I am so glad the therapy helped you but I have been there and doing that. I am on my 4th lymphedema therapist and we are getting nowhere. To date I have spent about $2000on custom garments , bandages, ready wraps etc.the swelling keeps coming back. I have huge lumps of squishy feeling stuff. The fluid won't go away and doctors are stumped. I still need to use a walker to get around. I am hoping someone will see this who has had similar problems. This has been so frustrating. Thanks for your answerView Thread
I had TKR in may 2012 and did well, but soon after started having swelling. Everyone told me swelling was normal and told me not to worry. I have seen so many dr because retaining fluid continues. I have been to 4 lymphedema therapists but no one has been successful. Finally in January the fluid was so bad that I could only take about 4 steps with a walker and I would have to catch my breath. I was admitted to the hospital and they took off 113 pounds of fluid.
When I went home I was told to take 80mg of Lasix and even double it my weight started increasing. For some reason my body doesn't respond as well when taken orally. So in the past 6 weeks I have gained 40 pounds and I am now back in the hospital trying to get the fluid off. My shoes don't fit and I can't wear pants because my right leg is so much larger. I have to use a walker to get around . I am in pain all the time. It feels like I have a blood pressure cuff on my legs. Then at times there are just shooting pains.
I have searched and searched for answers but come up empty. The only thine they are finding is what it's not. Hopefully someone out there has had a situation similar and can give me advice. This has been going on for 10 months and it becomes more depressing with each passing day. My life has been turned upside down. I sit in a lift chair and have tables next to me with things I need.
Please if you have anything you can share concerning my condition please do so. I'm feeling pretty desperate!pppView Thread