I sometimes get finger nail bed pains. It gets red and swollen sometimes with a clear/bloody seepage. Sometimes 3 fingers at once. But since this is new for you and you have had lupus a long time now, I would think that this maybe something else related. Guessing a possible infection since you just got off of prednisolone. I notices this was posted 4 days ago, if its not better by now I would go to the Dr.
I have an auto-immune lupus like condition, and one of my first things that I noticed was that my hair was only about 2 inches long around my hairline. I had been slowly loosing it. From what I have read on other Lupus blogs is that hair loss is common. From other peoples experiences it seems that once they start getting treatment and get out of a bad flare, then it starts growing back. I have read that the hair re-growth is easier with the SLE more than the discoid lupus. Hope this info helps some.View Thread
I haven't noticed the weather affecting me as much as the sun. Have you been outside more with the cooler weather? Even certain indoor lighting really effects me. Sorry to hear that the predisone isn't working for you, hang in there.
I am going to the doctor next week to test for Lupus myself. I have many of the symptoms including sun sensitivity and malar rash, yet I am afraid he is going to think I am crazy.
I am bringing with me a long list of labs that I want to get checked. I am also bringing with me a long list of all my symptoms, what makes things better and worse, any medications,etc.
Be proactive- like you are doing, and keep searching for a doctor that will listen. This is Your Life, Your Health, you have to be proactive with your health. You know your body, so your not crazy ! As for looking back and wondering if something could have been prevented... you may never know. I am so sorry that you have experienced the loss of a child, and are having these medical issues. If you do find out that something could have been prevented, use that knowledge to become active on various health forums and help to prevent more health problems in others.
Thanks so much for asking this question, this is very interesting. Most information on the internet keeps saying that you should go with the ANA test, although people that actually have Lupus say that it isn't always positive.
I am going to be tested for Lupus in a few weeks, and I found this information very helpful. Thanks !
Did you have a rash in the area that she took the biopsy?
I would definitely do to a dermatologist. Have you done internet research online to compare your rash to other rashes? What does your rash look like? It is in a circular pattern? Is it raised above the skin? etc.View Thread
I am also a nurse, although I haven't been in the field for 6 years. I am staying home with the kids now. But I just wanted to say that I am sorry that you are hurting. The only thing that I could suggest is switching to a different area of nursing. Not sure if you are med/sug, ICU, or what, but I know how hard nursing jobs are on your body. You are on your feet A LOT, your body pushes, pulls, bends, stretches, etc. If there is any way that you could give your body a rest for a while, then it may help.
Sorry to hear that your family "just doesn't get it", and that you are struggling with a full work load and health issues.
I read a blog post the other day from a woman who had Lupus and she talked about running herself into the ground for 4 years, working full time and really pushing herself. She then talked about how she realized that she needed to start putting her health first and making that a priority in her life. And how this changed her outlook on life, and made her quality of life so much better.
If you are in a position where it is even slightly possible for you to slow down your life, then Do It. I keep reading that pushing yourself with Lupus has it consequences, and they aren't good. (My opinion with family)
I have learned with my family that sometimes I just have to be blunt and come out and say things, as they just don't get it- with other stuff sometimes. Just be clear with them what you expect.Say.. Here are my symptoms, here are my treatments, and when I am having a flare I may start needing your help. (I bet you are like me and hate asking for help) They may just not know what to say or how to help. I know when my mom doesn't know what to say, she usually just says something off of the top of her head, and usually offends me. Things like "Oh your probably just tired, you have had 4 kids so close together, and your body is not suppose to do that and ......" You get the idea.
Okay, sorry for the rambling post, I just wanted to offer some encouragement, and send you a Hug...