
Bumps on hands and random tendonitis
Hi Everyone, I'm new to this and don't really know how this will go. I've had...
Posted by Lupussufferersince15
Hi Everyone,
I'm new to this and don't really know how this will go. I've had Lupus since I was 15 and I'm now 22 I've never really had problems with rashes unless I was really stressed. But lately I've been getting these lumps on my fingers and they look like blisters, but they aren't fluid filled. The bumps are solid and hurt to touch. And they don't look like warts. I've noticed them on my hands a few times before but just recently I got a really big one on my big toe. And there are now more of them at one time on my fingers. I don't know what's causing it and what I can do to stop it. It seems to happen when I have flareups in my hands and now my feet but it isn't always timed like that. Does anyone have similar symptoms or know a treatment? Also I get tendonitis randomly I was told this was from my lupus but recently it hasn't gone away like it should and I don't know what to do. Its hard to explain to people why I can't straighten my finger because the tendon is locked up and its painful. Any tips for how I might be able to get rid of this?View Thread
Posted byLupussufferersince15
I'm new to this and don't really know how this will go. I've had Lupus since I was 15 and I'm now 22 I've never really had problems with rashes unless I was really stressed. But lately I've been getting these lumps on my fingers and they look like blisters, but they aren't fluid filled. The bumps are solid and hurt to touch. And they don't look like warts. I've noticed them on my hands a few times before but just recently I got a really big one on my big toe. And there are now more of them at one time on my fingers. I don't know what's causing it and what I can do to stop it. It seems to happen when I have flareups in my hands and now my feet but it isn't always timed like that. Does anyone have similar symptoms or know a treatment? Also I get tendonitis randomly I was told this was from my lupus but recently it hasn't gone away like it should and I don't know what to do. Its hard to explain to people why I can't straighten my finger because the tendon is locked up and its painful. Any tips for how I might be able to get rid of this?View Thread
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Tip for helping with sores in your nose.
I get open sores in my nose sometimes like I do in my mouth. The problem is...
Posted by Lupussufferersince15
I get open sores in my nose sometimes like I do in my mouth. The problem is that there isn't a treatment that I know of for the nose sores. I was talking to someone else and they told me a simple fast way to help the sore heal and close up. They told me to take a cotton swab /q-tip and put a little dab of neosporin on it and rub that inside your nose on the sore. It feels really wierd, but it helps me every time I do it. And its an easy fast thing to try if you have this issue.View Thread
Posted byLupussufferersince15
8 of 9 found this Tip helpful
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Reply: Diagnosis
Hi, I'm 22 and I've been on Plaquenil / Hydroxychloroquin Sulfate for 7 years...
Posted by Lupussufferersince15
Hi, I'm 22 and I've been on Plaquenil / Hydroxychloroquin Sulfate for 7 years now it has gotten my lupus to a steady point where we can control it. I've been on pain meds for 7 years also, I started with Darvocet for 5 and then that was taken off the market due to it causing rapid heart rate. I quit it cold turkey no withdrawals or anything, all I used it for was to take the edge off the pain at night so I can sleep. Now I'm on Flexeril and Vicodin. I'd say try some lower dosed pain meds and see what works for you. If you need to take them daily like me, then do so and just follow up with your doctor.
Also the whole family thing, I was diagnosed at the age of 15 and last year or the year before my Grandma was diagnosed with Lupus. I believe strongly that there is a genetic link to this disease. Oh and when I started with symptoms all I had was joint pain so like tikitembo said not all of the symptoms need to be there to get checked.View Thread
Posted byLupussufferersince15
Also the whole family thing, I was diagnosed at the age of 15 and last year or the year before my Grandma was diagnosed with Lupus. I believe strongly that there is a genetic link to this disease. Oh and when I started with symptoms all I had was joint pain so like tikitembo said not all of the symptoms need to be there to get checked.View Thread
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Reply: Arthritis in feet??
I have problems with my feet a lot. It isn't as bad as yours sounds, but its...
Posted by Lupussufferersince15
I have problems with my feet a lot. It isn't as bad as yours sounds, but its mainly when I've been on my feet nonstop with no rest. I'm in college so I'm always on the go and it wears my body down. Maybe try a muscle rub like biofreeze on them some time it could help with some of the muscular pain.View Thread
Posted byLupussufferersince15
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Reply: Bumps on hands and random tendonitis
My rheumatologist told me that the bumps on my hands are from the rheumatoid...
Posted by Lupussufferersince15
My rheumatologist told me that the bumps on my hands are from the rheumatoid swelling that comes with lupus. And it will eventually go away on its own once my flare up is done.View Thread
Posted byLupussufferersince15
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Reply: Tip for helping with sores in your nose.
I've never had a lump in my throat when I wake up. My sores are always inside...
Posted by Lupussufferersince15
I've never had a lump in my throat when I wake up. My sores are always inside my nostril.
I also get the sores in my mouth, but they have an oral paste for that. I'm glad this was helpful to you both.
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Posted byLupussufferersince15
I also get the sores in my mouth, but they have an oral paste for that. I'm glad this was helpful to you both.
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Reply: How Do You Describe Your Pain?
Hi I'm 22 and I've been dealing with Lupus for 7 years now. When I'm...
Posted by Lupussufferersince15
Hi I'm 22 and I've been dealing with Lupus for 7 years now. When I'm describing my lupus I get the question what's it like. I stop and try to think, then I go on to explain that my joints swell and hurt. My body aches all the time, there isn't a minute of a day where I'm not in pain. People start to realize when they see me struggle to get up because my knees are acting up. I look like an 80 year old woman who's healthy but aged enough to where her joints don't work as well anymore. Or when I'm walking in a way that hopefully won't jar my body too much, they ask me if I'm okay.
There are many times I've said "Yeah I'm fine, I just feel like I got hit by a bus before I woke up this morning that's all. I'm just waiting for the pain meds to take a little bit of the edge off. I'll be okay." I get worried looks and find myself reassuring them that I truly will be okay. It seems to hit them all at once when they first realize a little bit of what its like. Afterwards though they'll help me get up from a sitting position if my knees are locking, they'll pick up the heavy stuff that I can't lift sometimes, they'll even open the water bottle that apparently was sealed by the Hulk.
I've read the spoon method now and I might use it sometime if the time presents itself. It's a very good visual way to describe it. Most people don't realize that I have Lupus until I tell them, apparently I hide the pain well. One day though I'll need the spoon method when someone doesn't comprehend my other ways of describing it.View Thread
Posted byLupussufferersince15
There are many times I've said "Yeah I'm fine, I just feel like I got hit by a bus before I woke up this morning that's all. I'm just waiting for the pain meds to take a little bit of the edge off. I'll be okay." I get worried looks and find myself reassuring them that I truly will be okay. It seems to hit them all at once when they first realize a little bit of what its like. Afterwards though they'll help me get up from a sitting position if my knees are locking, they'll pick up the heavy stuff that I can't lift sometimes, they'll even open the water bottle that apparently was sealed by the Hulk.
I've read the spoon method now and I might use it sometime if the time presents itself. It's a very good visual way to describe it. Most people don't realize that I have Lupus until I tell them, apparently I hide the pain well. One day though I'll need the spoon method when someone doesn't comprehend my other ways of describing it.View Thread
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Question for a Dr.
I just noticed that my toenails are kind of rippled. Could this be from my...
Posted by Lupussufferersince15
I just noticed that my toenails are kind of rippled. Could this be from my lupus? I'm in a mild flare up right now from the weather changing and stress. I just want to know in case I need to get it checked out further.View Thread
Posted byLupussufferersince15
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Reply: Question for a Dr.
Thank You! I'll ask my Rheumatologist about it on Wednesday, to be sure that its not from the lupus and that it won't get worse.View Thread
Posted byLupussufferersince15
Thank You! I'll ask my Rheumatologist about it on Wednesday, to be sure that...
Posted by Lupussufferersince15
Thank You! I'll ask my Rheumatologist about it on Wednesday, to be sure that its not from the lupus and that it won't get worse.View Thread
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Reply: Bumps on hands and random tendonitis
I'm glad I could help a little. Just remember even if you are diagnosed with...
Posted by Lupussufferersince15
I'm glad I could help a little. Just remember even if you are diagnosed with lupus, there are medications to monitor it now. I hope you can get this figured out so maybe you can stop suffering.View Thread
Posted byLupussufferersince15
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