Skip to content


Sort by:
Can't get this smell out of my system. Please hel...
Hi, I have had Lupus for the last 18 years. I'm 51 years old and have everything imaginable that comes with...More
Posted by dixie2020
doctor appt a year away
Has anyone else heard of a first time patient newly diagnosed not getting an appointment for a whole year?...More
Posted by melissa_513
Temperature of home for Lupus
A person (female) tells me their Lupus will flare up if the temperature in the house is 72-74 degrees. She...More
Posted by lewist2014
Diet for Lupus Nephritis ?
Hello Everyone, I have a question and your help will be appreciated. Last year my friend was diagnosed...More
Posted by muttdog77
Newly Diagnosed
Hi there I'm Lauren, I'm 30, I have 2 daughters, and I've been married for 10 years. I've had Grave's...More
Posted by makalasmama
my life with Lupus
I was diagnosed approximatly two years ago.I didn't date anyone until July of this year.I got back together...More
Posted by ladylupus2
I was just diagnosed with Lupus. The Dr. wants to put me on Plaquenil. He claims it is a safe drug. I read...More
Posted by An_259659
How does everyone manage pain ?
Hello Everyone. I am writing to ask a question about pain, and how each deals with it. My doctor...More
Posted by lainemarieee
immunosuppressive medication such as cytoxan
I was first told I had SLE in 1980. In 1986 I was treated with buckets of stiroids (60-90 mg/day) and cytoxan...More
Posted by lmn2520

Take the Poll

What has been your experience with immunosuppresive medications used to treat lung disease (COPD and CPPD)?
  • Experience with immunosuppressive drugs treating lungs -COPD/CPDD
  • How many years since you were told you had lupus?
  • Who are you?
  • How OLD? How YOUNG?
  • Support groups in the San Francisco/San Jose, CA area?
View Poll Results
Lupus Kidney Disease Skin Problem
Hello, I have lupus kidney disease and it is currently at a very severe stats. I urinate very often and...More
Posted by peon321
Fibromyalgia and Lupus- Which Symptoms are Which?
I was diagnosed with Fibromyalgia in 1996 when I was in my teens. I had a fifteen year stretch where I didn't...More
Posted by annajoe

Take the Poll

Are you juggling two or more chronic illnesses?
  • Yes
  • No, just one is enough!
  • None
  • Possibly
View Poll Results
Hopelessly Waiting
In April 2012 (2 months after turning 40) I began having joint pains, muscle pains, fatigue, low grade temps,...More
Posted by amy8613
Sexual Intercourse and Lupus
Ok, here goes.....I am seeing a girl who has Lupus. She has what appears to be a form of vaginal warts that...More
Posted by An_259244
Hair loss
When I put my hair up in a pony tail there's one spot where the hair won't go straight back. Instead it's...More
Posted by An_259188
I have been dealing with joint pain since 2006 when I first hurt my left knee. I have since had three knee...More
Posted by samanthahw
What is cryoglobulinemic vasculitis
Is anyone familiar with cryoglobulinemic vasculitis? I was diagnosed with Lupus several years ago and have...More
Posted by lisatru62
Hi, Im living with Lupus SLE and am wondering if I am eligible for disability ? Im not sure if it is...More
Posted by An_256961
Ana tests - confusing
My Ana tests are as follows: Ana cascade - negative Ana titer Ifa -1:80 Ana screen Ifa - positive...More
Posted by emmittearl
Can anyone advice me whether these symptoms are th...
My wife (aged 44)had been having the following symptoms over the last 30 years, but still still could not be...More
Posted by adappoor4
Is there meds for SLE/Lupus that actually makes yo...
Hi, I have been diagnosed with SLE after many years of mis-diagnosis. If I am to be starting a whole range of...More
Posted by An_258839
ANA Negative lupus
Hi I am wondering about ANA negative lupus. In the last year I have had a skin biopsy from a...More
Posted by jenny_from_sydney
Just diagnosed with Anti-cardiolipin
I was just diagnosed with Anti-Cardiolipin and feeling scared. The doctors said my levels were really high does...More
Posted by jung007
Could I have Shingles or Lupus???
I have severe Crohn's disease and am currently being treated with Prednisone and Pentasa. This morning I woke up...More
Posted by muzie5
Searching for a diagnosis
Hi all, I am searching for a diagnosis right now. From everything I have read, I believe I have lupus. I...More
Posted by starluna3
Malleolous of ankle ulcer
Dear Doctor Hope you are doing well i am thousif khan from Bangalore, India i am suffering from malleolous of...More
Posted by thousif4u
Least offensive lupus treatment for my bad liver
Was dx with primary biliary cirrhosis stage 3( an autoimmune liver disease) 4 years ago. Just recently dx...More
Posted by stacey3172
Stopping Benlysta...
I was diagnosed with lupus about 10 - 12 years ago and have been in a flare for over a year now. By now I...More
Posted by clsummers31
New to Lupus
just found out i might have lupus. how high of the sedemendary blood test level indicates you most likely have...More
Posted by imzadi

Take the Poll

Sed Test
  • Sed Test
  • General Help
View Poll Results
I began on lyrica 7/22'14 and have dizzy spells and trouble sleeping. Also I have become very emotional and...More
Posted by An_258420
my lupus is attacking my kidneys to the point I was in kidney failure
Posted by peanut098

With Lupus

WebMD's Day2Night will help you develop personal coping strategies for living with lupus – at home,
at work, or with family
and friends.
Visit Lupus Day2Night

Helpful Tips

Music Video Tips on Managing Chronic Pain!
My newest music video, hope you guys like it! HUGS and ?, JJ "Never doubt that a small group of thoughtful, committed people can change the ... More
Was this Helpful?
1 of 1 found this helpful

Related Drug Reviews

  • Drug Name User Reviews

Report Problems With Your Medications to the FDA

FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.