NicoleMolina, How do you manage getting through the day working at the state prison. Yes, that's a tough environment. I am always thankful every day (or night in my case) that is uneventful when I'm at working, whether in the housing units or booking area. Weekends are the most busiest because of people drinking hard on the weekend & driving, domestics increase, raids occur, etc... I know it's already tough dealing with this illness and to add working in such a hazardous work environment doesn't help matters, but we do what we do....and I do love my job. Interesting that you should mention suffering chest pain. That has been added to my recent list of aches & pains. The last time I had it, my rheumatologist thought it possible that it was pleuric chest pain. While he told me to go to the ER the next time I experience it rather than waiting for a doctor's appointment, I have to bring myself to doing so. I just got back to attending work regularly. Recent knee surgery contributed to the absence and I've been feeling pretty good consistently. It's almost like I was "normal," in spite of the issues I have. However, I know that it's my meds, primarily Methotrexate, that has been keeping my disease in check. Take care & stay safe.View Thread
MichiRoxy57, I know how you feel as I am experiencing the same symptoms as you are & have been diagnosed with mixed connective tissue disease/lupus also. It is real frustrating going through this, especially since you never know when you're going to get a flare up.View Thread
I don't know if that could be a sign of MS. Unfortunately, I have the problem that I experience numbness quite regularly in my hands. I have to try and find out what that's all about. My dosage of Gabapentin was upped almost a year ago.View Thread
LindseyJ, I can't imagine what life must be like for you considering that you have to deal with the hardships of this chronic illness at such a young age & while still in school. It's pretty tough just balancing it as an older adult. You're also challenged in areas that several of us who were diagnosed later in life never had to endure. I really liked viewing Christine Miserandino's video clips (discovered these on this webmd site) & her Spoon Theory on dealing with lupus. Her website, "But You Don't Look Sick" (www.butyoudontlooksick.com ) is very helpful as well. Although she is older now, she was diagnosed with lupus as a teen. I this helps some. Stay strong & welcome to this forum.View Thread
Well, that's a good question - One that I might've handled better earlier in the day as I don't think I really recall when I became a member at webmd. I think at least a year, definitely not as long as some others. I have been diagnosed with Mixed Connective Tissue Disease (MCTD). I once asked my rheumatologist what was the difference between mctd & lupus since they seem to have a lot of the same symptoms and other auto-immune diseases that accompany plus they're treated relatively the same. His response was: symantics (tomato - "tomoto"). Really? However, it seems that more people appear to know more about lupus than mctd, so when they ask, "What?" I just tell them to think more along the lines of lupus, hoping that they have some kind of clue and of course, many still don't. :0)View Thread
Wow, Angelina7; you have a lot going on there. Sorry, I can't help you with your inquiry about Humira. I take plaquenil & methotrexate. They are among my many, many medications, but are the main ones that keep my immune system "in check." I hope you get some answers soon.View Thread
So sorry that you are having such a tough time. I am sure that several of us have experienced some, if not most or all, of what you have been going through. And, yes, the one thing that really is frustrating to all of us is when others assume and/or insist that nothing is wrong with us because we don't look sick or they give us their own diagnosis as to what they feel is wrong with us and what we can/should do to feel better. Of course, it doesn't help much when we don't get the proper support from our physicians. I definitely know the feeling of going through mental fogs and being so fatigued that you can't wait to go to bed & then once you get there, you don't rest well due to sweating and tossing & turning. I wish I had the answer(s) to help you as I would, then, be able to help myself better. :0) But rest assured, there are many involved in this community who have a lot of knowledge and experience and will be able to provide some insight as well as advice & a friendly ear to listen. So, I encourage you to continue on & check out some of the other discussions that go on. Take care and rest as much as you can.View Thread
I am trying to incorporate more fruit & raw veggies in my diet but am having a difficult time for 2 reasons: expense & time/energy (to go to the store and/or fix anything) after working 10 hr shifts at midnight. Has going on a gluten free diet helped reduce your inflammation? I am considering trying a little juice cleansing once I can motivate myself to shop and learn the new juicing blender (almost like Nutri bullet) I bought. Since my daughter is working more hours, I am trying to do a little more on my own after duty hours.View Thread
Wow, I am so sorry to hear about your hair loss. That has to be devastating. I don't know anything about that particular medication. What has your doctor got to say about this. It seems that you have quite a bit of high-powered drugs combined. I no longer take prednisone; I do take methotrexate & plaquenil along with a whole host of other meds. I hope you get some help with your flare & hair loss really soon.View Thread
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