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Lisatru62View Thread

While I've been able to eat, it sometimes hurts and no one has an explanation for why. There doesn't seem to be any other issue.
Lisatru62View Thread

Since then I've had on and off stomach pain. I've noticed is seem to lessen enough so I can eat if I take Percocet, only taking about 7mg total per day.
Lately I've had problems again. My stomach hurts if I eat, even something small like a piece of toast. If I go too long without eating my stomach starts cramping in the evening until I take some Percocet.
Has anyone else had stomach issues and stomach pain? This whole problem began with the botched kidney biopsy.
Lisatru62View Thread

Lisatru62View Thread

You shouldn't feel guilty for feeling bad, it's not your fault, it is a disease. People who have cancer don't feel bad, we usually feel sorry for them. Just because there aren't huge outward signs of a disease doesn't mean you can't hurt or feel tired. That is what lupus does to us.
It is a long row to hoe when it comes to getting a diagnosis and you must see your doctors on a regular basis. Once they figure out a treatment that works you will only see them occassionally.
Stiff upper lip and don't let any doctors or people give up on you, least of all yourself.
Lisatru62View Thread

All autoimmune diseases have some sort of imflammation going on, I just think the location is what is specific about the disease. I do know that you need to see someone and that there is probably medication to reduce the inflammation. Good luck and keep searching for that rheumatologist who will work with you.
Lisatru62View Thread

I've always found it funny that I'm the most helpful and reliable one out of all my siblings, on both sides. My sisters do little to help our parents when they are ill or need assistance, even financial advice. It is also hardest for me due to my Lupus. Anyone who has the disease knows that taking care of others can wear you out terribily, yet I still help.
I think that people who experience chronic illness maybe more helpful than their healthy counterparts due to the fact they know what it is like to be alone and ill. They understand that we can't always take care of ourselves and need help. I've been blessed with a helpful husband, daughter and son. They are always there for me. If I end up in the hospital they are all by my side. Probably why I find it strange that I am the only one who shows up when our parents are sick or hospitalized.
While in Reno I will talk with my sister to see if she can do more. Mom can be a worry because she loves to overdo it. Otherwise it should be fun and I know that Mom loves to see me, which makes it all worthwhile.
Lisatru62View Thread

Further testing determined I had systemic lupus. My symptoms and rashes came and went over a 15 year period while I complained to my doctor that I didn't feel good. I guess if given enough time without treatment discoid lupus can turn into systemic lupus.
Keep at them and see a dermatologist, get a biopsy, they might get better information.
Good luck
Lisatru62View Thread

While Lupus is more common in women, men can also develop this disease. The estrogen may be aggravating his symptoms and can make him feel worse. It is best to run this idea past your doctor.
Hope this helps.
Lisatru62View Thread

Since you are taking opiates you can become dependant on them for the pain. I was concerned as I'm taking the same medications for my pain although only 2mg of Dilaudid and 5/325mg of Percocet as needed. Percocet is Oxycodone and Acetominophen. Usually the Percocet once a day in the afternoon with the occassional half dose in the morning.
I was told by my doctors that those who take the medication for pain in amounts that help with the pain will not have adverse reactions. If you take these medications over a long period of time you may build up a tolerance and require larger doses. Which is why you want to start off with small doses. You will become dependant on the medication and will need it not only for the pain but because your body will feel bad if you abruptly stop taking it. Although we all feel bad all the time. I couldn't tell you what the difference is as I only feel massive pain if I don't take it for a day or miss a dose. No headache, nausea or other addictive symptoms.
I was told that an addict is different, they take the medication to achieve a feeling of "high." They are chasing a sensation rather than relieving pain. If your doses seems large and you are feeling woozy or high after taking the medication talk to your doctor about lowering it. Experiment to see how little you can take and still have pain relieving benefits.
Good luck with your medications. I've been using these drugs in small amounts for a couple of years and have no ill effects. Not a drug addict or experiencing any side effects. It is great pain relief and we all know that pain can keep you from living life.
Lisatru62View Thread
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