I too am the only one amongst my friends and family who suffers from Lupus. My family thinks its a joke and makes fun of me any chance they get. They laugh when I fall, the mock the way I walk, the call me slow when I can't remember what I just said or did. My mom passed when I was in the hospital so I was left at mercy of my relatives to take care of me. Which only did for a piece of the insurance money. Thankfully I have an awesome team of doctors;especially the best damn primary ever (15 years) and a best friend who loves me unconditionally. I wish people could more considerate but that's life. Thank God you're blessed with children despite your sickness. Just pray for strength and patience. I wish you wellView Thread
I CAN'T STOP FALLING!!!! I was diagnosed with lupus in 2003 when I was 19 years old. At first I was pumped full of steroids, but eventually I stopped. In 2005 my body decided to go bonkers I spent 5 months in the hospital. Long story short, because of the long hospitalization with me being immobilized, I suffered severe atrophy. For 8 years I have been trying regain my full balance and it seems impossible.I've been in and out of therapy with minimal results. I recently started yoga but I believe that there is more or something that is affecting my. I was researching some of my medications and Depakote (Divalproex) has a side effect relating to my issue with staying upright. Has anyone experienced this or have any comments and or suggestions that can help me?View Thread
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