So sorry. We've been there. The good news is that there is life after dialysis starts. Some people do continue to work. But the transition is hard and requires some mental adjustment. And it also takes some time to get the prescription right. It's just like taking a med, you have to find the right "dosages". Here's hoping things remain stable for a while.
Sorry, I just went on a ramble about peritoneal dialysis and then remembered you talked about a fistula. So I deleted the irrelevant stuff. As for whether or not home hemo is covered, I have no clue as I am Canadian. But had several friends doing it and if you can get it, I would suggest that you go for it. It is considered the next best thing to a transplant. Virtually no dietary restrictions and you feel almost normal. One friend could walk around the block while on in-center hemo and on home hemo he was biking about 20 miles per day. With that said, it's not easy and requires quite a bit of training. But from the sound of it, your husband is a competent individual and should be able to handle it.
You absolutely want to be prepared ahead of time. My plan for PD was to go to a conference on the other side of the continent, come home and have the catheter inserted, and then slide gracefully onto dialysis. Well, my life had other plans. I got double pneumonia and had a small MI wihile at a hotel 3 time zones away from home. I flew home after 2 weeks in hospital with a femoral line. Not fun!
Obviously, I'm an extreme case. And also obviously, I left things too late. Kidneys are unpredictable, as John said. At a GFR of 22, the unfortunate truth is that bad things can happen. What's the worst that can happen if you get it done right away an ddon't need it? Nothing. A friend of mine had his PD catheter put in at what appeared to be roughly the right time. And then things stabilized. And he didn't need it for 6 years. But he had the security of knowing that he was ready at a moments notice. That is what I would want and what I would do if I had a do-over.
Organs don't need to be "detoxed". If you like the taste of cilantro and lemon, then by all means, drink it. It's not like your kidneys get "dirty" and they need to be cleaned and dusted like a nicknack on a shelf. The human body cleans itself.View Thread
It's fairly straightforward, actually. And it's for your friend's safety. Even though "technically" your friend may currently be considered cancer free, it is possible that microscopic cancer cells are still present. Transplant centers require that people with cancer be sure that they are truly cancer free, and that they are not likely to develop cancer again. The immune system battles these tiny cancer cells. If your friend gets a kidney, they will be immunosuppressed. And even in the best case scenarios, they will be at a higher risk for cancer. Right now, shortly after the cancer, getting a kidney and getting the anti-rejection drugs would mean a significantly higher risk of getting cancer again. And more aggressively probably.
Some centers require a 5 year wait to ensure that the former cancer patient doesn't die of cancer shortly after getting a new organ. It's for safety. By waiting a few years, you are making sure that the cancer is truly gone and will not recur.
Hope this helps clear things up for you. And thank you so much for being willing to donate.
I know that some kidney patients are told to take baking soda because they have ph problems (acidic) with their blood. I don't know what the soda would do if you don't have this problem. Maybe make your blood too alkaline which can also be dangerous.
Have you had kidney tests done? Naproxen can damage your kidneys and you need to know if anything is wrong and what specifically to do about it, rather than shooting in the dark with lemon or baking soda (one is acidic, one is alkaline, so they would have opposite effects).
He is on hemo and going in more than 3 times a week? How much is he drinking? It is very important to restrict fluids. Hemo will be easier on his body the less fluid he has to take off. Don't forget that anything that is liquid at room temperature is also considered a "fluid". So Jello, ice cream, soup, is all counted in your daily allowance. If he is being dialysed so frequently, this could cause the cramping.
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