I am glad to hear you are feeling well. You deserve it because God knows how many people you have helped and lives you have touched on here and your other website. I can relate to the "waiting for the other shoe to drop" because living w/this disease(s) is so unpredictable. Hard for someone who was a planner, but I try to remain positive. I hope someday this all fits somehow. Hope your good days stay for a long while. Sending spoons.View Thread
Hi Melanie, I am so glad you responded to this post. Your posting struck a chord w/me. This was what happened to me for yrs(dizziness/faiting spells/Blood pressure -very low) before they dx me with Lupus, fibro, and Sjogrens. It has been a hard road as they told me "it was all in my head" even after landing on my rear many times and having to go to Er and get IV fluids. Very scary to go through. They have not performed a tilt test on me but have me on Fludrocortisone/salt tablets daily and Midodrine. The last Rheumy told me I have autonomic neuropathy, but he has retired and it seems like I am starting new for someone to figure me out. It has been many yrs and so many changes, can you offer any tips or how to address w/medical drs. Sometimes feel very frustrated and hope more info keeps coming out about how lupus affects the body. ThanksView Thread
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