I am just now coming out of a Lupus Flare. UGH!! This was the worst one yet! I can usually stay fairly stress free which is a big trigger for a flare but life happens no matter how hard you try lol. My bald spot is now the size of the palm of my hand and I have about half the thickness as it was. It does usually grow back but I'm thinking this time I may not recover so easily. My Neurologist suggested I go on 600 mg of Alpha Lipoic Acid. It slows down the effects of aging and I noticed a change for the better! It also helps with weight loss if you're having those issues. You will most likely have to request your pharmacist carry it in that strength tho.
I've had Discoid Lupus for over 30 years now. I too have itching both Phantom and like ssh49tn's. I have hives and the Dr.s have changed my meds thinking it's a side effect but nothing has worked. My right arm and hands get it most of the time but it isn't picky about where it goes. My scalp itches a lot but I'm currently going through a flare so my bald spot is bigger and hair is falling out, along with the Lupus Rash ugh! The phantom itches are popping in and out quite frequently, especially when I don't take the allergy meds every day. it's not uncommon at all from what I've read. Selsun Blue and allergy meds are my best suggestion also.
I was guided to a Selsum Blue shampoo, or the generic form containing Selerium Sulfide. The Dermatologist gave me a prescription for Ketoconazole Cream for the Lupus rash on the crown of my head. That spot will be bald permanently as far as I know because of the biopsy but the shampoo and cream has helped for the rest of the area. It comes and goes, mostly goes but I am 58 now and have dealt with it for so long I don't remember life without Lupus. I noticed for me, if my hair is kept no longer than shoulder length, I tend to keep it for longer periods. I wear hats ALL the time. The hardest thing for me to remember is to watch out for the indoor lighting. Just because you're 'out of the sun' doesn't mean you're out of danger. Some lights (florescent) for me, are just as bad as the sun, so if you have a tendency to read under lamp-light and such, make sure you are using the right kind of light bulbs. Maybe a discussion with your MD.?View Thread
There is a site called ButYouDontLookSick.com . It's a support group I ran across while searching WebMD. Christine Miserandino is an awesome person who has Lupus herself and has made quite a few appearances talking about Lupus. This support group is a gr8 one for those of us with hidden illnesses.
I have Lupus and yes, I have a spot about the size of a silver dollar that is mostly bald, the hair comes and goes. My hair has thinned quite a bit through the years but that one spot gets me grrr. I also have a spot under my right breast that has flared up. Both were biopsied and came back positive for Lupus. I wear hats all the time, makes it easier View Thread