Thanks for sharing what it was like for you on the other side of the pain. It is quite shocking to hear you describe how the muscle looked as though it was shriveling up and dying!
Sometimes it's so hard to know when others are feeling, but a visual like that really is humbling, isn't it?
I think we get used to remembering what it was like before our loved ones got sick. When they still seem okay on the outside we tend to forget they're suffering until we see how hard it is for them to do the normal things they've always done before.
Since I'm sure she's as beautiful as any other day, how can you tell when your fiancee is really suffering more one day than another?View Thread
"You may not know what to expect because symptoms can be nonexistent one day and hit full force the next -- leaving you guessing as to when you'll feel your best. But there are a few things that you can tell your family to count on, like fatigue and flare-ups."
This story includes how one mother explained her RA pain to her 10 year old daughter. If a 10 yr old can understand RA pain, hopefully Lupus pain can can also be understood by child and adult, alike.
How do you help family or friends understand what you're going through? View Thread
We joke about the tequila and alcohol because sometimes it does just feel good to say "forget it! I'm done trying to work at this", but in truth, alcohol is one of the worst ways to feel better. (As much as I hate to say it sometimes)
You need a good night's sleep to help soothe the stresses pain puts on your body. Although alcohol can help you fall asleep, as it metabolizes, it promotes shallow sleep, reduces important REM sleep, and may even wake you. The result: A less restful night.
And, a less restful night ends up in more pain and just overall yucky feeling the next day.View Thread
It's a Catch-22: You're hurting, so you don't exercise; but without exercise, you may lose muscle tone and strength, making pain worse. Fortunately, even mild exercise releases endorphins, the feel-good brain chemicals that lift mood and block pain.
Welcome to the Lupus community. I see that you posted a question yesterday with the title "Tessa", and this was replied to by several of our community members. Is this the question you were referring to, or did we miss another?
Please understand that this is a forum, not live chat, so there is not always someone here that sees new questions as soon as they are posted. Also, it may take a day or two before someone that has any experience or knowledge in that area may relate to the post.
There may be times when Dr. Zelman can't answer or may take a little time before answering, and that fits within the expectations of his role here in the community.
I hope that helps explain. As always, if anyone has questions about our expert policies here at WebMD, please always feel free to write to us at CommunityManagement@WebMD.net
Please let me know if we can be of any more assistance and good luck!View Thread