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leecat41

Joined: 08/20/2011
My Story:
I was first diagnosed in 2004 due to having so many of the symptoms. But with a negative ANA test, was un-diagnosed. This has continued since then. I now believe that I've had flares from time to time but have never been tested during those times (I'm hard headed and am just now beginning to understand this thing) I was so frustrated at all the different opinions that I eventually stopped going to the rheumy all together. But since I've found this site, I've gotten more understanding of this disease and realize that my rheumy was only doing what he thought best. He's been treating me for lupus and now I know that, even though it's rare, you can have lupus with a negative ANA.

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Does anyone else deal with SEVERE swelling?
My legs swell so bad I can barely stand to walk. I've also noticed in my hands and face....More
To do what is right is not always easy, to do what is easy is not always right.
Posted by leecat41
Treatment for Raynaud's?????
Ok, my doctor just said that my Raynaud's is progressing. He said that we are going to...More
To do what is right is not always easy, to do what is easy is not always right.
Posted by leecat41
Reply: Right or Wrong diagnosis? :./
I've been diagnosed and undiagnosed with Lupus since 2004 and still don't have a firm...More
To do what is right is not always easy, to do what is easy is not always right.
Posted by leecat41
Reply: Lupus Not Getting Any Better
it is a long road but do not give up. I know that it's very frustrating. I took myself off...More
To do what is right is not always easy, to do what is easy is not always right.
Posted by leecat41
Reply: lupus
I don't have it in my arms, but you just described exactly what's going on in my legs.
To do what is right is not always easy, to do what is easy is not always right.
Posted by leecat41
Includes Expert Content
numb spots?
Does anyone here have problem with places going number? I have spots that feel numb to the...More
To do what is right is not always easy, to do what is easy is not always right.
Posted by leecat41
Includes Expert Content
Reply: butterfly rash...Dr V???????????
I have had "cysts" or "tumors" removed from just under my skin on three different...More
To do what is right is not always easy, to do what is easy is not always right.
Posted by leecat41
Includes Expert Content
Reply: butterfly rash...Dr V???????????
Thank you. I did see a dermatologist. He didn't run any tests. He just looked my face and...More
To do what is right is not always easy, to do what is easy is not always right.
Posted by leecat41
Includes Expert Content
butterfly rash...Dr V???????????
Ok, my rheumy says that he first thought that my rash was the butterfly rash associated...More
To do what is right is not always easy, to do what is easy is not always right.
Posted by leecat41
Reply: can't take a deep breath!
Well, unfortunately, I just started my new job and I don't have any time that I can take...More
To do what is right is not always easy, to do what is easy is not always right.
Posted by leecat41

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