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Dairy has always been kind of a problem so I stopped that, I limit my protein and salt due to my kidneys. I've found that fresh vegetables can be trouble, salad, broccoli, carrots. Liquids are the only thing that gives me the least trouble overall.
I'm beginning to think it's the plaqunil as stomach issues seem to be common for this drug. I suffered really bad when I began taking it over a year ago. Stomach pain, diarrehea, bloating. I'm just hoping that my doctors don't go back to this is all in my head. They did this for ten years when I complained about my lupus symptoms until I was diagnosed late in 2011.
Lisatru62View Thread

It took a little while before I was able to go to sleep quickly without the over the counter stuff but eventually it got better. Now I don't take anything to get myself to sleep and I'm sleeping through the night sometimes up to 9 hours.
I would try to keep a regular sleep schedule and stop using the over the counter sleep aids. They may actually be inferring with your sleep cycle. Also stay away from rich foods, coffee and chocolate after 4pm. Try an herbal tea with no caffiene or other hot beverage. This works for me.
Lisatru62View Thread

You need to find some medications that work for you. Working with your doctors and using discussion boards like this one can give you ideas to bounce off your doctors. Never let them give up and please don't give up on your self. It took me ten years to get a diagnosis because they all thought it was nothing. I kept after them because I knew something was wrong. I now have kidney and stomach issues but the rashes and lumps are clearing up.
If they had found my lupus sooner I maybe heathier today. This is why it is so important to keep at it and work with your doctors to find a solution.
Good luck,
Lisatru62View Thread

When your stomach hurts after you eat you have a tendency to not eat in order to avoid the pain. Don't know what is going on and the upper GI didn't give me any answers.
Was wondering if it could be Lupus related.
Lisatru62View Thread

I don't understand why I have so much pain. Hurts especially after I eat, like an ulcer. Pain medications help alot but it still hurts unless I'm taking the pain meds. The doctor suggested Prilosec and I have tried that in the past with no results. I am trying it again.
Any imput would be helpful and if someone else has experienced this I would love to hear. I've lost about 40 pounds since the pain began because who wants to eat when you're in pain?
Lisatru62View Thread

I have always been the one who has been there for them and helped them with their problems. I have also been the shoulder to cry on when things go wrong. They just haven't been there for me now that I need them.
I've heard them whine about how horrible it was to have the flu this week or how they had to pay for something expensive not realizing that I have the flu everyday of the week and my medications are a constant expense.
People don't understand how debilitating this disease can be and how much we have to give up just to do the basics. It is so disheartening to have people who are suppose to support us unconditionally think it's all in our heads because we look alright.
My family is starting to understand as I've lost 40 pounds in the past six months. I can only say I feel your pain and hopefully they will turn around.
Lisatru62View Thread

Lisatru62View Thread

If you are feeling depressed see if you can't find someone to talk to, a friend or family member since you have no insurance. You doctor may also have suggestions for group discussions. People who go through illnesses or have chronic diseases need support. Remember there are also people here to help.
Hang in there.
Lisatru62View Thread

Typically there are NSAIDs and Tylenol. He suggested a drug called Tramadol, I tried it a few years ago for sleep problems but it gave me nightmares. There are a host of drugs for Fibromyalga that they suggest. They are suppose to deaden the pain receptors. But they are also depression drugs so the mental side effects can be scary. There is also Celebrex for joints but if you have bleeding issues, like me, I wouldn't suggest these.
Since I have bleeding and kidney issues it knocks a lot of drugs out of the running. I have done well on percocet. I only take about 5-10mg per day. I tolerate it well, no constipation or nausea. If you're not already taking an opiate pain killer and have no objection you might want to try it.
Good luck and I hope you feel better.
Another Lisa

Lisatru62View Thread

Go to your doctor and let them know your pain. Be specific. It could also be muscle strain or lower back issues.
Good luck.
Lisatru62View Thread
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