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Symtoms never end..

Hi, my name is Nicole. I am 25 and was diagnosed with lupus March of 2012. I have had a mirage of symptoms and...

Posted by nininj8

0 Replies | Reply | Watch This Discussion Report This | Share this:Symtoms never end.. Hi, my name is Nicole. I am 25 and was diagnosed with lupus March of 2012. I have had a mirage of symptoms and...

Itchy Scalp

I've been in remission for 5 years now. Lately I've been itching like a crazy person and my scalp is the...

Posted by Aimeethatsme

0 Replies | Reply | Watch This Discussion Report This | Share this:Itchy Scalp I've been in remission for 5 years now. Lately I've been itching like a crazy person and my scalp is the...

Lupus fog

Any helpful hints?

Posted by YannisKoukla

1 Reply | Reply | Watch This Discussion Report This | Share this:Lupus fog Any helpful hints?

protein in urine

have lupus and for the past 3yrs no insurance about 2yrs ago i started having blood in my urine off and on....

Posted by An_251971

1 Reply | Reply | Watch This Discussion Report This | Share this:protein in urine have lupus and for the past 3yrs no insurance about 2yrs ago i started having blood in my urine off and on....

recently diagnosed with lupus

was just diagnosed with lupus in 2011, but things started way back in the early 70's when i found being in...

Posted by jayjedneak

1 Reply | Reply | Watch This Discussion Report This | Share this:recently diagnosed with lupus was just diagnosed with lupus in 2011, but things started way back in the early 70's when i found being in...

Lesion Scars

How do you hide or cover subcutaneous lesion scars? Thanks

Posted by mmcook

4 Replies | Reply | Watch This Discussion Report This | Share this:Lesion Scars How do you hide or cover subcutaneous lesion scars? Thanks

Needing Info On Knee Replacement Surg. & Lupus

Hello, I go by Marlene, I live in central Illinois. I was diagnosed in 1990 with Discoid with systemic...

Posted by mmcook

0 Replies | Reply | Watch This Discussion Report This | Share this:Needing Info On Knee Replacement Surg. & Lupus Hello, I go by Marlene, I live in central Illinois. I was diagnosed in 1990 with Discoid with systemic...

Test positive for Lupus - Now What

I just tested positive for Lupus, now I am waiting on other blood work results. How long before you have a...

Posted by Debbie1419

2 Replies | Reply | Watch This Discussion Report This | Share this:Test positive for Lupus - Now What I just tested positive for Lupus, now I am waiting on other blood work results. How long before you have a...

Chelation Therapy

Has anyone ever tried Chelation Therapy ?

Posted by songstress1

1 Reply | Reply | Watch This Discussion Report This | Share this:Chelation Therapy Has anyone ever tried Chelation Therapy ?

Why is the cause of Lupus unidentifiable.

I recently read information regarding penicilinand or, amoxcicilan being possible culprits in causing...

Posted by songstress1

1 Reply | Reply | Watch This Discussion Report This | Share this:Why is the cause of Lupus unidentifiable. I recently read information regarding penicilinand or, amoxcicilan being possible culprits in causing...

Why is the cause of Lupus unidentifiable.

I recently read information regarding penicilinand or, amoxcicilan being possible culprits in causing...

Posted by songstress1

0 Replies | Reply | Watch This Discussion Report This | Share this:Why is the cause of Lupus unidentifiable. I recently read information regarding penicilinand or, amoxcicilan being possible culprits in causing...

Does anyone else deal with SEVERE swelling?

My legs swell so bad I can barely stand to walk. I've also noticed in my hands and face. When I get like this...

To do what is right is not always easy, to do what is easy is not always right.

Posted by leecat41

3 Replies | Reply | Watch This Discussion Report This | Share this:Does anyone else deal with SEVERE swelling? My legs swell so bad I can barely stand to walk. I've also noticed in my hands and face. When I get like this...

pancreatic cancer and lupus

I was just diagnosed with dermatomyositis and lupus. My mother died from pancreatic cancer. Is there a...

Posted by musician1961

0 Replies | Reply | Watch This Discussion Report This | Share this:pancreatic cancer and lupus I was just diagnosed with dermatomyositis and lupus. My mother died from pancreatic cancer. Is there a...

pancreatic cancer and lupus

I was just diagnosed with dermatomyositis and lupus. My mother died from pancreatic cancer. Is there a...

Posted by musician1961

Help with close family member

I have a close family member that was diagnosed with lupus 5 or so years ago. They went through years of anti...

Posted by An_251827

0 Replies | Reply | Watch This Discussion Report This | Share this:Help with close family member I have a close family member that was diagnosed with lupus 5 or so years ago. They went through years of anti...

Ticks

I had a tick on me yesterday, & it had just buried in, so hadn't been on me very long. But, with lupus, do...

Posted by ssh49tn

1 Reply | Reply | Watch This Discussion Report This | Share this:Ticks I had a tick on me yesterday, & it had just buried in, so hadn't been on me very long. But, with lupus, do...

myathania gravis

hi all, i know that this community board is for lupus , but i was just wondering if anybody knows of any...

Posted by cwille

3 Replies | Reply | Watch This Discussion Report This | Share this:myathania gravis hi all, i know that this community board is for lupus , but i was just wondering if anybody knows of any...

so confused and frusterated

I have been through so many blood tests this month for just about everything including lupus. I have MS in my...

Posted by shelsore

1 Reply | Reply | Watch This Discussion Report This | Share this:so confused and frusterated I have been through so many blood tests this month for just about everything including lupus. I have MS in my...

numbness

I get numbness on the side of my calf and arms and fingers on/off is that lupus related that I have? MS runs in...

Posted by dozzi

1 Reply | Reply | Watch This Discussion Report This | Share this:numbness I get numbness on the side of my calf and arms and fingers on/off is that lupus related that I have? MS runs in...

Any tips for teens with lupus?

Hi, I'm new to this site, but not lupus. I'm 17, and have had lupus for 5 years. My symptoms had been better...

Posted by LindseyJ

1 Reply | Reply | Watch This Discussion Report This | Share this:Any tips for teens with lupus? Hi, I'm new to this site, but not lupus. I'm 17, and have had lupus for 5 years. My symptoms had been better...

Any tips for teens with lupus?

Hi, I'm new to this site, but not lupus. I'm 17, and have had lupus for 5 years. My symptoms had been better...

Posted by LindseyJ

2 Replies | Reply | Watch This Discussion Report This | Share this:Any tips for teens with lupus? Hi, I'm new to this site, but not lupus. I'm 17, and have had lupus for 5 years. My symptoms had been better...

benlysta

I know this forum is 2 years old, but hopefully someone out there can help me. Should I be booking the...

Posted by Coffeecup90210

0 Replies | Reply | Watch This Discussion Report This | Share this:benlysta I know this forum is 2 years old, but hopefully someone out there can help me. Should I be booking the...

Wife with Lupus won't see doctor

My wife was unofficially diagnosed with Lupus about 30 years ago; she has never been officially diagnosed....

Posted by An_251592

1 Reply | Reply | Watch This Discussion Report This | Share this:Wife with Lupus won't see doctor My wife was unofficially diagnosed with Lupus about 30 years ago; she has never been officially diagnosed....

Shingles with lupus

I had my first outbreak of shingles at age 12, long before my diagnosis of lupus. I'm sure that among many...

Posted by carylea

1 Reply | Reply | Watch This Discussion Report This | Share this:Shingles with lupus I had my first outbreak of shingles at age 12, long before my diagnosis of lupus. I'm sure that among many...

Includes Expert Content

Shingles with lupus

I had my first outbreak of shingles at age 12, long before my diagnosis of lupus. I'm sure that among many...

Posted by carylea

2 Replies | Reply | Watch This Discussion Report This | Share this:Shingles with lupus I had my first outbreak of shingles at age 12, long before my diagnosis of lupus. I'm sure that among many...

What to think?

Hello! First, I want to say I'm sorry for my bad english, I'm french and I dont have many occasions to...

Posted by Martine_D

Hello!

First, I want to say I'm sorry for my bad english, I'm french and I dont have many occasions to practice. My question is : since many years I'm having joint pain, redness on my cheeks and nose going a bit up so it looks like a butterfly but not all the time and it's worst when I go under the sun. I dont talk about the extrem fatigue, hair loss, short time memory loss, looking for my words and a strange skin trouble. Years ago, the GP I had at that time told me it was nothing but I still dont know what it is : my skin open so I have an open hole but no infection and no pain! It's mostly on my belly but I've had it to on the top of my thigh. The GP told me it would go away by itself and it did but I have no clue what it is! When it's cold my fingers are frozen and if I touch someting cold I have what I call freezing pain.

I dont mention almost daily migrain and I observed that each time I have a pain crisis, I have sores in my nose and on my small lips (that GP had told me to be a pimple in 2005 and I never asked again but had it every time I had a pain crisis). Just so you know, I changed GP in 2010 after being a week to hospital for sever back pain but a day before the GP said it was all in my head and finaly was osteoarthritis.

I also often have swollen glands in the neck and had one removed 2 years ago. No cancer but it was not normal, it was ''granular". At that time, blood tests where ok. Last year I had enough and went back to a rhumatologist. She sent me for blood tests and I have inflammation and with the history, she think about lupus or spondylitis. More blood tests and I'm HLA B27 positive so she go for spondylitis and ask for an MRI to confirme but this one is not concluent.

I've searched the web and found that it's possible to have lupus and be HLA B27 positive. Is anybody here is in that case? I'm actualy treated with sulfasalazine but no improvement. I alos take ibuprofen and dilaudid when the pain is just to much and I just cant cope with it anymore. A few of my friends that where nurses told me it looks a lot like lupus.

Do you think I should ask my rhumatologist to consider lupus again even if I'm HLA B27 positive? Thanks for helping me see through it.

MartineView Thread

Posted by Martine_D

2 Replies | Reply | Watch This Discussion Report This | Share this:What to think? Hello! First, I want to say I'm sorry for my bad english, I'm french and I dont have many occasions to...

Dietary Changes

Hi! I'm back on the site after a very long absence. Between health, work, and family, I was too...

Posted by HealthyGirl2B

1 Reply | Reply | Watch This Discussion Report This | Share this:Dietary Changes Hi! I'm back on the site after a very long absence. Between health, work, and family, I was too...

I'm not crazy!

I can't tell you what it felt like to read about lupus and to know that I am not crazy and that all of the...

Posted by TTMarie

3 Replies | Reply | Watch This Discussion Report This | Share this:I'm not crazy! I can't tell you what it felt like to read about lupus and to know that I am not crazy and that all of the...

Rash?I

I've been having this recurring rash for almost 4 weeks now. It flares mostly at night while I am sleeping....

Posted by An_251467

2 Replies | Reply | Watch This Discussion Report This | Share this:Rash?I I've been having this recurring rash for almost 4 weeks now. It flares mostly at night while I am sleeping....

Lupus questions

Hello , Im new here and new on this journey .right now I have just had a blood test that confirmed I am...

Posted by Bennett1229

Hello , Im new here and new on this journey .right now I have just had a blood test that confirmed I am positive for lupus . I am seeing an eye dr today and a specialist this sat .i about a yr ago I started having anxiety attacks ( or so they said ) out of the blue for no reason and several times thought I was having a heartattack ..also I was having numbness in my left eye left hand and sometimes left knee .. Went to the dr and they said stress depression ..and gave me a pill for anxiety .. As I refused depression meds . I don't like them .went back about 4 months later blood work seemed fine not sure what all he checked though . My liver enzymes always stay elevated and high potassium for some reason ... He didn't seemed concerned .. 4 weeks ago I went in and told him to check my hormones , thyroid and everything else ..cuz I can barely get out of bed most days .. And I have said this all along , but had gotten worse .also had gained about 30 pounds and my eating habits hadn't changed alot ..2 weeks ago when I went in he said I tested positive for lupus .i had been complaint I thought it was fibro..my hands get so bad at times and my knees they feel as if they are gonna crack ..if my hands get cold the pain is very intense .my upper back feels like I carry bricks on my shoulder s up into m y neck ..even folding laundry hurts my chest at times and arms and shoulders...for yrs I have been told its all stress and ibs ,and panic attacks ..I don't think so...I don't really get rashes on my body I was out in the sun alot yesterday cutting grass my face did get some sun and I did get a few red like boils kinda on 1 side of my cheek never did that before ..but it's not the rash that I have seen people get ..I am like I said seeing eye dr today to check eyes I only have problem w nerve twitches and numbness in my left eye ..my memory is crazy .i feel like I live in fog ..I am only 39 ..does this sound like what you all experience ?? I also seem to have alot of pain in my left side under rib cage in my belly ..it makes a awful noise alot of times and just hurts ..as well as my lower back. Kidney area.. I also seen on dr charts my chest ex ray revel eased osteo seems to appear in chest and lower back and they said it should be further looked into ..my dr never even mentioned it to me ,but I see it online at the website in my files ... As well as my red and white blood cells low and red elevated I think ..my blood pressure was really low as well w a low grade fever ...I just know I push myself everyday to go for my family and hubby , but I'm getting really tired ..but to them I look fine and they make me feel like I st in my head if I get moving I will feel better ,, at times I do but others I can't wait till 8 pm to get in the bed ,,I don't sleep that great most nights ,I sweat alot and toss and turn , the heat pad does help .... Just wanted to share my story and hear your thoughts. Thank you SherriView Thread

Posted by Bennett1229

1 Reply | Reply | Watch This Discussion Report This | Share this:Lupus questions Hello , Im new here and new on this journey .right now I have just had a blood test that confirmed I am...

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