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Friday is Put on Purple (POP) Day!

POP this Friday, May 18! Put on Purple Day is set to get even more people thinking about Lupus...

Posted by Elizabeth_WebMD_Staff

1 Reply | Reply | Watch This Discussion Report This | Share this:Friday is Put on Purple (POP) Day! POP this Friday, May 18! Put on Purple Day is set to get even more people thinking about Lupus...

Flare-up with butterfly rash

Does anyone else have problems with doing any housework and it brings on cold sweats and a butterfly raised...

Thank you, Good luck, and God bless
Jerri

Posted by tigermom23

0 Replies | Reply | Watch This Discussion Report This | Share this:Flare-up with butterfly rash Does anyone else have problems with doing any housework and it brings on cold sweats and a butterfly raised...

Does Lupus cause surgery (hardware) allergies?

Thanks for your Reply! Hi, my my name is Jerri. I was diagnosed with Lupus after my 4th spinal surgery. It...

Thank you, Good luck, and God bless
Jerri

Posted by tigermom23

Thanks for your Reply!Hi, my my name is Jerri. I was diagnosed with Lupus after my 4th spinal surgery. It seems like my mind is constantly in a Lupus fog. I think I've had Lupus since about 2008. Its manifested themselves by swollen joints to the point that I couldn't bend my fingers, feet, hands, or make a fist, I had little reddish spots all over my legs, my face had the Lupus flare, all my Glands in my head and behind my ears were swollen, and I had a horrible headache and joint pain all over.By the time I made it in to the doctor the mysterious symptoms disappeared,but I was insistent he do a ANA test for Lupus. So we found out I had Lupus SLE and ever since I have been Dx'd with it I have had to have 6 more spinal surgeries and after each has been fused I have to have the hardware removed because my body starts attacking it. I see my Rheumatologist because of all the Lupus related diseases that have developed like fibromyalgia, SLE, Lupus arthritis, migraines, chronic fatigue syndrome,restless leg syndrome, reflux, peripheral nerve damage in my hands, asthma,and chronic depression. The disks in my back are constantly buldging or messing up.I get sick all the time. Currently I am on prednisone (the majority of the time), restasis for my eyes, Nortriptylin, restoril for sleep, lasix 40mg/80 mg, soma, plaquenil, singulair, topamax, azelastine HCI nose spray, klonopin, vistaril (pain meds make me itch really bad), lyrica, imuran, mirapex, sonata, trazadone, kadian, percocet, savella, proventil, and systane eye drops.Last spinal surgery was 3 wks ago and I am 38 yrs old and disabled from the surgeries and Lupus symptoms.This last surgery was 5 levels from S-2 up.I keep having problems with my stomach cramps/diahreah.I also keep getting the Lupus migraines,fever,and the rash all over my arms/legs, and Lupus butterfly rash (which stays on my face the majority of time). Sometimes the migraines are so bad that they break the blood vessels in my eyes an fill them with blood from the pressure. My eye specialist agrees that the meds and Lupus is starting to attack my eyes. Does anyone else have problems with horrible hot flashs all the time to the point where my shirt is wet and so is my face? I just don't know what to do anymore. Now they said my 14yr old daughter has a high ANA test and has been having joint pain have a tenative dx of fibro,but hope its just her weight and growing pains any advice? Sorry I hit you with a lot of information and questions. Also I have low vitamin D, and take Omega 3, Voltaren Gel for hand pain, super b complex, asmanex, Vitamin C, Triple Omega. These are some of the other pills I take also. I am still working on my masters degree via the computer at home, so I feel like I have accomlished something that will make my two kids proud of me. Its so easy to get down on yourself, I am so glad that I found this site. You all have helped me in ways you can't even imagine. Being a single parent with this disease is hard enough.....but my ex thinks he has to prepare my kids of my possible death at any time....NOW! This adds more stress on my kids, who I have to explain that its not possible any time soon...its in GODS hands, and giving me a flare-up in the process.... Sorry I unloaded on everyone. P.S. My doctor is currently scheduling me to start the Benlysta treatments..,.and I pray they work so I can come off of the steroids....its scary when, on the first page, it lists death may be caused by this medicine....but they don't know for sure. Please keep me in your prayers.View Thread

Thank you, Good luck, and God bless
Jerri

Posted by tigermom23

1 Reply | Reply | Watch This Discussion Report This | Share this:Does Lupus cause surgery (hardware) allergies? Thanks for your Reply! Hi, my my name is Jerri. I was diagnosed with Lupus after my 4th spinal surgery. It...

Lupus and Increased Risk for Necrotizing Fasciitis...

Flesh-eating bacteria has been in the news lately. After a zip-line accident, 24 year old Aimee...

Posted by Elizabeth_WebMD_Staff

0 Replies | Reply | Watch This Discussion Report This | Share this:Lupus and Increased Risk for Necrotizing Fasciitis (Flesh-Eating Bacteria) Flesh-eating bacteria has been in the news lately. After a zip-line accident, 24 year old Aimee...

lupus and pregnancy

Can lupus cause fertility problems? We art tringto get pregnant and have been unsuccessful.

Posted by An_245352

0 Replies | Reply | Watch This Discussion Report This | Share this:lupus and pregnancy Can lupus cause fertility problems? We art tringto get pregnant and have been unsuccessful.

Was diagnosed with lupus and RA a few months ago.....

Hi. i am new to the boards here. i was diagnosed with Ra last year and lupus in march of this year. i have had...

Posted by KMStrube

1 Reply | Reply | Watch This Discussion Report This | Share this:Was diagnosed with lupus and RA a few months ago.....omg it sucks! Hi. i am new to the boards here. i was diagnosed with Ra last year and lupus in march of this year. i have had...

Could it be Lupus?

Hello all, I am new here. I just wanted to post about what's going on with me. I have a PCP appointment...

Posted by astralweeks

Hello all, I am new here. I just wanted to post about what's going on with me. I have a PCP appointment this afternoon and unfortunately have a rheumy appointment August 10th, but hoping PCP will call to put me in more urgently once he reviews my symptoms and blood work. [br>[br>I went to the ER Thursday after a lot of odd symptoms. I've had random high fevers off and on for months now that leave me extremely weak, and just recently started experiencing pain and swelling in the joints in my hands and wrists, plus a cough I've had on and off for a while. I developed a red, spotty rash on my lower legs, I've experienced hairloss over the last year or so, swelling in the ankles and serious fatigue. The ER doc suggested I may be suffering from an autoimmune disease and ran some blood work. [br>[br>I got a call with the results Friday. High sed rate and CRNP. Negative Rheumatoid Factor but positive ANA, nucleolar pattern 1:160. Some other tests were being ran as of Friday from there, including a sjogren's panel. C3 and C4 came back normal (well, C4 borderline low). Awaiting the Anti Sm/RNP and DNA-ab ds results. I read a nucleolar pattern is often indicative of scleroderma but I don't really have any of those symptoms. I should mention a positive family history for Lupus (my aunt) and in researching, my symptoms seem to match Lupus a lot more than scleroderma.

I should also mention I am a 29 year old woman, overweight (which is what I attributed so many of my symptoms to for so long), headaches, blood pressure creeping up, edema in lower legs, some IBS-like symptoms and a history of UTI's and kidney infections - when I was pregnant in 2006 I needed to be on Keflex my entire pregnancy and have had infections since then. [br>[br>Anyway, just wanted to introduce myself and ask if anyone wants to weigh in. I do have the appointments and I have heard many good things about this rheumy (I work in a hospital and he came personally recommended). Thank you for listening and having a board like this to discussView Thread

Posted by astralweeks

0 Replies | Reply | Watch This Discussion Report This | Share this:Could it be Lupus? Hello all, I am new here. I just wanted to post about what's going on with me. I have a PCP appointment...

lupus and hydralazine

I have had lupus for many years. My doctor has recently prescribed hydralazine for high BP. Since hydralazine...

Posted by betseyj

1 Reply | Reply | Watch This Discussion Report This | Share this:lupus and hydralazine I have had lupus for many years. My doctor has recently prescribed hydralazine for high BP. Since hydralazine...

Flank Pain and Lupus

Hello!I wake up every morning and continue all day with lower back pain and flank pain. My kidneys are fine for...

Posted by NolaKat

2 Replies | Reply | Watch This Discussion Report This | Share this:Flank Pain and Lupus Hello!I wake up every morning and continue all day with lower back pain and flank pain. My kidneys are fine for...

Hair loss and rash

Hello, Im new to this site. Im 34 and has had SLE for 10yrs now. I had hair loss when I was first diagnosed,...

Posted by leolupy

2 Replies | Reply | Watch This Discussion Report This | Share this:Hair loss and rash Hello, Im new to this site. Im 34 and has had SLE for 10yrs now. I had hair loss when I was first diagnosed,...

trying to stay strong..

so i have been having problems for the last 5 years. i have had exploratory surgeries and several thousands in...

Posted by hbogs

1 Reply | Reply | Watch This Discussion Report This | Share this:trying to stay strong.. so i have been having problems for the last 5 years. i have had exploratory surgeries and several thousands in...

traveling and lupus.

am a registared nurse and i do the travel nursing .. i was diagnosised with lupus 7 months ago. i have joint...

Posted by mars45

1 Reply | Reply | Watch This Discussion Report This | Share this:traveling and lupus. am a registared nurse and i do the travel nursing .. i was diagnosised with lupus 7 months ago. i have joint...

World Lupus Day 5/10/12

Today is World Lupus Day!!! What are you doing to spread awareness?

With love, with patience and with faith, we'll make our way.

Posted by Lupylisa44

2 Replies | Reply | Watch This Discussion Report This | Share this:World Lupus Day 5/10/12 Today is World Lupus Day!!! What are you doing to spread awareness?

back and neck tension

I have an extreme amount of back and neck tension but i dont have any pain. actually, i can hardly feel...

Posted by Daniellej125

I have an extreme amount of back and neck tension but i dont have any pain. actually, i can hardly feel anything there. i'll have my husband push his elbow into my back with great force and although i can feel the pressure, i cant feel any relief or any pain for that matter. also, i got a massage a few weeks ago (deep tissue) and was told that it looks like i had a back injury or something. (i have never had anything specific happen there, perhaps multiple strains though) anyways, i went to the doctor and she told me that nothing was wrong because i havn't lost any mobility and there is no pain so she just gave me a muscle relaxer and said good day. i am not happy with the doctor visit, though the pills are helping my back to relax a little better. i am just conserned that there is something else going on that she didnt bother looking at. she doesnt want to give me an x-ray or anything like that because i dont have any "red flags" that say i could have an injury or something. i sit behind a computer for 8 hours a day and i know that this job isnt helping with my problem. when i try to google this or anything, all i get are links for issues that have both pain and tension. i lack the pain. does anyone out there know what this could be? anyone ever experience anything like this? i just want to know if i'm just tense or if there is something wrong. all the other people that work here dont have any symptoms like this, atleast none that concern them like this is concerning me. i mean, literally my back/neck/shoulder area is hard as a rock. im very thin and there isnt much fat covering my back but there is also not a lot of muscle anymore either (i used to be very strong) so a problem doesnt have a whole lot of places to hide.
i really hope someone out there can relate and point me in the right direction. if there is nothing wrong and i'm just tense i will take comfort in that too. i just dont want to wonder anymore and i dont trust the doctors i am sent to, they have a tendancy to write people off, that really need medical attention, with a bottle of 800mg motin and tell them to hydrate.

if you read all this, thank you, and if you can help thank you even more.

-DB-View Thread

Posted by Daniellej125

1 Reply | Reply | Watch This Discussion Report This | Share this:back and neck tension I have an extreme amount of back and neck tension but i dont have any pain. actually, i can hardly feel...

Scared

Looking for some advice because right now I am having a bit of a meltdown. I've had lupus for about 9 years...

Posted by ECUgirl386

2 Replies | Reply | Watch This Discussion Report This | Share this:Scared Looking for some advice because right now I am having a bit of a meltdown. I've had lupus for about 9 years...

Lupus bloodwork

Hi there, I am new to this site and I had a question I was hoping someone could answer. I have been...

Posted by Krobbie6

Hi there,

I am new to this site and I had a question I was hoping someone could answer. I have been struggling off and on for 10 plus years with most likely lupus.

A Rheumatologist believed I had lupus as well as fibromyalgia. It took a year before being referred to her and I was most likely going into remission shortly after seeing her. I was told that my bloods tests showed markers for lupus but 3 months later the same tests were back to normal. She needs 3 consecutive abnormal blood tests before she can say for sure.

I was told that my GP should follow me until something shows up again. A few years later I asked my GP if she could do that since she was new and hadn't been following it closely. I have had many different symptoms over the past year and it's been a tough year. So she did my ANA and she said it was normal. I got a copy of my results to bring to a naturopathic clinic and saw that the ANA was mildly positive. Wondering if that is considered normal in someone who has been told they probably have lupus and if not what other blood work should she do to to follow up?

Part of the problem is that I have come in with all these complaints over the past year and she doesn't see them fitting together. She also feels that this is all due to me being depressed and her focus is on that. I am a very active 36y/o and gained 10lbs in 2 wks without doing anything different along with many other symptoms and her response is that i'm getting older and my metabolism will slow down. I just find it very frustrating and it really deters me from seeing any doctors and having any hope that things will get better. Luckily the naturopath came to the same conclusion with the lupus but unfortunately is no longer at the college so again I am left to follow up with my GP.

Any feedback is appreciated!

ThanksView Thread

Posted by Krobbie6

2 Replies | Reply | Watch This Discussion Report This | Share this:Lupus bloodwork Hi there, I am new to this site and I had a question I was hoping someone could answer. I have been...

Lupus Diagnosis

I have a doctor that just doesn't seem to get it. I was sent to a rheumatologist because of blood work and an...

Posted by FSUNole14

2 Replies | Reply | Watch This Discussion Report This | Share this:Lupus Diagnosis I have a doctor that just doesn't seem to get it. I was sent to a rheumatologist because of blood work and an...

What's Up Wednesday? What is your favorite piece ...

Do you have a favorite work of art? Something famous, hanging in a museum? Something in your...

Posted by Elizabeth_WebMD_Staff

0 Replies | Reply | Watch This Discussion Report This | Share this:What's Up Wednesday? What is your favorite piece of artwork? Do you have a favorite work of art? Something famous, hanging in a museum? Something in your...

Had THE WORST day EVER!!!

I woke up this morning to find my 15 year old dog not feeling well. Called the vet for an appointment at 4...

With love, with patience and with faith, we'll make our way.

Posted by Lupylisa44

6 Replies | Reply | Watch This Discussion Report This | Share this:Had THE WORST day EVER!!! I woke up this morning to find my 15 year old dog not feeling well. Called the vet for an appointment at 4...

Help ... Where do I turn next

I was recently diagnosed with Lupus by my family doctor after undergoing many test he referred me to a...

Posted by pooser25962

2 Replies | Reply | Watch This Discussion Report This | Share this:Help ... Where do I turn next I was recently diagnosed with Lupus by my family doctor after undergoing many test he referred me to a...

5/7/12 Lupus Fact of the day: 11 criteria for di...

There is no single blood test for diagnosing lupus. Systemic Lupus Erythematosis (SLE) is diagnosed using 11...

With love, with patience and with faith, we'll make our way.

Posted by Lupylisa44

0 Replies | Reply | Watch This Discussion Report This | Share this:5/7/12 Lupus Fact of the day: 11 criteria for diagnosing lupus There is no single blood test for diagnosing lupus. Systemic Lupus Erythematosis (SLE) is diagnosed using 11...

Lupus Fact of the Day 5/4/12

Lupus develops most often between ages 15 and 44. However, between 10 and 20 percent of cases develop during...

With love, with patience and with faith, we'll make our way.

Posted by Lupylisa44

0 Replies | Reply | Watch This Discussion Report This | Share this:Lupus Fact of the Day 5/4/12 Lupus develops most often between ages 15 and 44. However, between 10 and 20 percent of cases develop during...

5/3/12 Lupus Fact of the Day

Lupus is more prevalent than AIDS, sickle cell anemia, muscular dystrophy, cerebral palsy, multiple...

With love, with patience and with faith, we'll make our way.

Posted by Lupylisa44

1 Reply | Reply | Watch This Discussion Report This | Share this:5/3/12 Lupus Fact of the Day Lupus is more prevalent than AIDS, sickle cell anemia, muscular dystrophy, cerebral palsy, multiple...

New Guidelines for Kidney Disease Due to Lupus

As many of you know, when lupus attacks the kidneys, the damage can be life-threatening. New...

Posted by Elizabeth_WebMD_Staff

0 Replies | Reply | Watch This Discussion Report This | Share this:New Guidelines for Kidney Disease Due to Lupus As many of you know, when lupus attacks the kidneys, the damage can be life-threatening. New...

INTRO.

Hi All, I just wanted to introduce myself. I have has lupus since 2003 and I first noticed that...

Posted by medstudent2013

2 Replies | Reply | Watch This Discussion Report This | Share this:INTRO. Hi All, I just wanted to introduce myself. I have has lupus since 2003 and I first noticed that...

Lupus Fact of the Day: 5/2/12

There are five types of lupus. Systemic lupus erythematosus - affects joints and organs Discoid lupus -...

With love, with patience and with faith, we'll make our way.

Posted by Lupylisa44

0 Replies | Reply | Watch This Discussion Report This | Share this:Lupus Fact of the Day: 5/2/12 There are five types of lupus. Systemic lupus erythematosus - affects joints and organs Discoid lupus -...

What's Up Wednesday? What movie has a great sound...

This off topic question is posted to remind you that you are more than the symptoms you are...

Posted by Elizabeth_WebMD_Staff

4 Replies | Reply | Watch This Discussion Report This | Share this:What's Up Wednesday? What movie has a great soundtrack? This off topic question is posted to remind you that you are more than the symptoms you are...

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