I agree with everyone else, get a new rheumatologist, that was the first thing I was going to suggest from your first line. You may need another PCP too, because there shouldn't have been a years time before they sent you to a rheumatologist. Look on some of the websites and find a well noted rheumatologist in your area. I'm not a dr but it seems like lupus to me, and even if it is fibroma you need some help, which they are not providing. Get better doctors to help you and persist that they find out what is wrong with you, or ask your parents for help to get things done.View Thread
I actually just started Imuran this week. I read that it takes 6-8 weeks before it really takes affect. My rheumatologist said Imuran is better on the body, then prednisone and other drugs for lupus. I also have G6PD so I can not take plaquinil and other medicines. You should definitely monitor, well like you should do with lupus have your blood checked everytime you have your drs visit which should be nothing past every 5 weeks, to make sure everything is right with the medicine and your body. Also that will let the dr know if the dose you are receiving is working with your body and make changes. Best of luck!View Thread
I am sorry to hear that you are having these issues. I first would suggest to make sure that you are seeing a rheumatologist and not a regular doctor, it wasn't too clear in the comment, but yes, as all the others replied your ANA is not the only thing that can show you have lupus, so the other symptoms are valuable, blood count for white and red cells, imflamation, low vitamin D, joint pain etc...i am a patient in NYP and they have very good lupus clinic there. When I first got lupus i was told by doctor that I had RA and then I was spent to a specialist/rheumatologist who looked at all of the test that they ran and told me straight off that I had lupus after she saw all the signs on the test that they had run and later she ran an ANA test herself but without the ANA information she already said that I had lupus...so I suggest that you go to specialist and let them work on it The specialist I had in the Bronx was very good also, I am not sure of your location, I ended up with the NYPres doctors because I had a flare and was there for about a year, so I stay with the doctors I had in the hospital now, since they were extrodinary! Best of luckView Thread
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