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lupus

My mom had open heart surgrey 2 years ago she got real sick with mrsa she has had 6 more surgreys since now...

Posted by stephenc421

0 Replies | Reply | Watch This Discussion Report This | Share this:lupus My mom had open heart surgrey 2 years ago she got real sick with mrsa she has had 6 more surgreys since now...

Disease and the human condition

This has some congruency to Lupus, but this is a simple observation. Isn't it odd that animals, generally...

Posted by All_is_One

0 Replies | Reply | Watch This Discussion Report This | Share this:Disease and the human condition This has some congruency to Lupus, but this is a simple observation. Isn't it odd that animals, generally...

discoid lupus

My mom, age 78, was diagnosed with discoid lupus at the U of MI over 12 years ago. This type seems to attack her...

Posted by tjgem

0 Replies | Reply | Watch This Discussion Report This | Share this:discoid lupus My mom, age 78, was diagnosed with discoid lupus at the U of MI over 12 years ago. This type seems to attack her...

New Here

Hello. I'm new here and not quite sure how this group works; do we just jump in and respond to posts? Or,...

Posted by GreyEyedMuse

1 Reply | Reply | Watch This Discussion Report This | Share this:New Here Hello. I'm new here and not quite sure how this group works; do we just jump in and respond to posts? Or,...

Tumid vs. CLE vs. wrong Diagnosis

I'm 55, and just got diagnosed with CLE. Problem is the pain in my body, sweats and the fatigue just doesn't...

Posted by An_250626

I'm 55, and just got diagnosed with CLE. Problem is the pain in my body, sweats and the fatigue just doesn't go along with Dx. ANA tests are normal. Late 2011, reocurring Strep B UTI's causing alot of the same symptoms above. The first was treated w/ 2000 mg. of penicillin a day for 10 days, wait a week after before calling my Dr. that nothing had changed. Did culture again and same Strp B only the numbers had ticemiadoubled. He sent me to Urologist & an Infectious Diease Dr., which by the time I got in to the see the Urologist first, he took one look at me & told husband to take me to ER. Admitted and fould I had Bacterial Septicemia. treated with Rocphen IV. Test for Endocarditis ECHO & TEE negative. Sent home with pic line and continued IV meds for 3 weeks. Felt best I'd felt in months. After IV meds stopped within 1-month had rash all over back & abdomen. Ifectious Diease Dr. said it was pityous rosea and not to worry it would go away. It did not, rash became lesions & sores. Had many one sore cultured for MRSA, negative. Went to Dermatologists had many biopsieswent on for months, from winter to summer. Biopsies indicated deep lymphatic imnflammations but never concluded answers. Second opinions, and thirdly went to Mayo Derm and larger biopsies indicated Tumid and after several creams with neg results, started me on Plaquenil. Finally got in to see Rheumetologist who has done all the ANA studies, with neg. results, added steroids but rash only got worse and fatigue and joint pain as well. She added Methotrexate2.5 mg tabs 4/wk after 3 weeks rash was getting better and with steroids 30mg/day so was fatigue & pain. Got Acute Bronchitis & stopped Meth until infection over. Rash turned into lesions as it took over a month to get over infection. 4 months later 25 lbs heavier, the added weight gain gave me shortness of breath, more sweats, and joint pain came back. Finally she agreed to wean me off since they weren't helping my skin. Increased the Meth to 6/week. Now after 2nd week of this, fatigue not better and pain just seems to migrate thru my body at times I just cry. Two years ago, my son-in-law called me the "energizer bunny". I was born and raised in the south where its always hot & humid and spent my summers playing on at the beach, now with my grandchildren; till the last 14 months; now I'm on medical leave from work. Take Synthroid (Hypo-thyroid) Ultram for degenerative disk cervical & arthistis in low back for 10 yrs+.Still use HRT in patch form for hot flashes. Complete Hysterect 25 yrs. ago, ovaries died, so did gallbladder. Have had 2 tears on right rotator cuff over the years, repaired in 2004 and 20012 and I do not play any sports that would cause this; also left one is partially torn. So frustrated doing research & can't find a doctor who will look at this history as a whole or help me to understand the meds prescribed are right, the pain is expected as well as the fatigue. Have Vit. D def., which I take supplement for as well as E, Fish Oils, Flaxseed, Vit. E Folic Acid and Multi-B. Anyone else similar to this have a suggestion. Can't get back into Mayo for complete work-up, stopped making appts. & waiting list for PCP & Internist & Rheum. Deparments...........not enough docs to support need, I suppose.View Thread

Posted byAn_250626

2 Replies | Reply | Watch This Discussion Report This | Share this:Tumid vs. CLE vs. wrong Diagnosis I'm 55, and just got diagnosed with CLE. Problem is the pain in my body, sweats and the fatigue just doesn't...

Lupus and RA/Fibromyalgia

I am trying to help a young girl who has been diagnosed with RA. She is afraid that she also has Lupus. Is...

Posted by fibronana

2 Replies | Reply | Watch This Discussion Report This | Share this:Lupus and RA/Fibromyalgia I am trying to help a young girl who has been diagnosed with RA. She is afraid that she also has Lupus. Is...

Includes Expert Content

Another question Dr V.

I know you have some experience with alternative treatments and was wondering if you know of any for high...

With love, with patience and with faith, we'll make our way.

Posted by Lupylisa44

5 Replies | Reply | Watch This Discussion Report This | Share this:Another question Dr V. I know you have some experience with alternative treatments and was wondering if you know of any for high...

Urine protein increase is scaring me!

Just had to vent a little! My urine protein is up to 4300 mg which is the highest it has been in 12 years!...

With love, with patience and with faith, we'll make our way.

Posted by Lupylisa44

2 Replies | Reply | Watch This Discussion Report This | Share this:Urine protein increase is scaring me! Just had to vent a little! My urine protein is up to 4300 mg which is the highest it has been in 12 years!...

Frustrated and Confused

Hello Everyone! About 3 years ago my MD ran some blood tests to figure out what is going on with my body....

Posted by confused39

0 Replies | Reply | Watch This Discussion Report This | Share this:Frustrated and Confused Hello Everyone! About 3 years ago my MD ran some blood tests to figure out what is going on with my body....

Kidneys & Lupus

so my doctor thinks I have lupus. I woke up 13 days ago with horrible bback pain. the pain has spread througout...

Posted by CMNava

0 Replies | Reply | Watch This Discussion Report This | Share this:Kidneys & Lupus so my doctor thinks I have lupus. I woke up 13 days ago with horrible bback pain. the pain has spread througout...

HELP! Not sure if I am over reacting

Hello- So my doc is sending me to a specialist for lupus. I dont know much about it but the more I read on it...

Posted by An_250540

Hello- So my doc is sending me to a specialist for lupus. I dont know much about it but the more I read on it I feel I do have it. I would like to hear back from others that have lupus or if anyone is going thru something similiar as me. Any feedback would be great. First let me say that last year i got really dizzy, and would get really bad stomach pains after eating. nothing in particiular - it would be random. My doc told me I should try a gluten free diet. It seemed to help. Every now and then I would still feel the same but I just assumed i ate something with gluten. back to the present it started on 1/20/2013- I woke to a itchy feeling on my back and chest. I had a rash on my front and back. then the next day it went to my legs and arms and days passed then was on my face. I went to my doc several times and they thought I had scabies or fleas. did the whole treatment and no change. i was the only one in a household of 5 that had this. so finally went to see a dermo doctor on 1/31, and she confirmed it was no bug bite. she said she wasnt sure but gave me steroids and said maybe it was a virus going around. after a few days the itching stopped. So then on 2/10 I was cleaning the house and all of a sudden got a not so good feeling. I felt like I had to throw up. I layed down for a hour and when I tried to get up I had a horrible pain in my lower back. a few hours passed and I litterally could not move. This happened 3 times that day. I was rushed to the ER they thought I had stones and a kidney infection. I was treated with Macrobid for 10days. Took all of my meds and still feel my kidneys achy. I have this achy feeling all over my body. it started with my back, then my legs and arms. And now my feet and fingers. I get these headaches out of no where. I am just so tired of all of this. what do you all think?? Could I really have lupus. sorry for the long history- thank youView Thread

Posted byAn_250540

0 Replies | Reply | Watch This Discussion Report This | Share this:HELP! Not sure if I am over reacting Hello- So my doc is sending me to a specialist for lupus. I dont know much about it but the more I read on it...

Teeth Pain???

Okay, is this possibly my imagination or what? Several of my teeth are not only in pain, but pretty loose....

Posted by 1stLadyDi

6 Replies | Reply | Watch This Discussion Report This | Share this:Teeth Pain??? Okay, is this possibly my imagination or what? Several of my teeth are not only in pain, but pretty loose....

false relief

I was diagnosed with systemic lupus more than 2 years ago. It was a great relief at that time because I knew...

Posted by obxcats

2 Replies | Reply | Watch This Discussion Report This | Share this:false relief I was diagnosed with systemic lupus more than 2 years ago. It was a great relief at that time because I knew...

How do you know about internal damage after flare?

I've only been dealing with my condition for just over 2 years. I am really curious as to how you know if you...

Posted by 1stLadyDi

9 Replies | Reply | Watch This Discussion Report This | Share this:How do you know about internal damage after flare? I've only been dealing with my condition for just over 2 years. I am really curious as to how you know if you...

Feavers ?

now I know feavers come along with flairs but recently i cant seem to get rid of it (this is my 2nd...

Posted by mommawithlupus87

Take the Poll

are feavers normal in your flair ?

0 Replies | Reply | Watch This Discussion Report This | Share this:Feavers ? now I know feavers come along with flairs but recently i cant seem to get rid of it (this is my 2nd...

Balance issues

I CAN'T STOP FALLING!!!! I was diagnosed with lupus in 2003 when I was 19 years old. At first I was pumped...

Posted by Crys82

0 Replies | Reply | Watch This Discussion Report This | Share this:Balance issues I CAN'T STOP FALLING!!!! I was diagnosed with lupus in 2003 when I was 19 years old. At first I was pumped...

Neuro. symptoms with Lupus?

Hi everyone. I was just diagnosed with Lupus yesterday and found this group. I have had severe middle back pain...

Posted by mybdy

2 Replies | Reply | Watch This Discussion Report This | Share this:Neuro. symptoms with Lupus? Hi everyone. I was just diagnosed with Lupus yesterday and found this group. I have had severe middle back pain...

Includes Expert Content

Question for Dr. V

My doctors are stumped and I could use your input. My lupus/nephritis is flaring. My serum creatine...

With love, with patience and with faith, we'll make our way.

Posted by Lupylisa44

3 Replies | Reply | Watch This Discussion Report This | Share this:Question for Dr. V My doctors are stumped and I could use your input. My lupus/nephritis is flaring. My serum creatine...

Falling

I have had 2 pretty bad falls recently, & have no idea of what is causing them. I had gone to the ER about...

Posted by ssh49tn

2 Replies | Reply | Watch This Discussion Report This | Share this:Falling I have had 2 pretty bad falls recently, & have no idea of what is causing them. I had gone to the ER about...

lupus

Have an abcess on my gums went to the oral surgeon he took care of it thought it was ok but no it is still...

Posted by dozzi

4 Replies | Reply | Watch This Discussion Report This | Share this:lupus Have an abcess on my gums went to the oral surgeon he took care of it thought it was ok but no it is still...

Going to another Doctor

I have been in and out of Doctors offices' for way to long , keep getting passed around to new Doctors , I...

Posted by Blakelyjoe

2 Replies | Reply | Watch This Discussion Report This | Share this:Going to another Doctor I have been in and out of Doctors offices' for way to long , keep getting passed around to new Doctors , I...

Worn to a Nub

As many of my fellow Lupus sufferers know, we just get worn to a nub. I've been battling bad news, financial...

Posted by Lisatru62

4 Replies | Reply | Watch This Discussion Report This | Share this:Worn to a Nub As many of my fellow Lupus sufferers know, we just get worn to a nub. I've been battling bad news, financial...

essential oils

Has anyone ever used one of my friends thinks this will help she uses them and has a great response...

Posted by mommawithlupus87

0 Replies | Reply | Watch This Discussion Report This | Share this:essential oils Has anyone ever used one of my friends thinks this will help she uses them and has a great response...

Lupus is flaring

Hey everyone Sorry I haven't been around. I am not feeling that great and just got labs back with not good...

With love, with patience and with faith, we'll make our way.

Posted by Lupylisa44

1 Reply | Reply | Watch This Discussion Report This | Share this:Lupus is flaring Hey everyone Sorry I haven't been around. I am not feeling that great and just got labs back with not good...

Senear Usher Syndrome AKA Pemphigus Erythematosis

I have SLE and just got my third circly (discoid shaped) weeping deep skin necrosis looking ugly itchy...

Posted by jujubeee714

0 Replies | Reply | Watch This Discussion Report This | Share this:Senear Usher Syndrome AKA Pemphigus Erythematosis I have SLE and just got my third circly (discoid shaped) weeping deep skin necrosis looking ugly itchy...

Lupus symptoms?

HI for about 2-3 weeks my whole body is SO achy I am almost in tears I can hardly move at all and when I...

Posted by freckles1963

0 Replies | Reply | Watch This Discussion Report This | Share this:Lupus symptoms? HI for about 2-3 weeks my whole body is SO achy I am almost in tears I can hardly move at all and when I...

Stomach Virus - Who would've thought...

I just got out of the hospital after a 6 day stay. Unbelieveable! Who would've thought that contracting a...

Posted by 1stLadyDi

0 Replies | Reply | Watch This Discussion Report This | Share this:Stomach Virus - Who would've thought... I just got out of the hospital after a 6 day stay. Unbelieveable! Who would've thought that contracting a...

need help with diagnosis

I was diagnosed with lupus 7 years ago after bouncing from one Reumy to another. Started a conservitive...

Posted by DMAnderson

1 Reply | Reply | Watch This Discussion Report This | Share this:need help with diagnosis I was diagnosed with lupus 7 years ago after bouncing from one Reumy to another. Started a conservitive...

coming off Prednisone

I have been on Prednisone and just tapered off . I feel like I was tossed off of a moving bus . I hurt to be...

Posted by Blakelyjoe

3 Replies | Reply | Watch This Discussion Report This | Share this:coming off Prednisone I have been on Prednisone and just tapered off . I feel like I was tossed off of a moving bus . I hurt to be...

urgent Help please

I have lupus and R.A. among a lot of things And In the past week i have been treated for a pretty bad...

Posted by dwilliams0609

1 Reply | Reply | Watch This Discussion Report This | Share this:urgent Help please I have lupus and R.A. among a lot of things And In the past week i have been treated for a pretty bad...

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