
Reply: ATTN: Elizabeth WebMD:
Hey Lisa - Just popped back on here to see your message. I've been gone for many weeks...
Posted by Lupycakes
Hey Lisa -
Just popped back on here to see your message. I've been gone for many weeks for the very same reason. I've tried to help...tried to answer peoples questions... tried to start conversations .... and the only people who would ever answer me was you and dr. V !
What I also find weird is even the people I answer questions for don't reply! I'm left wondering if they ever saw my answer...
Lets face it, the board will never be what it was. I can't get any of the old ones to come back no matter how many times I ask them to.
If its any consultation, I AM very sorry about all the crap you've been going through with your health and your dogs. I know they mean the world to you!!
For what it's worth, I will always be there to listen to you.
Hugs,
CakeladyView Thread
Posted byLupycakes
Just popped back on here to see your message. I've been gone for many weeks for the very same reason. I've tried to help...tried to answer peoples questions... tried to start conversations .... and the only people who would ever answer me was you and dr. V !
What I also find weird is even the people I answer questions for don't reply! I'm left wondering if they ever saw my answer...
Lets face it, the board will never be what it was. I can't get any of the old ones to come back no matter how many times I ask them to.
If its any consultation, I AM very sorry about all the crap you've been going through with your health and your dogs. I know they mean the world to you!!
For what it's worth, I will always be there to listen to you.
Hugs,
CakeladyView Thread
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Reply: New Here
Welcome greyeyedmuse! Glad you found us! Feel free to jump in and post or respond to...
Posted by Lupycakes
Welcome greyeyedmuse!
Glad you found us! Feel free to jump in and post or respond to any post you wish. The more the merrier I say!
LisaView Thread
Posted byLupycakes
Glad you found us! Feel free to jump in and post or respond to any post you wish. The more the merrier I say!

LisaView Thread
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Reply: Urine protein increase is scaring me!
Aww Lisa !! I really hate to hear the wolf is rearing its ugly head again. I'll keep...
Posted by Lupycakes
Aww Lisa !! I really hate to hear the wolf is rearing its ugly head again. I'll keep you in my prayers that the docs can find some way to lower your bp and get you to feeling better. 25 days with a fever sucks!!!
Gentle hugs,
LisaView Thread
Posted byLupycakes
Gentle hugs,
LisaView Thread
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Reply: Going to another Doctor
Hi, Unfortunately it takes a village of doctors to treat lupus. Going to lots of...
Posted by Lupycakes
Hi,
Unfortunately it takes a village of doctors to treat lupus. Going to lots of doctors, having lots of tests, doctors not wanting to commit to a dx seems to be pretty standard for autoimmune diseases like lupus. Are you under a rheumatologist's care? They are the ones who treat autoimmune and help co-ordinate your care with the other physicians.
Hope you get some answers and relief soon,
LisaView Thread
Posted byLupycakes
Unfortunately it takes a village of doctors to treat lupus. Going to lots of doctors, having lots of tests, doctors not wanting to commit to a dx seems to be pretty standard for autoimmune diseases like lupus. Are you under a rheumatologist's care? They are the ones who treat autoimmune and help co-ordinate your care with the other physicians.
Hope you get some answers and relief soon,
LisaView Thread
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Reply: Worn to a Nub
Hey Lisa (so many Lisa's with lupus) So sorry that you're going through a crappy period...
Posted by Lupycakes
Hey Lisa (so many Lisa's with lupus)
So sorry that you're going through a crappy period right now - unfortunately, we lupies all go through them from time to time. This disease sucks - plain and simple.
Reading over your post it sounds like you might be experiencing a bit of depression ( I know - Duh!) and might benefit from some meds. It's extremely common for people with chronic illness to go through phases of depression - especially when the wolf kicks our a**.
If the thought of taking another pill makes you want to scream, you might try a bit of exercise - and I'm just talking about going for a walk - even if its just for 20 minutes can help your mood and your pain level.
If you mean you "pay for it later" when you eat that your intestines hurt, you should try going gluten free for a few days to see if it makes a difference. It really helped me in that regard.
And as always - whine, vent and grumble here - sometimes that's all we really need to start to feel better - just having people who understand and listen can be the best medicine of all.
Hugs,
LisaView Thread
Posted byLupycakes
So sorry that you're going through a crappy period right now - unfortunately, we lupies all go through them from time to time. This disease sucks - plain and simple.
Reading over your post it sounds like you might be experiencing a bit of depression ( I know - Duh!) and might benefit from some meds. It's extremely common for people with chronic illness to go through phases of depression - especially when the wolf kicks our a**.
If the thought of taking another pill makes you want to scream, you might try a bit of exercise - and I'm just talking about going for a walk - even if its just for 20 minutes can help your mood and your pain level.
If you mean you "pay for it later" when you eat that your intestines hurt, you should try going gluten free for a few days to see if it makes a difference. It really helped me in that regard.
And as always - whine, vent and grumble here - sometimes that's all we really need to start to feel better - just having people who understand and listen can be the best medicine of all.
Hugs,
LisaView Thread
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Reply: Lupus is flaring
Awww....Lisa, I hate to hear that! I know you've been through a lot lately and you...
Posted by Lupycakes
Awww....Lisa, I hate to hear that! I know you've been through a lot lately and you certainly don't need any more crappy news! I hope you get to feeling better soon and show the wolf who's boss!!!
Gentle hugs,
LisaView Thread
Posted byLupycakes
Gentle hugs,
LisaView Thread
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New lupus test????
Got a email from the lupus foundation today about a new blood test for Dx lupus. What I...
Posted by Lupycakes
Got a email from the lupus foundation today about a new blood test for Dx lupus. What I don't understand is why this test isn't available at all labs? I mean, why does the doctor have to request the lab kit?
http://www.lupus.org/webmodules/webarticlesnet/templates/new_magazineempty.aspx?articleid=4867&zoneid=225
Dr. V... What are your thoughts about this new test?
Thanks,
LisaView Thread
Posted byLupycakes
http://www.lupus.org/webmodules/webarticlesnet/templates/new_magazineempty.aspx?articleid=4867&zoneid=225
Dr. V... What are your thoughts about this new test?
Thanks,
LisaView Thread
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New lupus test????
Got a email from the lupus foundation today about a new blood test for Dx lupus. What I...
Posted by Lupycakes
Got a email from the lupus foundation today about a new blood test for Dx lupus. What I don't understand is why this test isn't available at all labs? I mean, why does the doctor have to request the lab kit?
http://www.lupus.org/webmodules/webarticlesnet/templates/new_magazineempty.aspx?articleid=4867&zoneid=225
Dr. V... What are your thoughts about this new test?
Thanks,
LisaView Thread
Posted byLupycakes
http://www.lupus.org/webmodules/webarticlesnet/templates/new_magazineempty.aspx?articleid=4867&zoneid=225
Dr. V... What are your thoughts about this new test?
Thanks,
LisaView Thread
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Includes Expert Content
Reply: too long on plaquenil
Hi Dr.V, I'm a bit confused ... You said 7 grams in one's lifetime ?? If my math is...
Posted by Lupycakes
Hi Dr.V,
I'm a bit confused ... You said 7 grams in one's lifetime ?? If my math is correct( and who knows, its been decades since I was in school) I take 400mg/day x 365 days per year = 146,000mg x 6 years = 876,000mg \1,000 = 876 grams in my lifetime ....yikes!
What have I figured wrong??
LisaView Thread
Posted byLupycakes
I'm a bit confused ... You said 7 grams in one's lifetime ?? If my math is correct( and who knows, its been decades since I was in school) I take 400mg/day x 365 days per year = 146,000mg x 6 years = 876,000mg \1,000 = 876 grams in my lifetime ....yikes!
What have I figured wrong??
LisaView Thread
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Just wanted to say hello!!!
I've been gone for awhile due to technical difficulties but I'm back and wanted to say hi...
Posted by Lupycakes
I've been gone for awhile due to technical difficulties but I'm back and wanted to say hi to all the new members ( and all the regulars too).
LisaView Thread
Posted byLupycakes
LisaView Thread
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