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Reacurring UTI's!

Anyone else having this problem? It has been since the Beginning of November when we came back from Fl. I...

Posted by therese0723

2 Replies | Reply | Watch This Discussion Report This | Share this:Reacurring UTI's! Anyone else having this problem? It has been since the Beginning of November when we came back from Fl. I...

HELP?

Looking for any ideas or advice? 30/f with severe muscle pain, burning (like lactic acid buildup) in shoulder...

Posted by dev1122

1 Reply | Reply | Watch This Discussion Report This | Share this:HELP? Looking for any ideas or advice? 30/f with severe muscle pain, burning (like lactic acid buildup) in shoulder...

No diagnosis... no sign of one...

I have been experiencing symptoms of an autoimmune disorder for about a year and a half now... Ive been to...

Posted by An_251031

Take the Poll

No "definitive" diagnosis... seek new Rheumo?

2 Replies | Reply | Watch This Discussion Report This | Share this:No diagnosis... no sign of one... I have been experiencing symptoms of an autoimmune disorder for about a year and a half now... Ive been to...

Lower Body Temperature?

I have had Lupus now for 10 years, but something I have begun to notice has raised some questions. I...

Posted by queenoflupus

1 Reply | Reply | Watch This Discussion Report This | Share this:Lower Body Temperature? I have had Lupus now for 10 years, but something I have begun to notice has raised some questions. I...

HELP

hv been diagnosed with lupus and fybormialgia(spelling is bad)and on top of this i have multiple other...

Posted by raquelharris

1 Reply | Reply | Watch This Discussion Report This | Share this:HELP hv been diagnosed with lupus and fybormialgia(spelling is bad)and on top of this i have multiple other...

auto immune disease diagnosis

Hello all, I am new with a long complicated history but a biopsy found I have sarcoidosis. My doc...

Posted by findingpeacewithpain

2 Replies | Reply | Watch This Discussion Report This | Share this:auto immune disease diagnosis Hello all, I am new with a long complicated history but a biopsy found I have sarcoidosis. My doc...

labs all negative when previously positive

I recently had to change Rheumy's and had a first appointment and many labs and xrays done. My new Dr. did...

Posted by Anon_5449

0 Replies | Reply | Watch This Discussion Report This | Share this:labs all negative when previously positive I recently had to change Rheumy's and had a first appointment and many labs and xrays done. My new Dr. did...

Is it Lupus?

Hi - I am a 43 yr. old athletic female in good shape but I have started falling apart! I have gradually...

Posted by sportschick7

Hi - I am a 43 yr. old athletic female in good shape but I have started falling apart! I have gradually started passing on my workouts because I feel lousy after them with terrible muscle aches and weakness, I get lots of headaches and am very tired all the time. This all started gradually about 6 years ago. Before that I never went to the dr. Now I have a heart dr. (for tachycardia), a urologist (for medullary sponge kidney), I've thrown my back out several times and basically I just feel lousy all the time! I play competitive tennis and workout at least 3x/week but now I have been gradually passing on the workouts because I am too tired or because I know that it is going to make me feel lousy and tired later. My knees have been really aching and burning. I just don't feel like myself at all! My husband is chalking it up to old age but I feel in my heart of hearts that there is more to it than that. I have been to dr. after dr. trying to find answers but its always not definitive. 2 weeks ago I went to the emergency room because I had a muscle spasm in my neck and couldn't swallow - that was scary! They found that I was low in potassium so gave me potassium and sent me on my way. On my follow up w/ my gp I asked them to check for an autoimmune issue and my ana came back as 1:160 speckled. After researching a bit about lupus I did recall also that at Thanksgiving we went on a cruise and when I got back I had an itchy rash across my abdomen area that did go away. At the time I was on meds for a bladder infection that caused sun - sensitivity so i just chalked it up as that but now I'm not sure. My dr.s treatment plan is wait a month and then retest before she sends me to a rheumatologist but the wait is killing me as always! My other blood work was within normal range like the sed rate and rheumatoid. I am just hoping that there is someone that will read this and please give me insight. I am so tired of not feeling good and going to the dr. When I look at my mom whose in her 70's I think she is looking healthier than me! There is definitely something wrong.......could this be lupus?View Thread

Posted by sportschick7

1 Reply | Reply | Watch This Discussion Report This | Share this:Is it Lupus? Hi - I am a 43 yr. old athletic female in good shape but I have started falling apart! I have gradually...

Worst week EVER!!!

On Monday we had to put our 15 1/2 year old border collie Annie to sleep because her back end and legs lost...

With love, with patience and with faith, we'll make our way.

Posted by Lupylisa44

0 Replies | Reply | Watch This Discussion Report This | Share this:Worst week EVER!!! On Monday we had to put our 15 1/2 year old border collie Annie to sleep because her back end and legs lost...

about lupus fatigue

I haven't been here in awhile..so sorry. Had surgery, been recovering..doing ok! Alot has changed..on...

Posted by jujubeee714

0 Replies | Reply | Watch This Discussion Report This | Share this:about lupus fatigue I haven't been here in awhile..so sorry. Had surgery, been recovering..doing ok! Alot has changed..on...

hair loss

I have discoid lupus and have had it for 20 years - I have the butterfly rash on my face and use an ointment...

Posted by reneebair

0 Replies | Reply | Watch This Discussion Report This | Share this:hair loss I have discoid lupus and have had it for 20 years - I have the butterfly rash on my face and use an ointment...

SUNBURN & LUPUS

Hi I was diagnosed with Lupus in 1993 when I was 17. I have had problems some worst than others, this weekend...

Posted by SHILLITO

0 Replies | Reply | Watch This Discussion Report This | Share this:SUNBURN & LUPUS Hi I was diagnosed with Lupus in 1993 when I was 17. I have had problems some worst than others, this weekend...

Lupus treatment

Hi, I will be starting Benlysta soon and I have had multiple anaphylactic reactions to many medications. Any...

Posted by mantra

0 Replies | Reply | Watch This Discussion Report This | Share this:Lupus treatment Hi, I will be starting Benlysta soon and I have had multiple anaphylactic reactions to many medications. Any...

Lupus treatment

Hi, I will be starting Benlysta soon and I have had multiple anaphylactic reactions to many medications. Any...

Posted by mantra

0 Replies | Reply | Watch This Discussion Report This | Share this:Lupus treatment Hi, I will be starting Benlysta soon and I have had multiple anaphylactic reactions to many medications. Any...

Kidney Biopsy...YUK!

Could use some prayers and good thoughts!!! Went to the nephrologist today and she is (strongly) urging me...

With love, with patience and with faith, we'll make our way.

Posted by Lupylisa44

1 Reply | Reply | Watch This Discussion Report This | Share this:Kidney Biopsy...YUK! Could use some prayers and good thoughts!!! Went to the nephrologist today and she is (strongly) urging me...

Lupus and Essure Proceedure

I was diagnosed with Lupus and RA in 2011. I am wondering what the risks are by having the Essure Proceedure...

Posted by CRMoreland

2 Replies | Reply | Watch This Discussion Report This | Share this:Lupus and Essure Proceedure I was diagnosed with Lupus and RA in 2011. I am wondering what the risks are by having the Essure Proceedure...

Survey Opportunity with Raffle

Hello Everyone![br>[br>My name is Rhianna Hibbler, and I am a Brandeis University senior completing...

Posted by moonfingers

0 Replies | Reply | Watch This Discussion Report This | Share this:Survey Opportunity with Raffle Hello Everyone![br>[br>My name is Rhianna Hibbler, and I am a Brandeis University senior completing...

Percocet Dependancy

I've been taking 5/325 mg Percocet once a day for about one year. I've noticed that if I take two per day I...

Posted by Lisatru62

2 Replies | Reply | Watch This Discussion Report This | Share this:Percocet Dependancy I've been taking 5/325 mg Percocet once a day for about one year. I've noticed that if I take two per day I...

Stenosis & Lupus....

I need this question answered asap if able please! If a dr knows a person has Stenosis does that mean...

Posted by DennisandJessica

2 Replies | Reply | Watch This Discussion Report This | Share this:Stenosis & Lupus.... I need this question answered asap if able please! If a dr knows a person has Stenosis does that mean...

lupus

My mom had open heart surgrey 2 years ago she got real sick with mrsa she has had 6 more surgreys since now...

Posted by stephenc421

0 Replies | Reply | Watch This Discussion Report This | Share this:lupus My mom had open heart surgrey 2 years ago she got real sick with mrsa she has had 6 more surgreys since now...

Disease and the human condition

This has some congruency to Lupus, but this is a simple observation. Isn't it odd that animals, generally...

Posted by All_is_One

0 Replies | Reply | Watch This Discussion Report This | Share this:Disease and the human condition This has some congruency to Lupus, but this is a simple observation. Isn't it odd that animals, generally...

discoid lupus

My mom, age 78, was diagnosed with discoid lupus at the U of MI over 12 years ago. This type seems to attack her...

Posted by tjgem

0 Replies | Reply | Watch This Discussion Report This | Share this:discoid lupus My mom, age 78, was diagnosed with discoid lupus at the U of MI over 12 years ago. This type seems to attack her...

New Here

Hello. I'm new here and not quite sure how this group works; do we just jump in and respond to posts? Or,...

Posted by GreyEyedMuse

1 Reply | Reply | Watch This Discussion Report This | Share this:New Here Hello. I'm new here and not quite sure how this group works; do we just jump in and respond to posts? Or,...

Tumid vs. CLE vs. wrong Diagnosis

I'm 55, and just got diagnosed with CLE. Problem is the pain in my body, sweats and the fatigue just doesn't...

Posted by An_250626

I'm 55, and just got diagnosed with CLE. Problem is the pain in my body, sweats and the fatigue just doesn't go along with Dx. ANA tests are normal. Late 2011, reocurring Strep B UTI's causing alot of the same symptoms above. The first was treated w/ 2000 mg. of penicillin a day for 10 days, wait a week after before calling my Dr. that nothing had changed. Did culture again and same Strp B only the numbers had ticemiadoubled. He sent me to Urologist & an Infectious Diease Dr., which by the time I got in to the see the Urologist first, he took one look at me & told husband to take me to ER. Admitted and fould I had Bacterial Septicemia. treated with Rocphen IV. Test for Endocarditis ECHO & TEE negative. Sent home with pic line and continued IV meds for 3 weeks. Felt best I'd felt in months. After IV meds stopped within 1-month had rash all over back & abdomen. Ifectious Diease Dr. said it was pityous rosea and not to worry it would go away. It did not, rash became lesions & sores. Had many one sore cultured for MRSA, negative. Went to Dermatologists had many biopsieswent on for months, from winter to summer. Biopsies indicated deep lymphatic imnflammations but never concluded answers. Second opinions, and thirdly went to Mayo Derm and larger biopsies indicated Tumid and after several creams with neg results, started me on Plaquenil. Finally got in to see Rheumetologist who has done all the ANA studies, with neg. results, added steroids but rash only got worse and fatigue and joint pain as well. She added Methotrexate2.5 mg tabs 4/wk after 3 weeks rash was getting better and with steroids 30mg/day so was fatigue & pain. Got Acute Bronchitis & stopped Meth until infection over. Rash turned into lesions as it took over a month to get over infection. 4 months later 25 lbs heavier, the added weight gain gave me shortness of breath, more sweats, and joint pain came back. Finally she agreed to wean me off since they weren't helping my skin. Increased the Meth to 6/week. Now after 2nd week of this, fatigue not better and pain just seems to migrate thru my body at times I just cry. Two years ago, my son-in-law called me the "energizer bunny". I was born and raised in the south where its always hot & humid and spent my summers playing on at the beach, now with my grandchildren; till the last 14 months; now I'm on medical leave from work. Take Synthroid (Hypo-thyroid) Ultram for degenerative disk cervical & arthistis in low back for 10 yrs+.Still use HRT in patch form for hot flashes. Complete Hysterect 25 yrs. ago, ovaries died, so did gallbladder. Have had 2 tears on right rotator cuff over the years, repaired in 2004 and 20012 and I do not play any sports that would cause this; also left one is partially torn. So frustrated doing research & can't find a doctor who will look at this history as a whole or help me to understand the meds prescribed are right, the pain is expected as well as the fatigue. Have Vit. D def., which I take supplement for as well as E, Fish Oils, Flaxseed, Vit. E Folic Acid and Multi-B. Anyone else similar to this have a suggestion. Can't get back into Mayo for complete work-up, stopped making appts. & waiting list for PCP & Internist & Rheum. Deparments...........not enough docs to support need, I suppose.View Thread

Posted byAn_250626

2 Replies | Reply | Watch This Discussion Report This | Share this:Tumid vs. CLE vs. wrong Diagnosis I'm 55, and just got diagnosed with CLE. Problem is the pain in my body, sweats and the fatigue just doesn't...

Lupus and RA/Fibromyalgia

I am trying to help a young girl who has been diagnosed with RA. She is afraid that she also has Lupus. Is...

Posted by fibronana

2 Replies | Reply | Watch This Discussion Report This | Share this:Lupus and RA/Fibromyalgia I am trying to help a young girl who has been diagnosed with RA. She is afraid that she also has Lupus. Is...

Includes Expert Content

Another question Dr V.

I know you have some experience with alternative treatments and was wondering if you know of any for high...

With love, with patience and with faith, we'll make our way.

Posted by Lupylisa44

5 Replies | Reply | Watch This Discussion Report This | Share this:Another question Dr V. I know you have some experience with alternative treatments and was wondering if you know of any for high...

Urine protein increase is scaring me!

Just had to vent a little! My urine protein is up to 4300 mg which is the highest it has been in 12 years!...

With love, with patience and with faith, we'll make our way.

Posted by Lupylisa44

2 Replies | Reply | Watch This Discussion Report This | Share this:Urine protein increase is scaring me! Just had to vent a little! My urine protein is up to 4300 mg which is the highest it has been in 12 years!...

Frustrated and Confused

Hello Everyone! About 3 years ago my MD ran some blood tests to figure out what is going on with my body....

Posted by confused39

0 Replies | Reply | Watch This Discussion Report This | Share this:Frustrated and Confused Hello Everyone! About 3 years ago my MD ran some blood tests to figure out what is going on with my body....

Kidneys & Lupus

so my doctor thinks I have lupus. I woke up 13 days ago with horrible bback pain. the pain has spread througout...

Posted by CMNava

0 Replies | Reply | Watch This Discussion Report This | Share this:Kidneys & Lupus so my doctor thinks I have lupus. I woke up 13 days ago with horrible bback pain. the pain has spread througout...

HELP! Not sure if I am over reacting

Hello- So my doc is sending me to a specialist for lupus. I dont know much about it but the more I read on it...

Posted by An_250540

Hello- So my doc is sending me to a specialist for lupus. I dont know much about it but the more I read on it I feel I do have it. I would like to hear back from others that have lupus or if anyone is going thru something similiar as me. Any feedback would be great. First let me say that last year i got really dizzy, and would get really bad stomach pains after eating. nothing in particiular - it would be random. My doc told me I should try a gluten free diet. It seemed to help. Every now and then I would still feel the same but I just assumed i ate something with gluten. back to the present it started on 1/20/2013- I woke to a itchy feeling on my back and chest. I had a rash on my front and back. then the next day it went to my legs and arms and days passed then was on my face. I went to my doc several times and they thought I had scabies or fleas. did the whole treatment and no change. i was the only one in a household of 5 that had this. so finally went to see a dermo doctor on 1/31, and she confirmed it was no bug bite. she said she wasnt sure but gave me steroids and said maybe it was a virus going around. after a few days the itching stopped. So then on 2/10 I was cleaning the house and all of a sudden got a not so good feeling. I felt like I had to throw up. I layed down for a hour and when I tried to get up I had a horrible pain in my lower back. a few hours passed and I litterally could not move. This happened 3 times that day. I was rushed to the ER they thought I had stones and a kidney infection. I was treated with Macrobid for 10days. Took all of my meds and still feel my kidneys achy. I have this achy feeling all over my body. it started with my back, then my legs and arms. And now my feet and fingers. I get these headaches out of no where. I am just so tired of all of this. what do you all think?? Could I really have lupus. sorry for the long history- thank youView Thread

Posted byAn_250540

0 Replies | Reply | Watch This Discussion Report This | Share this:HELP! Not sure if I am over reacting Hello- So my doc is sending me to a specialist for lupus. I dont know much about it but the more I read on it...

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