
Reply: How do you know about internal damage after flare?
I had blood work and also (dont know if you have seen it yet orange pee jug )you...
Posted by mommawithlupus87
I had blood work and also (dont know if you have seen it yet orange pee jug )you have to colect your pee for 24 hours . I did this many many times all comming out with protine I think I was 17 at the time . so I dont recall everything I wasnot active with my lupus till last year when I had a flair ( in my mind I was healthy 100% of the time ) Sorry Im not much help with itView Thread
Posted bymommawithlupus87
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Reply: How do you know about internal damage after flare?
I had no pain at all in my kidneys I have never had trouble as far as pain or not...
Posted by mommawithlupus87
I had no pain at all in my kidneys I have never had trouble as far as pain or not being able to urinate or anything but had damage done .... the biopsy they took now that HURT as they gave me nothing to deal with it because then it would be filterd by my kidneys no meds after either . not somthing I want to do again but just know I will have toView Thread
Posted bymommawithlupus87
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Reply: Lupus Psychosis HELP!
I would love to join ! my name is Carla Otero
Posted by mommawithlupus87
I would love to join ! my name is Carla OteroView Thread
Posted bymommawithlupus87
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Reply: How do you know about internal damage after flare?
Like Lisa said I know I have gotten organ damage on my kidneys and I know with...
Posted by mommawithlupus87
Like Lisa said I know I have gotten organ damage on my kidneys and I know with this flair my CBC (complete blood count ) was way down ... I get blood taken sometime 2 times a week others once every two weeks . for my kidneys I was getting a nice orange jug to collect my pee for 24 hours . But they start off with blood work and react to what they see I have also had X-rays of hands and such . it doesnt hurt to ask your dr if you think somthings not right .
CarlaView Thread
Posted bymommawithlupus87
CarlaView Thread
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Feavers ?
now I know feavers come along with flairs but recently i cant seem to get rid of...
Posted by mommawithlupus87
now I know feavers come along with flairs but recently i cant seem to get rid of it (this is my 2nd and longest flair yesterday v-day marks one year ) i have been in this flair the first flair i had i ran feaver but this one not so much but for the last i want to say week its 100.3 or higher (when not having feaver my temp is 96 if that most of the time im way below the normal ) do flairs change alot or have you noticed the effect the same things or differnt each time I know the first flair i had gave me kidney damage (and should i be concerned that no one has made me do a 24hr urinanalisis ? ) Ive bounced around with rehmy because 1 im on medicaid and their drs SUCK and 2 because i live in an area that is Seasonal (Naples Fl) and has lots of $ the dr I do like only takes medicaid out of season . I would go to my primary but he wants nothing to do with my Lupus . I am on Imuran ,hopefully this gets better soon maybe its a little cold i havent really noticed yet but because im on imuran im getting stronger effects I dont know sorry Im rambeling now Thanks for any replys ! CarlaView Thread
Posted bymommawithlupus87
Take the Poll
are feavers normal in your flair ?
Poll Results
are feavers normal in your flair ?
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yes50% (4)
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no25% (2)
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sometimes25% (2)
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Reply: lupus
thats suprising that they did not have you on them b4 knowing you have lupus and...
Posted by mommawithlupus87
thats suprising that they did not have you on them b4 knowing you have lupus and being in your mouth ( very germy ) did they give you after care instructions ?View Thread
Posted bymommawithlupus87
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Reply: lupus
did they give you antibiotics before your surgery ?
Posted by mommawithlupus87
did they give you antibiotics before your surgery ?View Thread
Posted bymommawithlupus87
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Reply: Worn to a Nub
I know how you feel having lupus SUCKS!!!!!!!!!!!!!!!!!!!!!! .... I am the only...
Posted by mommawithlupus87
I know how you feel having lupus SUCKS!!!!!!!!!!!!!!!!!!!!!! .... I am the only person in my family and friends who has any health problems I know they mean well but i have told them all to shut up . because they just dont understand I have 3 kids that never clean ANYTHING Mom will do it is their attitude and living in filth seems to be ok with them as their are just days that I do nothing because I hurt and dont have the energy . and i know the amount of stress of having 3 kids isnt helping (i have a stepdaughter thats 15 ... 10 years younger than i am a son who is 5 and a daughter thats 3 ... Im 25) some days I want to beat my head on the wall I love all of them but beating my head against the wall may feel better ... but the feeling of no one understanding i 100% feel you ! I dont think my Lupus is as bad as yours (but i have been in a flair for a year ) I have forgoten what its like not to hurt all over . I hope you hadies get some relife soon I will say it makes you appericate the days you dont feel like complete poo !
Good luck
<3 CarlaView Thread
Posted bymommawithlupus87
Good luck
<3 CarlaView Thread
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essential oils
Has anyone ever used one of my friends thinks this will help she uses them and has...
Posted by mommawithlupus87
Has anyone ever used one of my friends thinks this will help she uses them and has a great response but she doesnt have Lupus .... any thoughts ?View Thread
Posted bymommawithlupus87
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Reply: RA and Lupus bring about the same symptoms
Sorry there is not to much kind I can really say about Lupus (it sucks ) .... but...
Posted by mommawithlupus87
Sorry there is not to much kind I can really say about Lupus (it sucks ) .... but if you are put on the right meds you can somewhat live a normal life you create a new normal finding out is a hard thing but its important to know as lupus effects your organs . you just have to take care of yourselfView Thread
Posted bymommawithlupus87
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