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Hope things get better.
Lisatru62View Thread

That's Lupus for you...the weirdest of symptoms.
Lisatru62View Thread

You can try another doctor but make sure they really know autoimmune diseases. Sometimes a dermatologist is a good place to go especially if you are suffering from rashes or lumps as I was.
Unfortunately, finding an accurate diagnosis quickly is not how this works. There are too many autoimmune disease out there and they mimic each other. Keep trying and if you stay on your meds things are bound to get better. Sometimes it takes months for the meds to really do their job.
Good Luck!
Lisatru62View Thread

When I have a bad day I will take one after lunch and then maybe one before bed. This usually doesn't happen more than once a month and then only for a couple of days. I guess I'm lucky. I just noticed that when I do this I feel sweaty at night, kind of dizzy the day after, almost like I have the flu.
Was wondering if these are symptoms of dependancy or if I'm just taking too much. I haven't built up a tolerance to the percocet yet as I still really feel one tablet.
What is the difference between dependancy and tolerance?
Lisatru62View Thread

I know many people who suffer with SLE take some form of pain killer. My doctor said I might become dependent on the Percocet over time. If this is the case shouldn't the fact that I take it everyday keep this symptoms at bay? Has anyone else experienced this?
What exactly is dependancy on this drug? Does anyone have any information on this issue? I've always been worried about this problem but since I take such a small amount I didn't think I would develop a problem.
Thoughts?
Lisatru62View Thread

I've gone around a few times with joint pain and still suffer everyday. Am currently taking percocet and dilaudid/valium combo to help. Not taking the percocet and dilaudid together of course. Joint pain, in your legs, hips, shoulders and arms is quite common. It's like having arthritis without the joint swelling or deformity. Your back pain could be related but definitely have the MRI.
Lupus is one of those illnesses that can cause a lot of other issues all over your body and with various systems, blood, organs, skin and joints/bones.
Keep track of the aches and pains, noting what you are doing so when you go to see the doctor you will have a good explanation of what is happening and when.
Good luck
Lisatru62View Thread

The food thing is something I go through frequently. I have severe stomach pain and gag very easily. While I've gotten to the point where I can keep it down, ususally, it is still very unpleasant. Try keeping some water handy when you eat so if it gets hung up you can take a sip. It helps me. Just be careful you don't drink too much or it can cause stomach pain or make you gag worse. I've been told there is nothing wrong with me and it isn't suppose to be related to my lupus. Some how I don't believe them...
I hope things get better.
Lisatru62View Thread

Yup, I'm depressed, life is no fun when eating becomes a painful experience. You're so right that taking another pill just makes me want to scream. I've tried exercise but it really aggrevates my joint pain and fatigue. When I was first diagnosed I went for walks every other day and just found that after a week I was wiped for the next week.
It just gets old having to deal with all the limitations. Only people such as yourself know what it's like to have lupus. Hard to explain to others.
Lisatru62View Thread

My mental Lupus fog has made things frustrating as of late and only those who have experience it can even relate. I'm tired of all the letdowns in my life and feel particularly bad this week.
Does anyone else get sick of all those phony inspirational phrases? "Turn that frown upside down," "Your happiness is dependent on you not what's happening outside." It gets a little old sometimes, especially when it takes everything just to drag our sore butts out of bed.
If I could give this illness to someone with one of those canned answers when I'm feeling down I would. Then they can experience what we go through everyday. Just saying..
Lisatru62View Thread

When I get a cold my sinuses get stuffed up and this increases the feeling. It also makes it harder to hear. I have very good hearing right now but I've been told that if the Schwannoma grows it can lesser my ability to hear.
They found this growth in my inner ear and it has to be checked annually. Just had an MRI and it hasn't grown since last year which is good. Every now and then I hear a clicking in my ear and there is some ringing also.
Don't know if the growth is lupus related but it does affect my hearing when I get a cold.
Lisatru62View Thread
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