Yes, thank god for them....I have a complicated medical history and an autoimmune disease called Sarcoidosis and I am sick and tired of dro's telling me its because I am depressed. I too get them take control of your life speech about diet, attitude etc, and I get it and believe it all but somedays are just too hard.View Thread
This was very helpful, it sounds like what I've been told. I am seeing a specialist about Sarcoidosis on Monday and the treatment for that auto immune disease is prednizone too. I also have fibromyalgia, chiari malformation, migraines, Bastrups Disease and who knows what else but that is enought for now. They keep telling me I am depressed. No kidding! I am taking 60mg of oxcontin 4 times a day and oxycodone 10mg for breakthrough pain. I hate it and I am so ashamed for saying out loud..... I am like you, a mother of 2 young boys (adopted) and a wife and I just started working a couple hours everyday to get back to life after 2 bunion surgeries last year. This pain has effected everything in my life (and not for the better) I am trying to overcome it or accept it but I am struggling about which I should do, I don't want to give up but I keep looking for something to fix and they just keep finding more diagnosises and no treatment. ARghhh..
I am in so much pain everyday and it sounds like you can relate. I am not getting any better and I feel like the narcotics are just a way to shut me up but it bothers me that they are just masking the pain and we are not doing anything about the root cause. This biopsy I had to diagnose the Sarcoidosis may give me some hope that relief is in sight. I imagine they will switch my pain meds as it is my lungs that are infected with the swollen lymph nodes the most. I have mild COPD and only one kidney left as they took one out. I have had 13 anethetics in my short 43 years(If your interested Ill tell the story of all that - it is really interesting) ....by now I am just tired......I do accupunture too and physio. I tried Bowen therapy, you should try it but it is really expensive.
Anyway, you inspired me to keep fighting and I am off to the health food store to get some stuff. Do you recommend anything the most to start with? I take probiotics, daily vitamin, Coenzyme Q 10 for my Mitrovalve prolapse and magnesium. I have taken fish oils in the past but I think I should add them again especially if they do indeed start prednezone. Thanks for the inspiration and the ideas. LisaView Thread
Hello all. I have just had a biopsy of my lymph nodes around my sternum and they found it to be sarcoidosis. My sister has lupus that was bad but she has been in remission for about 11 years. Now I have suffered with chronic pain my whole life but since my 2 bunion surgeries last Nov and Aug (on the same foot I might add) I have never recovered. I feel awful most of the time. Tired. Aching. sometimes my skin vibrates with pain. I know this is an auto immune disease but you guys with Lupus have probably had a lot more experience with this. My family thinks sarcoidosis is like fibromyalsia and it does feel a lot like it but now I see a new doc on April 15 and the next course of action is steroids. I am having touble working 2 hours a day teaching as it is. Do you think I will be able to keep working once the prednozone starts?View Thread
Hello all, I am new with a long complicated history but a biopsy found I have sarcoidosis. My doc said it is much like lupus. My sister has lupus. She is in remission but when she flares up she feels a lot like I do all the time. I have suffered with chronic back pain for 20 years and I am starting to fall a part.... but I wondered if anyone here could help me understand it. If anyone does know some differences and or similarities let me know. I am at my wits end with another diagnosis and I don't see the new doc until april 15.View Thread