I was diagnosed with SLE and fibromyalgia about 2 1/2 years ago although I had symptoms for several years before finally getting a diagnosis. I've been told I was crazy, it was all in my mind, I was lazy, I was a hypochondriac, even had a rheumatologist tell me I need to see a "shrink" cause I was imagining it and the doctor that referred me needed to go back to med school, you name it I heard it.
To all those out there who are newly diagnosed or trying to get a doctor to pay attention to all your symptoms so you can get a diagnosis the best advice I got was to keep trying you are your own best advocate.
The doctors not only have me on plaquanil for the lupus but also on Cymbalta for pain, Abilify for depression, and methylphenidate for the fog. I also take a multi-vitamin each day. It took a bit to find the right combination for me as it does with everyone but this works great for me.
I guess what I'm trying to say is there are other medications besides the normal ones for lupus that help with the other symptoms even though I had to go to a "shrink" to get the help it is well worth it.
Don't get me wrong I still have bad days but I have more good than bad for now. My life is almost normal. Hopefully, this will help someone else out there.View Thread
I was finally diagnosed about 2.5 yrs ago and after being told I was crazy, lazy, and it was all in my head I finally found a good group of doctors. My rheumatologist has me on plaquanil 400mg a day and recommended I see a psychiatrist for the fog depression and low energy. I finally did and he put me on Cymbalta and methylphenidate and melatonin. I'm not saying it will work for everyone but they are like miracle drugs to me. I feel sooooo much better, rarely have to take anything for pain, and much more like my normal self. Also, my regular dr suggested a good multi vitamin and it has helped. These meds along with a good diet, regular exercise, a regular routine, and keeping my spirits up have really helped me because I was ready to give up and say the hell with all of it. Hopefully this helps you and othersView Thread
I was recently diagnosed with Lupus by my family doctor after undergoing many test he referred me to a rhuematologist who after seeing me for about 2 mins ordered more tests, wrote a Rx, and told me I was "crazy and needed to see a shrink." When I went back for my second appt he said everything was normal that I really needed to make that appt with a shrink. I have contacted other rhuematologists and been told I have to have a referral (even tho my ins doesn't req one) and that it could be approx 6 mths b4 they can get me in if I can get my reg doctor to do the referral. I'm lost, confused, and don't know which way to turn for help. I know I'm not crazy or insane or lazy or a hypercondriac or any of the other terms I've heard in the last few months. Or, maybe I am and it's all in my head. Who knows? If fact I'm at the point of just saying screw it and whatever happens to me happens because I can't get any help. I've even heard from family members and friends, oh it'll be ok it'll pass. Or, I don't see why ur upset it's not like u have cancer and ur gonna die in 6 mths. What gives. I even tried calling the National Lupus Foundation - they gave me the name of a rhuematologist who no longer practices rhuematology but has changed to ortopeadics? Even tho it's only been a couple mths since I was diagnosed I've suspected it for a cpl years and I'm already so sick of being tired, feeling bad, my chest hurting, shortness of breath, and just hurting all over in general, and the crappy attitudes of people and doctors. Any suggestions???View Thread