Hi, my name is Nicole. I am 25 and was diagnosed with lupus March of 2012. I have had a mirage of symptoms and it feels like this wild ride is never going to end. I've had sepsis, pleurisy twice, pyelonephritis, pericarditis, serotonin syndrome, migraines, extreme fatigue, confusion, severe joint pain, abdominal pain, and now severe back and right hip pain and weakness. I've had too many MRI's and CT's to count. I've been in the hospital 5 times in the last year. With this back and hip pain, I'm going to PT and taking more pain meds than I ever have in my life. I'm on plaquenil, cellcept, Celebrex, Prilosec, nucynta and I just had to restart on prednisone today after 9 weeks of being off of it (that was the first time getting off of it since diagnosed). I feel like I'm on a sick rollercoaster ride that won't stop. I'm becoming depressed and its only going to get worse as I gain more weight because of these lovely steroids. I am an ICU nurse and am missing tons of work. I feel like I'm losing control of my life. I absolutely love my job and I feel like that's slowly slipping away too. I need some reassurance that one day it will get better. I will be able to be a normal 25 year old. Go out with my friends and husband. Make it to work like any other person. One day have a baby. This disease is terrible and I'm at the edge of the cliff looking down, I just don't know how much longer I can go on like this.View Thread
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