phosphorous from the diet as well will cause other problems. P should be limited based on how his blood levels are doing and how much his native kidneys are currently removing. Foods with P carry other nutrients and calories that you dont' want to get rid of.
I know it's hard to deal with. I've been there. But at this point, dialysis will be somewhere in the future. And the good news is that you can have a life while doing it. Delaying it too long just allows the body to get weaker and that is not a good thing.
Cutting out either of those things will not improve kidney function. Cutting back based on lab values is important, but neither will have a catastrophic effect in the immediate future the way excess potassium can if you go overboard one day.
I'm not sure what your team is like, but I got excellent day-to-day advice from my renal dietitian who was part of my team. I got good advice on what I should/could eat and still enjoy my food and keep as well as I could.View Thread
Here's what I can tell you about what I have seen of the decision making process. For myself personally, and what I've seen from numerous people in support group, choose the modality that grosses you out the least. To me, the thought of a fistula really bothered me. I ended up on hemo due to medical reasons, but I really wanted PD. I have friends who did hemo becuase the thought of a tube sticking out of the belly was horrible.
Both methods have pros and cons. You can often eat better on PD (few potassium restrictions) and it is a bit easier on your body as you dialyse and take fluid off every day. There is a risk of a big/bad infection especially if you are not careful.
With hemo, they can almost always force it to work in one way or another. You are usually in center, but if you can go to home hemo, that is almost as good as a transplant. But your diet and fluid intake is more restricted and it is harder on your body as you are taking off 2 days of fluid in a 4 hour shot which can be hard on your heart.
As for whether or not you are physically able to do PD, yoiu should consult with the docs.
Both forms of dialysis require a small surgery with only a relatively small amount of pain and a short recovery time. Just make sure you give yourself some lead time and make the choice and get it done before you need it. I left it too long, went on dialysis on an emergency basis, and it wasn't fun.