So here's the problem. I don't understand. I know you aren't a dr but can you tell me your opinion?gfr is 16 now up from 13. Vit D is like 8. Low calcium and magnesium. Phosphorous is at 5.5. Potassium is ok. The kidney dr said no phosphorous binders needed yet but soon, can you think of anything we can do to improve any of this? Is this all normal progression with this stage etc? Should we lower the protein even more?parathyroid is at 225. In January it was 146. How does this all work? Thank you in advAnceView Thread
Gfr went from 13 to 16. Did this happen due to low protein diet? Now phosphorous is 5.5
. Is this inevitable with kidney disease or can this be controlled by diet alone?
Dr said no parathyroidectomy yet or phosphate binders but both may happen soon. What does that mean? Why do drs wait so long to treat things? Just like in dialysis , they won't do it till under 10. I really want to understand this. Drs are not schooled in nutrition and if something can be improved they should tell you. Any suggestions? ThanksView Thread
Has anyone gone to being a vegetarian when kidney function was getting worse?
I have heard from a few people who stopped eating meat and dIry and it helped considerably. Has anyone had experience with that?View Thread
Hi everyone, I currently have kaiser insurance. The dialysis center for my insur is about 25 miles of freeway round trip. Probably doesn't sound far but on ca freeways at certain times of the day it can be. Here's my question, does anyone know if you can go to a dialysis center close to your home vs going to kaisers facility? I live 1 mile from a davita dialysis center. I stopped in the other day and they said they have a few kaiser patients there. I was shocked, and relieved . They said the dr would just have to sign off and that we may not have the same dr at kaiser that we do now , but it will be another kaiser dr. Then I ran into someone at work that said it's a law that they can't make you go to their facility if one is closer . Is that true? Thank youView Thread
Hello, my question is, I currently have insurance through my wife's employer because I'm self employed. When I go on dialysis which will be by June it looks like, if we have a HMO now but it's 1100 a month for the 2 of us, can I change and be taken off hers to go on a PPO? Or get Medicare after the 3 mo being on dialysis? I'm not sure how much disability I will get and this would free up st least 600 dollars a month to help us live on. Plus the dialysis center is not close, or I don't consider 20 miles one way close. If I go on a PPO the davita dialysis centers are very close.View Thread
Hi Cora, we are doing just ok. I want to make sure that my husband is getting the best care of course, but I also feel that they are just waiting and watching for signs before they put him on dialysis. Is this the correct protocol? He was at 17 gfr in January then March he dropped to 13. Now he is at 15 which from what I have read, seems to be the way it goes up and down. He has a list that's quite long re all that's going on with him but also it is probably normal for many kidney patients. Diabetic, high bl pressure, parathyroid elevated, severe vit D deficient etc etc. he is in construction and is a very hard worker but we like many live paycheck k to psyche k. He foes not have retirement only soc sec but because he didn't always make a lot he will be seeing less than 850 a month when he can collect it. I think he will get a little more if on disability. No savings either. We help way to many people and now well no one for us. However, I would never ask anyway. He does not wZnt a transplant. I worry daily of what will happen. If he had a desk job that was not strenuous then he may be able to do dialysis and go to work, however his job is very physical. His knees and back hurt all the time from this line of work . Another wait and see. I wentbyomsoc sec today and they said he only gets disability if he cannot work which of course smokes sense. He can get Medicare after 3 mo of being on dialysis. If we stay eith our HMO it's 1100 a month for the 2 of us and the dialysis cars are quite far, I hope he can get on Medicare so we can get into a local facility for did lysis. We will have to find new drs but if it's good care, less money, and much closer to home then we should do it. AnywAy didn't mean to write a book. I will check the websites you mentioned. Are you on dialysis? At home or a center? How long have you been going it. What are your true thought? Thank you
Dayna of Kirby boyView Thread
Hello, I'm the wife of a soon to be dialysis patient. Where can I go or is there a forum of others experiences doing dialysis etc. I'm trying to learn what to do or not to do. I would like to know if there is a website you know of etc. our current HMO insur has a group, that meets about every 2 mo at like 11 in the morning and there's no way I can leave work to go to it. Any help is appreciated. Thank youView Thread
Thank you in advance for answering. I posted the other day re gfr dropping from 17 to 13 now. Husband feels "ok" a little tired from working hard labor all day but ankles and feet are swelling. He was just put on Lasix a few days ago which seems to be helping dome. I called a doc worker from our insur today. I however didn't really get my question answered so I must rely on your experiences please:)
What do I do? Do I contact doc sec or who? Where do I start? I think the dr is waiting until gfr is 10 unless something else happens or he starts new symptoms of which the only 2 I was told was swelling And throwing up. How do I get the ball rolling I don't wZnt to wait till the last minute. He is self employed and has never saved. We have nothing to fall back on. I am stressed to the max as It will be me that has to figure this all out. Anyone have an idea who to call or where to start? I currently am the insur carrier but it's 1100.00 a month for 2 of us. From what I hear he could get Medicare? And pay very little which then I could take him off my insur which would free up some of my pay while he starts dialysis so we don't lose everything we have etc. if it sounds dramatic it is:( thank you very much for responding it's very appreciatedView Thread
Thanks for the response. I finally spoke to a lady who does all the classes and transplants etc. she said if he doesn't have any symptoms besides the swelling of the legs , ankles , feet and if he is able to work construction everyday then they will not start dialysis until 10 or under???? He is at 13 as of last week. However, he has been under a great deal of stress mentally, and has bursitis in the knee and it's hard to bend so he hurts physically as well. He was hoping for a cortizone shot in the knee but they said no because his sugar would be elevated so they referred him to an orthopedic dr. In the mean time he is in pain. I don't understand this. I said so it's a wait and see? She said yes. In regards to the kidneys. She said to just wait on paperwork. I however don't agree as then you just have to wait longer. Who do I call to do the ESRD,is that social security? I have kaiser but anything major that you need to go to certain special facility is quite far. They said someone would have to take him and pick him up each time he has dialysis. Is that true? It's go far away for me to do this and keep my job. I am thinking of staying with them until he starts and has 3 mo in and then change to Medicare that's not a HMO. Who do you have?View Thread