No need for apology, Dp. I just didn't want you to think the community was not responding with recommendations. We have a great group of really helpful Members on our board...this was just one of those things and I wanted you to know we are here to help in any other way we can!
How is the search going? Did you try the Physician Finder?View Thread
Welcome to the Lupus Community! I'm glad to hear that you got someone to listen and were able to get a diagnosis. Even happier to hear that you got your health care benefits back! I'm sure that's a major relief.
Lupylisa's Physician Finder link has been really helpful for a lot of members, so give that a shot. Unfortunately, as much as I know everyone wants to share a really great doctor, WebMD does not allow personal physician recommendations to be posted on our communities. Sorry.
Do you need any help in knowing what to ask your Rheumy when you see them? I'm sure the community can help you there!
Let us know how things are going and come back often!View Thread
Welcome to the Lupus Community and thanks for sharing what you're going through.
You should definitely tell your doctor about the chest pain. In this list of When to Call a Doctorit says, "Chest pain that is crushing or squeezing, occurs with sweating or nausea, and has not been previously diagnosed" is a reason to call 911 or emergency services immediately.
The hand swelling may be related to lupus, but WebMD's Visual Guide to Lupus tells us, "Some people with lupus develop a condition called Raynaud's phenomenon. Their fingers and toes become painful, numb, and tingly in response to cold temperatures or emotional stress. This happens when small blood vessels spasm and restrict blood flow to the area. During an attack, the fingers and toes may turn white or blue. People can also have Raynaud's without having lupus or any serious health complications."
You can take a peek at the slideshow to see if the image of Raynaud's looks similar to what you are describing.
Here are a few other resources that I think will come in handy:
Yeah, that's what I mean about the Discussions link having a mind of it's own. Between the lag that we sometimes experience in seeing our posts publish, and then not being able to see them even in the Discussions tab, it is very frustrating.
Please write to the email address I gave above, if you haven't already. I can pass along everyone's grievances with the tech issues, but it goes a lot further when it comes straight from you, I think.
So sorry for the difficulties you're experiencing and thanks so much for working with us to resolve them!View Thread
I'm so very sorry to hear of your recent diagnosis! You have a right to grumble a lot more than this forum could hold.
I don't have much experience with cancer, other than what I learned while moderating the Breast Cancer community. Which is quite different, I believe.
When you say 'random', does that mean your doctor does not know where the cells are centralized?
I encourage you to ask Dr. Zelman in a separate post about any experience he has had with his lupus patients and cancer. He may be able to offer some support, as would the members on our Cancer Community.
Welcome to the Lupus Community and thanks for sharing what you're going through with us.
I'm sorry to hear your daughter is experiencing so much pain. You might like this WebMD article, Understanding Lupus Treatment, which give some tips on pain management. There are also a few other home treatments that are discussed that you may try.
Hi Dot, and welcome back to the Lupus Community! I'm Andie the Community Mod, so you'll be seeing me around.
Ugh, I would have told my doctor off too if he told my mom (or anyone) that I wasn't going to live! I'm so glad you found a new doctor that takes care of you.
And, it's great that you were so lucky to find someone that was testing new medication and it's worked out for you. How are your daughter's coping with SLE? Does your doctor treat them, as well?View Thread
The Discussions link has a mind of it's own, it seems. Some communities it will work for, and others it won't. But it changes it's mind once in a while and lets us in just to tease us for a day, I think.
Try going to the main "What's Happening Now" feed on the Lupus home page and you'll see everything there (including Tips & Resources, but not that many really).
If you're going to the Discussions link to try and see if your new thread is showing because it doesn't look like it is...it probably is just taking an extra few minutes of lag time to publish on the WHN feed. But, it is most likely there.
Sorry, Lisa, that my idea wasn't any help. Please let the Development team know of any ongoing technical issues by writing to them at CommunityManagement@webmd.net.
Hope they get things cleared up for us soon. Apologies for the difficulties and thanks for your patience, as always!