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I am also a nurse, although I haven't been in the field for 6 years. I am staying home with the kids now. But I just wanted to say that I am sorry that you are hurting. The only thing that I could suggest is switching to a different area of nursing. Not sure if you are med/sug, ICU, or what, but I know how hard nursing jobs are on your body. You are on your feet A LOT, your body pushes, pulls, bends, stretches, etc. If there is any way that you could give your body a rest for a while, then it may help.
Good luck !!!
BonnieView Thread

I read a blog post the other day from a woman who had Lupus and she talked about running herself into the ground for 4 years, working full time and really pushing herself. She then talked about how she realized that she needed to start putting her health first and making that a priority in her life. And how this changed her outlook on life, and made her quality of life so much better.
If you are in a position where it is even slightly possible for you to slow down your life, then Do It. I keep reading that pushing yourself with Lupus has it consequences, and they aren't good. (My opinion with family)
I have learned with my family that sometimes I just have to be blunt and come out and say things, as they just don't get it- with other stuff sometimes. Just be clear with them what you expect.Say.. Here are my symptoms, here are my treatments, and when I am having a flare I may start needing your help. (I bet you are like me and hate asking for help) They may just not know what to say or how to help. I know when my mom doesn't know what to say, she usually just says something off of the top of her head, and usually offends me. Things like "Oh your probably just tired, you have had 4 kids so close together, and your body is not suppose to do that and ......" You get the idea.
Okay, sorry for the rambling post, I just wanted to offer some encouragement, and send you a Hug...
Love,
BonnieView Thread

Did the doctor ever say why people end up getting a low vitamin D level?
Do you have sun sensitivity?
Thanks for sharing with us your information.
BonnieView Thread

I havent been diagnosed yet, but have lots of bruises, and not on any medications yet.
Waiting to get to the doctor for test.View Thread
So sorry to hear about your troubles, but I am excited for you about your opportunity.
I don't have a Lupus diagnosis yet, but all the symptoms. I feel like I am in a flare up now. We have 4 kids, ages 6,5,3, and 1. Since I have stared getting sick, about 2 months ago, I have learned to pace myself. Schedule in a nap, make better use of my time- play with the kids when I am feeling good instead of Facebook.
From what I keep reading about Lupus is that you are suppose to keep working with your doctor until you get the flare under control.
I am probably not much help, but wanted to let you know that you can be a Great mom and have Lupus.
Good luck,
BonnieView Thread

I also just wanted to welcome you here. I am sorry that I don't know of anyone else in the same place or situation that you are. But please know that with the internet, you are never alone.
You seem like an amazingly strong, and brave person, I hope you choose to stay in contact with us here on the forum, as we can probably learn a lot from your strength. Do you have a website that I can see some of your writings and children's books? Do keep in touch !
BonnieView Thread

http://en.wikipedia.org/wiki/Tonsillolith
As far as I know, they don't have anything to do with Lupus. They are embarrassing, but I have them also. The only thing that I have found that really keeps them from forming is something called There Breath. It is a special mouth rinse. You can also use the toothpaste. I believe that you can still buy it at wal-mart or online here
http://www.therabreath.com/tonsil-stones/
I just noticed that they have a solution for cancer sores, if you get those because of your Lupus.
If tonsil stones is what you have, then I hope this info helps.
BonnieView Thread

https://www.inspire.com/groups/joint-support-arthritis/discussion/lupus-and-ra/View Thread

"Repletion with vitamin D should be carried out among SLE patients to prevent their suffering from becoming any worse. Thanks to the research carried out at the University of Oklahoma, it is evident that such a course of treatment is necessary."
Here is the link. http://www.medicalnewstoday.com/articles/232288.php
Has anyone else heard of this before? Are there others on this forum that take Vitamin D supplements as part of your treatment?
If so what is the dose and frequency?
Thanks !!!
BonnieView Thread

This helps me.
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