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Lupus Community

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urgent Help please

I have lupus and R.A. among a lot of things And In the past week i have been treated for a pretty bad...

Posted by dwilliams0609

1 Reply | Reply | Watch This Discussion Report This | Share this:urgent Help please I have lupus and R.A. among a lot of things And In the past week i have been treated for a pretty bad...

TREATMENT

Unfortunately, I have been suffering from Lupus, Fibromyalgia, and a clotting disorder since 2009 and...

Posted by ChristineNicole86

0 Replies | Reply | Watch This Discussion Report This | Share this:TREATMENT Unfortunately, I have been suffering from Lupus, Fibromyalgia, and a clotting disorder since 2009 and...

RA and Lupus bring about the same symptoms

I have been living with RA since I was 18. I have been on remicade, methotrexate, plaquinil, prednisone, and...

Posted by Baby_bird

2 Replies | Reply | Watch This Discussion Report This | Share this:RA and Lupus bring about the same symptoms I have been living with RA since I was 18. I have been on remicade, methotrexate, plaquinil, prednisone, and...

Daughter just tested positive for ANA and ds-DNA. ...

Hi everyone: Thank you so much for putting yourselves out there (here), sharing your experiences and advice....

Posted by oceanwaves

1 Reply | Reply | Watch This Discussion Report This | Share this:Daughter just tested positive for ANA and ds-DNA. Now what? Hi everyone: Thank you so much for putting yourselves out there (here), sharing your experiences and advice....

Tounge soreness

Is anyone experiencing tounge soreness? If so, what are you doing or taking to ease the discomfort?

Posted by eg0330

2 Replies | Reply | Watch This Discussion Report This | Share this:Tounge soreness Is anyone experiencing tounge soreness? If so, what are you doing or taking to ease the discomfort?

Differences

What is the difference between discoid lupus & the systemic one? I was diagnosed with lupus in August '12,...

Posted by ssh49tn

2 Replies | Reply | Watch This Discussion Report This | Share this:Differences What is the difference between discoid lupus & the systemic one? I was diagnosed with lupus in August '12,...

Interesting article

http://www.eurekalert.org/pub_releases/2013-01/muhc-rld012413.php

With love, with patience and with faith, we'll make our way.

Posted by Lupylisa44

0 Replies | Reply | Watch This Discussion Report This | Share this:Interesting article http://www.eurekalert.org/pub_releases/2013-01/muhc-rld012413.php

Is anyone on Savella ?

hello everyone ... (heres a little story of what im going threw ) I have been in a flair for almost a...

Posted by mommawithlupus87

2 Replies | Reply | Watch This Discussion Report This | Share this:Is anyone on Savella ? hello everyone ... (heres a little story of what im going threw ) I have been in a flair for almost a...

Is anyone on Savella ?

hello everyone ... (heres a little story of what im going threw ) I have been in a flair for almost a...

Posted by mommawithlupus87

0 Replies | Reply | Watch This Discussion Report This | Share this:Is anyone on Savella ? hello everyone ... (heres a little story of what im going threw ) I have been in a flair for almost a...

Federal court admits Hep B vaccine causes lupus...

Can't even believe they are still giving this vaccine!!! Read the article, you wont believe it either! ...

With love, with patience and with faith, we'll make our way.

Posted by Lupylisa44

1 Reply | Reply | Watch This Discussion Report This | Share this:Federal court admits Hep B vaccine causes lupus... Can't even believe they are still giving this vaccine!!! Read the article, you wont believe it either! ...

Wow! Unbelievable!

...

With love, with patience and with faith, we'll make our way.

Posted by Lupylisa44

3 Replies | Reply | Watch This Discussion Report This | Share this:Wow! Unbelievable! ...

flare ups

hadd lupus since 2004 ..flare ups seem to come as soon as im off the prednisone from a previous flare. i take 2...

Posted by bren222

6 Replies | Reply | Watch This Discussion Report This | Share this:flare ups hadd lupus since 2004 ..flare ups seem to come as soon as im off the prednisone from a previous flare. i take 2...

Viewfinder61

Hello everyone, my name is Rose. I have had symptoms and a preliminary DX for Lupus SLE. Back then with a...

Posted by Viewfinder61

Hello everyone, my name is Rose. I have had symptoms and a preliminary DX for Lupus SLE. Back then with a house full of young children and insufficient insurance I could not afford to keep the referral appointment with the Rheumatologist which was set up for me by the Internal Medicine doctor who had hospitalized me and put me through a battery of tests.

The pain, joint problems, weight roller coaster, depression and anxiety along with severe fatigue, heart and kidney disease have only worsened and rendered me disabled and feeling lonely. The pain us unbearable at times and I am now about to be introduced to the pain management community as well. I take so much medicine on a daily basis one would think that I am 20 or 30 years older than I am. The stomach problems come and go and at times I have been given Lidocaine solution (2%) to take for immediate relief.

Recently I began to have such severe "Brain Fog" that my children, all grown now, have considered having me placed somewhere or tested for Alzheimer's Disease. The oldest is so frustrated all she can do is ridicule and humiliate me to the point that even on "good days" I don't want to be very sociable because I am concerned that other people may come to the same conclusion or get as frustrated with me as my daughter.
All of these symptoms and more also caused me to join the below poverty level income of the Disabled, so now add limited income to the mix and there is total disarray in my life and mind.
Based on this information is there anyone who can tell me whether the Internal Medicine Specialist who made the dx over 20 years ago after 5 days in the hospital with a battery of tests was correct??????
After all these years the pain and depression, heart and kidney problems among other things including fatigue and odd sleep schedules has even ME frustrated and wondering what's going on. If I could at least find out what it is and have name for it, I could research, study and learn to deal with it. Don't want the daughter to "put me away" if the Brain Fog and occasional memory lapses are simply symptoms of a DX made years ago. Thank you for your time, hope to get some answers and tips.View Thread

Posted by Viewfinder61

2 Replies | Reply | Watch This Discussion Report This | Share this:Viewfinder61 Hello everyone, my name is Rose. I have had symptoms and a preliminary DX for Lupus SLE. Back then with a...

LUPUS DX 24 years ago - Is it correct?

I was told by an Internal Medicine Doctor after five (5) days of testing in the hospital approximately 24...

Posted by Viewfinder61

1 Reply | Reply | Watch This Discussion Report This | Share this:LUPUS DX 24 years ago - Is it correct? I was told by an Internal Medicine Doctor after five (5) days of testing in the hospital approximately 24...

Holding Down a Job and Lupus

How are you able to hold down a job? Diagnosed decades ago with Ulcerative Colitis (auto immune), then two...

Posted by An_249880

4 Replies | Reply | Watch This Discussion Report This | Share this:Holding Down a Job and Lupus How are you able to hold down a job? Diagnosed decades ago with Ulcerative Colitis (auto immune), then two...