So since I am waiting for the labs to come back I was thinking...
I have had migraines for approximately five years now, and to date the most effective treatment is IV Toradol(NSAID). The only other migraine treatment that has worked has been Relpax(which is not covered under my current insurance) and is thought to have some anti-inflammatory properties(at least if I'm understanding the drug company literature). The Toradol is only strong enough to be effective for me in the IV form, when given as a muscular injection the headache will linger for more than a day.
Maxalt in combination with Propranolol has been almost worthless, it barely slowed the pain. Imitrex injection(aside from the painful side effect reaction I got) helped but that took almost an hour to really work and it nearly sent me into a panic attack.
The Tordal works in less than 15 mins. The last time I had to go to the ER the PA was AMAZED by the drastic improvement in me. I have to be careful with medications as I tend to be very sensitive to the side effects.
So since I am in the process of trying to find out what is wrong with me, and hoping to get a lupus diagnosis(I know that no one wants lupus, but I really would like to know what is wrong with me and its the only shoe I can find that seems to fit). I am still looking for any information to help the NP who is my new primary, with ideas to help figure out what is wrong with me.
So does it make sense that a migraine that responds better to NSAIDs than standard migraine medication, would more likely be classified as a lupus headache. Or is it still just a migraine? And could it possibly have any bearing from a diagnosis stand point?
Any thoughts or opinions would be appreciated. View Thread
Ok so I thought I would drop a line to give an update. I fired my PCP and replaced him with an NP she is fabulous I saw her this past week and she immediately wrote for lab work. I had it all draw now I'm waiting for results. They said it will take ten days to get the blood work back. She wants to be thorough, because all the basic labs they have drawn in the past are fairly normal. So no one would believe me when I said I was sick. They are running a RF, ESR, Vit D level, ANA, and Lyme titer. So hopefully I'll get some answers.View Thread
I am a 31yo female and I think I may have lupus. My only problem is that my doctor will not listen to me. I am on my third one. I have been having symptoms off and on for about five years. I break out after sun exposure, and can at random become very fatigued. I wake up with multiple joint(feet, hands elbows, shoulders) and muscle pain in the mornings sometimes daily for one to three months(usually when under stress) that at times is so bad that I can barely stand to cross the room and shut off the alarm. The pain decreases with movement. I can get severe migraines(which I have found respond best to IV Tordadol, a NSAID) usually near my menstral cycle, along with an increased presence of my other symptoms. I have an aunt who has lupus, as well as I commonly have casts and protein in my urine. I have spent lots of time doing my homework and researching lupus, and they just keep blowing me off. They won't even discuss an ANA let alone a Lupus A-A test or a referral to a rheumatologist. I am a single parent and don't want to wait until I am seriously ill to get diagnosed. SO how do I get my doctor to listen?Any advice would be helpful. Thanks!!View Thread