From what I have read it is. Have you been tested for Hughes Syndrome "sticky blood". Hughes is common in patients with lupus and can cause bruising. Also some of the lupus medications can cause lupus.
I havent been diagnosed yet, but have lots of bruises, and not on any medications yet. Waiting to get to the doctor for test.View Thread
So sorry to hear about your troubles, but I am excited for you about your opportunity.
I don't have a Lupus diagnosis yet, but all the symptoms. I feel like I am in a flare up now. We have 4 kids, ages 6,5,3, and 1. Since I have stared getting sick, about 2 months ago, I have learned to pace myself. Schedule in a nap, make better use of my time- play with the kids when I am feeling good instead of Facebook.
From what I keep reading about Lupus is that you are suppose to keep working with your doctor until you get the flare under control.
I am probably not much help, but wanted to let you know that you can be a Great mom and have Lupus.
I also just wanted to welcome you here. I am sorry that I don't know of anyone else in the same place or situation that you are. But please know that with the internet, you are never alone. You seem like an amazingly strong, and brave person, I hope you choose to stay in contact with us here on the forum, as we can probably learn a lot from your strength. Do you have a website that I can see some of your writings and children's books?
As far as I know, they don't have anything to do with Lupus. They are embarrassing, but I have them also. The only thing that I have found that really keeps them from forming is something called There Breath. It is a special mouth rinse. You can also use the toothpaste. I believe that you can still buy it at wal-mart or online here
From what I understand is that they are both auto-immune diseases, and sometimes they do like to run together. The symptoms can overlap and make it difficult to diagnose.Here is a forum that I found that has a few people diagnosed with both.
I kept talking to others with Lupus who mentioned that they also had low levels of Vitamin D when first diagnosed. I started doing my own research and found this link Very helpful. It basically says that Lupus patients should also be on Vitamin D to help with their treatment.
"Repletion with vitamin D should be carried out among SLE patients to prevent their suffering from becoming any worse. Thanks to the research carried out at the University of Oklahoma, it is evident that such a course of treatment is necessary."
Is it on both sides of your body? From what I understand Shingles would just be on one side our your body.
Maybe you could try some numbing spray. I know they have some over the counter. Like the kind you buy to spray on after you have a baby, or for a burn. There are also burn gel packs that you can buy online. Even though there is not a rash or an actual burn, this may help.View Thread
Have you ever been tested for Celiac Disease? It has many symptoms of lupus and also the GI symptoms. I have read that sometimes they go together and people with Lupus also have Celiac Disease. I have also read that when someone with lupus go on a gluten free diet it really helps them.