Wow. It seems you've been through much in your life dealing with your illness. It sounds like you're experiencing lupus symptoms as well. You're certainly taking some of the same meds prescribed for lupus patients & those of us with mixed connective tissue disease. I have the latter & am on all of those - never the remicade - for my illness. Prednisone was recently replaced with methotrexate which has helped a lot. I think you should get tested, though, so you can find out exactly what you're dealing with. Be encouraged, my Sister, in spite of the circumstances. You've made it this far. Take care of yourself.View Thread
I just got out of the hospital after a 6 day stay. Unbelieveable! Who would've thought that contracting a stomach virus would not only send me on a trip to the ER, but cause me to be admitted in the hospital and stay for 6 days. It was the most horrible thing and it was certainly my first time that I had been hospitalized since being diagnosed with mixed connective tissue disease (1 1/2 yrs). The IV was my constant companion for most of my stay there & my white blood cell count shot up (I guess to combat the virus), so you can imagine what happened next.... inflammation of tissues, muscles, & joints = pain, pain, + more pain. Well, I'm home recovering now, feeling tired & weak. Unfortunately, I have to attempt to go to work as I am short on vacation time & sick leave & thanks to severe arthritis in both knees, I have to have arthoscopic surgery on both real soon. I'd love to put it off, but sometimes I can barely move to go to work due to extreme pain.View Thread
It sounds to me as though your doctor's preliminary diagnosis was correct. I really hope that you're able to find a way to see a Rheumatologist soon so that you may get confirmation and get some help.View Thread
Yes; holding down a job is tough. I am an Army vet & at times maintaining a "can do" attitude is sometimes challenging, but God has allowed me to overcome those challenges when they come. I currently work in a jail dealing with inmates. I am in charge of a shift, work the graveyard/midnight shift & we recently moved to 10 hour shifts. I am typically wiped out by the time I get off duty, especially after completing an entire week (40 hours). I am so blessed to have the rank that I do; I am able to flex my hours a lot and that has been my saving grace and I rarely have to get involved in use of force situations because I am the supervisor.
I do admit, though, that I have considered medical retirement on several occasions as I feel like I have no life after work because I have to spend most of my time recuperating. Thus, I don't have the time or energy to do much of anything else. It's a blessing to have my children at home to help out. I pray that God will give you strength as you continue to work and manage your disease. Take care.View Thread
I wish I had something helpful to tell you as I am experiencing the same symptoms & have yet to get any real hhelp or answers with regards to it. Hopefully someone will respond with something helpful for us to consider and/or inquire about, etc.....View Thread
Toy - Diana Ross doll Song - Silver Bells & God Rest Ye Merry Gentlemen Setting - In the living room w/ lights off & looking at Christmas tree, lighted windows, & fireplace Company - Spending time with my husband & children Food - Duck, sweet potato pie, roasted chestnuts, collard greens w/ hamhocks, macaroni & cheese, Jiffy cornbread Activity - Wrapping presents & placing them under the tree after everyone has gone to bed.View Thread
Maria...I wish I could offer you some help in this area, but I have only dealt with my own symptoms and diagnosis for a short period of time & still learning, I pray that you feel better soon, that you get a more firm diagnosis amd someone with more knowledge & experience responds to your post soon.View Thread
How hav you been doing since your last post? I certainly understand about the weight gain. That has certainly been a huge problem with me. I just wish I didn't have so much pain that hinders me from exercising. Take care of yourself.View Thread
Hi, Megan: Sorry to hear that things are not going well for you & I pray that you are doing better at this time. I was doing really good for about 7 weeks, with the help of Methotrexate; then I had a very serious fall getting off the bus and haven't been quite right since then. Nevertheless, I am happy for my better days. Right now my white blood cell count is low (3.1) and feeling pretty weak and in pain, but I am in good spirits. Take care.View Thread
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