Many of us have observed that symptoms of lupus seem to improve after a patient goes on to hemodialysis. However, this is not a universal phenomenon and in some individuals lupus may remain active. In your daughter's situation, she may be having a hard time adjusting to the hemodialysis; she may have a condition called gastritis, or a stomach ulcer. Other causes of stomach pain need to be considered by her physicians as well. Hope she feels better. View Thread
There are few home remedies for a lupus rash that can help reduce the irritation and the itch considerably. Oatmeal is known to yield positive results as far as lupus rashes are concerned. Add ½ a cup of oatmeal to a tub of warm water. You will need to sit in this solution for a minimum of twenty minutes. Aloe vera juice could also be applied on the affected area to gain relief from the pain and to reduce the rashes. Cod liver oil, vitamin E oil and olive oil are excellent for lupus rashes. Apply a few drops of any of these oils on the affected area daily. Baking powder if dabbed to the rash also helps relieve local irritation that is caused by the rash. Drink plenty of water (6-8 glasses) and include a lot of green vegetables and fresh fruits into your daily diet. Always bear in mind, no matter how itchy the rash may be, one must take special care not to scratch them as that worsens the itchiness. [br>In terms of medications, corticosteroid creams can help the itchiness- 1% hydrocortisone cream is available over the counter, stronger corticosteroid creams are available by prescription. Anti-histamines like benadryl can be used at night time but as you mentioned, can cause significant drowsiness. In the daytime, "non-sedating" anti-histamines such as Claritin (loratadine), zyrtec (cetrizine) or allegra (fexofenadine) could be used. [br>All the best!View Thread
There are two methods used to test ANA's. The first method is by immunofluorescence (IIF) which is reported as a ratio. Usually anything over 1:80 is considered a significant result. The second method is by enzyme-linked immunosorbent assay (ELISA) which is reported an absolute number or in the way you mentioned such as 3 . ELISA is increasingly being used because of the ease of testing through automation and no need of a skilled operator in the lab. However, the accuracy of ELISA testing has been questioned. Please see a previous post from me about ANA testing below.
You are at one of the best institutions for this kind of condition in the country. I am also glad to hear you are exercising with a physiologist. Deep breathing exercises may also help exercise your accessory breathing muscles and in turn increase lung capacity. The scientific literature suggests that the long-term prognosis is good, with improvement or stabilization of lung function over time and hence my comment. Immunosuppressive therapy could also be helpful in stabilizing SLS and improving respiratory symptoms and PFT in some cases and hence your doctors are using cellcept. Rituximab and corticosteroids may also be effective in the treatment of SLS. View Thread
It sounds like you and your rheumatologist are having a problem communicating. From his/her point of view, the few doses of prednisone are probably much safer than the other drugs you mentioned for your condition. It really comes down to how you're feeling on a daily basis, for example if you're doing well in between flares, your rheumatologist's approach might be the right one. If you're not doing well most of the time, a different approach seems reasonable. I recommend trying to communicate your concerns effectively to your rheumatologist and see his/her response. View Thread
Cellcept is known to cause GI irritation and this is frequently a dose limiting issue with Cellcept. The non generic version and the long acting version may be superior in terms of less GI toxicity. Also, please note that there is a potential interaction between omeprazole ( and probably all drugs in that class of PPI's) and cellcept and the absorption of cellcept may be decreased by using omeprazole at the same time. Consult your pharmacist regarding optimum timing of taking the medications. The newer PPIs might be a bit stronger than the omeprazole and you may benefit from using them for your condition. All the best!View Thread
Edema is an uncommon side effect of atypical anti-psychotics. You may be able to manage the edema by decreasing salt in your diet (salt contributes to water retention.) Avoid alcohol, tobacco, caffeine and high fat foods, all of which inhibit natural functions. Exercise regularly to increase blood circulation as exercise is a natural diuretic. Try elevating the area that is affected as gravity can keep fluids from collecting in the affected area and avoid a sedentary lifestyle.View Thread